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I was on Zithro MWF for a few months. When I started have NTM (avium) show up they took me off the Zithro immediately . I am now on it full time (every day) to treat my NTM (avium). They took me off it so that they could use it with the two big MAC drugs... it gives the NTM a big punch.
They look cute. I might wait to see if the price goes down (Yes, I am cheap). I just get so frustrated the way jeans flt my CF bod (pinch and bind) . If I can't find any, I might just have to stick with skirts and knit pants.
Ladies, where do you find well fitting jeans?? I have tried men's jeans but they just don't fit right. Teenage jeans are highly inappropriate for this middle aged woman.
From all the coughing, tummy issues and an un-lovely hernia I am not skinny by any stretch of the imagination. I have...
That is just the point I made in the letter. I asked my family if they want to be guilty of killing me.
I am done sugar coating things for them.... things have never been sugar coated for me. They are so removed from my illness that they can forget that the disease exists.
I put all the...
I wrote a letter to my family and friends. It has already been strongly accepted by my family so far. I am still waiting to hear from my inlaws. We are expecting to meet resistance but at least they will know in writing how we stand.
My Hubby is on my side. He was just hesitant.
I am taking MAC drugs... almost at 3 month mark. I have been really careful during this cold and flu season. At Christmas my inlaws came and knowingly exposed me to cold and virus germs. We have told them over and over to stay home if they have been around sick people. They refuse to listen...
I have that mutation as well. I didn't loose lung function until a few years ago.... was in the upper 90's and now I in the low 70's. Pretty sure it is due to the MAC that I have in my lungs now.
I have always taken enzymes. I am a touch on the "squishing side" around the midsection and...
I don't "work" from home but I am housebound.
I have a super touchy immune system so I stay at home as much as I can. I keep VERY busy. I homeschool my son, quilt, hand stitch, knit and cook/bake. I am going to be doing some work for my Hubby's business after the first of the year.
She is moving it a little each time. PICC insertions site is in a weird location.
Yes, the burning is 24 hours after dressing changes. Drives me crazy. I hate dressing changes. The round disk seems to be spitting out medicine for 2 days after the dressing change. Feels much better day 3 thru...
I have had a PICC for two months now. I have had some nerve pain... an Advil will fix it.
I had to have two dressing changes this week due to the holidays and rescheduling my home health visit appointments. After this changed the bandage on Wednesday the skin under the wings of the PICC (the...
I talked with my endocrinologist. She thinks it may have been the fact that I deviated from my normal breakfast food. I have gone back to the morning burritos and late morning granola bar. So far much better!! I also now think it might be my meds. I think they may be lowering my sugars 2-3...
Let me start by saying NO I don't take insulin. I want to avoid insulin as long as I can.
I have been having random low blood sugars. Today they tanked out at 59. That is the lowest I have EVER gone. It took me forever to get them back up (2 + hour to be more accurate).
I when I deviate...
Yesterday I started Minocycline. Within about 15 minutes I was jittery and felt like my heart was racing. I took my second dose at bedtime and shorting after that I started feeling super weird. I could not be still and when I forced myself I felt like I was on a high dose of caffeine or...
The past few days my scalp itches something horrible. I am on MAC drugs and Amikacin. There seems to be no bumps on my scalp. Spots itch so bad I am afraid I will scratch my scalp raw. It is only certain parts of my head. I am drinking tons of water.
Yeast infection?? Or just old...
I give people a silly look and act a smidge dramatic if I get a person staring at me. Might as well give them something fun to watch. :)
I get lots of stares when I wear my mask at the grocery store or clothes shopping. I usually just stare back and they look away all embarrassed. Yep, you...
From what I was told it depends on the drug. I am on amikacin and they can take my peak and trough right from my PICC line. Sweet deal. No pokes or prodding. I did Tobra a few years ago and they HAD to do sticks. I was told that Tobra stays in the line and corrupts the blood draw.
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