Cystic Fibrosis Forum (EXP)

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  1. M

    PKU

    Thank you all so much. I've been floundering for months trying to figure this out! She had the second screening which apparently still flagged CF, then sweat test showed 15. I understand that some still have CF with a neg. sweat test. She's maintaining her weight so far. Her ped dropped CF...
  2. M

    PKU

    Thank you all so much. I've been floundering for months trying to figure this out! She had the second screening which apparently still flagged CF, then sweat test showed 15. I understand that some still have CF with a neg. sweat test. She's maintaining her weight so far. Her ped dropped CF...
  3. M

    PKU

    Thank you all so much. I've been floundering for months trying to figure this out! She had the second screening which apparently still flagged CF, then sweat test showed 15. I understand that some still have CF with a neg. sweat test. She's maintaining her weight so far. Her ped dropped CF...
  4. M

    PKU

    Thank you all so much. I've been floundering for months trying to figure this out! She had the second screening which apparently still flagged CF, then sweat test showed 15. I understand that some still have CF with a neg. sweat test. She's maintaining her weight so far. Her ped dropped CF...
  5. M

    PKU

    Thank you all so much. I've been floundering for months trying to figure this out! She had the second screening which apparently still flagged CF, then sweat test showed 15. I understand that some still have CF with a neg. sweat test. She's maintaining her weight so far. Her ped dropped CF...
  6. M

    PKU

    I'm confused as to what test my granddaughter had. It was referred to as a Newborn Screening, which is when the CF possibility was raised. Then I kept hearing "the PKU test". From what I've read, the phenylketonuria (PKU) test is done to check whether a newborn baby has the enzyme needed to...
  7. M

    PKU

    I'm confused as to what test my granddaughter had. It was referred to as a Newborn Screening, which is when the CF possibility was raised. Then I kept hearing "the PKU test". From what I've read, the phenylketonuria (PKU) test is done to check whether a newborn baby has the enzyme needed to...
  8. M

    PKU

    I'm confused as to what test my granddaughter had. It was referred to as a Newborn Screening, which is when the CF possibility was raised. Then I kept hearing "the PKU test". From what I've read, the phenylketonuria (PKU) test is done to check whether a newborn baby has the enzyme needed to...
  9. M

    PKU

    I'm confused as to what test my granddaughter had. It was referred to as a Newborn Screening, which is when the CF possibility was raised. Then I kept hearing "the PKU test". From what I've read, the phenylketonuria (PKU) test is done to check whether a newborn baby has the enzyme needed to...
  10. M

    PKU

    I'm confused as to what test my granddaughter had. It was referred to as a Newborn Screening, which is when the CF possibility was raised. <br /> <br />Then I kept hearing "the PKU test". From what I've read, the phenylketonuria (PKU) test is done to check whether a newborn baby has the...
  11. M

    Low sweat test but still concerned

    Thanks Rebecca. It looks like there's a center about 70 miles away which I would do without question. Unfortunately, Mom has blind faith in the dr. (that plus I think wanting to believe she doesn't have CF) that right now she won't push to get the consultation. I take care of the baby while...
  12. M

    Low sweat test but still concerned

    Thanks Rebecca. It looks like there's a center about 70 miles away which I would do without question. Unfortunately, Mom has blind faith in the dr. (that plus I think wanting to believe she doesn't have CF) that right now she won't push to get the consultation. I take care of the baby while...
  13. M

    Low sweat test but still concerned

    Thanks Rebecca. It looks like there's a center about 70 miles away which I would do without question. Unfortunately, Mom has blind faith in the dr. (that plus I think wanting to believe she doesn't have CF) that right now she won't push to get the consultation. I take care of the baby while...
  14. M

    Low sweat test but still concerned

    Thanks Rebecca. It looks like there's a center about 70 miles away which I would do without question. Unfortunately, Mom has blind faith in the dr. (that plus I think wanting to believe she doesn't have CF) that right now she won't push to get the consultation. I take care of the baby while...
  15. M

    Low sweat test but still concerned

    Thanks Rebecca. It looks like there's a center about 70 miles away which I would do without question. Unfortunately, Mom has blind faith in the dr. (that plus I think wanting to believe she doesn't have CF) that right now she won't push to get the consultation. I take care of the baby while...
  16. M

    Low sweat test but still concerned

    Thanks Melissa......your usual good advice. We live in a very rural area & there's no choice in pediatricians although Mom likes this one as she had her as a child. I think the obstacle to overcome is "The sweat test is no longer the gold standard of CF testing like it use to be when thats all...
  17. M

    Low sweat test but still concerned

    Thanks Melissa......your usual good advice. We live in a very rural area & there's no choice in pediatricians although Mom likes this one as she had her as a child. I think the obstacle to overcome is "The sweat test is no longer the gold standard of CF testing like it use to be when thats all...
  18. M

    Low sweat test but still concerned

    Thanks Melissa......your usual good advice. We live in a very rural area & there's no choice in pediatricians although Mom likes this one as she had her as a child. I think the obstacle to overcome is "The sweat test is no longer the gold standard of CF testing like it use to be when thats all...
  19. M

    Low sweat test but still concerned

    Thanks Melissa......your usual good advice. We live in a very rural area & there's no choice in pediatricians although Mom likes this one as she had her as a child. I think the obstacle to overcome is "The sweat test is no longer the gold standard of CF testing like it use to be when thats all...
  20. M

    Low sweat test but still concerned

    Thanks Melissa......your usual good advice. We live in a very rural area & there's no choice in pediatricians although Mom likes this one as she had her as a child. I think the obstacle to overcome is "The sweat test is no longer the gold standard of CF testing like it use to be when thats all...
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