Cystic Fibrosis Forum (EXP)

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  1. M

    Low sweat test but still concerned

    Thanks for replying Liza, that's how I feel & I have read that about the sweat test. I asked if they got an adequate sample & the dr. "assumed" they did. I recently learned about those with Pancreatic Sufficiency. She has a ravenous appetite in spite of all her throwing up so so far she's...
  2. M

    Low sweat test but still concerned

    Thanks for replying Liza, that's how I feel & I have read that about the sweat test. I asked if they got an adequate sample & the dr. "assumed" they did. I recently learned about those with Pancreatic Sufficiency. She has a ravenous appetite in spite of all her throwing up so so far she's...
  3. M

    Low sweat test but still concerned

    Thanks for replying Liza, that's how I feel & I have read that about the sweat test. I asked if they got an adequate sample & the dr. "assumed" they did. I recently learned about those with Pancreatic Sufficiency. She has a ravenous appetite in spite of all her throwing up so so far she's...
  4. M

    Low sweat test but still concerned

    Thanks for replying Liza, that's how I feel & I have read that about the sweat test. I asked if they got an adequate sample & the dr. "assumed" they did. I recently learned about those with Pancreatic Sufficiency. She has a ravenous appetite in spite of all her throwing up so so far she's...
  5. M

    Low sweat test but still concerned

    Thanks for replying Liza, that's how I feel & I have read that about the sweat test. I asked if they got an adequate sample & the dr. "assumed" they did. I recently learned about those with Pancreatic Sufficiency. She has a ravenous appetite in spite of all her throwing up so so far she's...
  6. M

    Low sweat test but still concerned

    The dr. told us my 4 mo old granddaughter's sweat test was 15 so she is dismissing CF. I'm still puzzled by the newborn screening flagging CF. I asked about what gene & Dr. said it wasn't a gene test? They did a retake which also flagged CF. The reason I'm still concerned is that: she has...
  7. M

    Low sweat test but still concerned

    The dr. told us my 4 mo old granddaughter's sweat test was 15 so she is dismissing CF. I'm still puzzled by the newborn screening flagging CF. I asked about what gene & Dr. said it wasn't a gene test? They did a retake which also flagged CF. The reason I'm still concerned is that: she has...
  8. M

    Low sweat test but still concerned

    The dr. told us my 4 mo old granddaughter's sweat test was 15 so she is dismissing CF. I'm still puzzled by the newborn screening flagging CF. I asked about what gene & Dr. said it wasn't a gene test? They did a retake which also flagged CF. The reason I'm still concerned is that: she has...
  9. M

    Low sweat test but still concerned

    The dr. told us my 4 mo old granddaughter's sweat test was 15 so she is dismissing CF. I'm still puzzled by the newborn screening flagging CF. I asked about what gene & Dr. said it wasn't a gene test? They did a retake which also flagged CF. The reason I'm still concerned is that: she has...
  10. M

    Low sweat test but still concerned

    The dr. told us my 4 mo old granddaughter's sweat test was 15 so she is dismissing CF. I'm still puzzled by the newborn screening flagging CF. I asked about what gene & Dr. said it wasn't a gene test? They did a retake which also flagged CF. <br /> <br /> The reason I'm still concerned is...
  11. M

    Lost in the Diagnosis Process

    Thank you Tom, very much! This helps me to understand alot. I feel like I've been trying to look through jello! People speak in generalities so much, so it's hard to sort out "test", what test, "normal"--define normal, etc. Even doctors often speak in such general terms. I'm not sure about...
  12. M

    Lost in the Diagnosis Process

    Thank you Tom, very much! This helps me to understand alot. I feel like I've been trying to look through jello! People speak in generalities so much, so it's hard to sort out "test", what test, "normal"--define normal, etc. Even doctors often speak in such general terms. I'm not sure about...
  13. M

    Lost in the Diagnosis Process

    Thank you Tom, very much! This helps me to understand alot. I feel like I've been trying to look through jello! People speak in generalities so much, so it's hard to sort out "test", what test, "normal"--define normal, etc. Even doctors often speak in such general terms. I'm not sure about...
  14. M

    Lost in the Diagnosis Process

    Thank you Tom, very much! This helps me to understand alot. I feel like I've been trying to look through jello! People speak in generalities so much, so it's hard to sort out "test", what test, "normal"--define normal, etc. Even doctors often speak in such general terms. I'm not sure about...
  15. M

    Lost in the Diagnosis Process

    Thank you Tom, very much! This helps me to understand alot. I feel like I've been trying to look through jello! People speak in generalities so much, so it's hard to sort out "test", what test, "normal"--define normal, etc. Even doctors often speak in such general terms. <br /> <br />I'm...
  16. M

    Lost in the Diagnosis Process

    Being a Grammie is a delight but it can be frustrating! I called the state lab myself to see what the hold up was since it's been 2 mos since they redid the NBS. (I still don't even know exactly what either of the screenings were, the person asked if it was CFB or CFC & something about the CFB...
  17. M

    Lost in the Diagnosis Process

    Being a Grammie is a delight but it can be frustrating! I called the state lab myself to see what the hold up was since it's been 2 mos since they redid the NBS. (I still don't even know exactly what either of the screenings were, the person asked if it was CFB or CFC & something about the CFB...
  18. M

    Lost in the Diagnosis Process

    Being a Grammie is a delight but it can be frustrating! I called the state lab myself to see what the hold up was since it's been 2 mos since they redid the NBS. (I still don't even know exactly what either of the screenings were, the person asked if it was CFB or CFC & something about the CFB...
  19. M

    Lost in the Diagnosis Process

    Being a Grammie is a delight but it can be frustrating! I called the state lab myself to see what the hold up was since it's been 2 mos since they redid the NBS. (I still don't even know exactly what either of the screenings were, the person asked if it was CFB or CFC & something about the CFB...
  20. M

    Lost in the Diagnosis Process

    Being a Grammie is a delight but it can be frustrating! <br /> <br />I called the state lab myself to see what the hold up was since it's been 2 mos since they redid the NBS. (I still don't even know exactly what either of the screenings were, the person asked if it was CFB or CFC & something...
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