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Thank you to everyone for your advice. Deb, you are right. This infection is not easy. I have been sleeping alot lately. I sit in the chair and I fall asleep. I took a short nap last night before bed... even if it was for only 20 minutes was wonderful (I had to get up and put Kiddo to...

Julie7, I don't have friends near me to help with that. They all disappeared a couple of years ago when I couldn't participating in their mommy adventures. As soon as I became "unfun" and got tired too often they wanted nothing to do with me.

I will consider going back to the hospital if my fatigue doesn't get better. No nagging here. I assure you that!!!

They bothered me with trivial things even while I was in the hospital. They couldn't deal with the littlest issues without calling me or texting me. I was ready to throw my phone from my 9th floor hospital room window. My mom called with household issues that I needed to solve for her and my...

I was diagnosed with MAC and Norcardia... I am not able to keep up with life due to the intense IV treatment and fatigue. I admitted to friends and family that I need help... help caring for my son and keeping up with my house. I have gotten pretty much NOTHING. Instead of helping me, my...

I just had my PICC dressing changed this morning. Shortly after the nurse left the site started to sting. The nurse removed a blood scab near the insertion site (stuck to the skin and and the PICC) . It hurt when she removed it and it seems to hurt in the same location now that it is gone...

A few days into my hospitalization I discovered I was allergic to the mesh PICC covers. My arm got all red and insanely itchy. It even burns in spots on my arm when I try to wear it. I have a super long extension on my PICC so that I can access it. We have tried all sorts of homemade covers...

I am on Doripenem. I have to infuse every 8 hour and it has to infuse for 4 hours. Kinda of a pain but it only will last for 3 weeks.

This is the first time at home that I will have to IV drugs during the night. Hook up at 10pm and drug will be done running at 2am. Do you set an alarm and flush as soon as the drug is done?? What happens if I sleep through the alarm with the medicine ball still attached?? Bad things...

I just found out I cultured Nocardia. I am starting doripenem this morning. Anyone else culture this??? Anyone have successful treatment??? How long did you have to treat it until no longer cultured it???

No one else????

I am starting my MAC treatment on Monday. Those of you who have done MAC drugs... what were your side effects?? Were they easy to manage?? Lose your vision... diminished vision?? Hives, rash, red skin?? How about joint pain or muscle pain??? What drugs cause the side effects?? I have...

Once in a while my husband will rub my back to ease my sore muscles from coughing. When he isn't available I will do a warm bath or a warm heating pad on my back and shoulders. Sometimes it gets to be too much and I will take 1-2 Advil to help with the discomfort. Doesn't ease the cough but...

those recipes sound yummy!! Thank you!!

All of the food ideas look wonderful. I am going to start a shopping list. A huge shopping list!!! BikerEd, I will try not to freak out!! :) I think I need to get a crockpot. LouLou, the "Take them a meal" sounds dreamy. We don't have family that live near us and we don't have friends. In...

Some quick and easy recipes would be great!! I have been teaching my son how to to chores since he was really little. He can do laundry if I direct him and he makes a wonderful can of soup and crackers. My son has ADHD and has a tendency to be unsafe. I can lay down for a nap as long as he...

I am going in less than two week from now to have a PICC put in and get med levels just right. It's the coming home and finding a good routine is what is freaking me out. I am a stay at home mom with a homeschooling pre-teen and I have a husband who works longs hours. I usually stay in...

Here is the reason we let things get so far.....I had a touch of scaring (they thought was normal considering my age) so we waited a year and a couple months to do a CT scan. I have had a rough spring and summer with lots of coughing. Did cardiac/pulmonary rehab and my lung function numbers...

I had very little lung damage until now. The cavity snuck up on us. Yeah the orange fluids coming from my body sounds a bit bizarre. I am starting Imipenem in two weeks. Not sure what orals yet. Yeah I am not looking forward to the side effects but I have an excellent care team that I...

I just got back from National Jewish. I have mycobacteria avium (have had it for a few years). Well.... we have no other choice than to treat it. I have a tennis ball sized cavity in my lung from it. This is sudden. My last CT scan didn't show this much damage. Yikes!! On top of it had...