Cystic Fibrosis Forum (EXP)

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  1. M

    Has anyone done the ISIS trial?

    I am so glad to hear she is doing better. Thank the Lord for medicines. Hopefully this hypertonic saline will work for our daughter's it is so exciting yet scary. It is hard to use your child as a guinea pig. I am just waiting to hear back from her Dr. because I wanted to know how they felt...
  2. M

    Has anyone done the ISIS trial?

    I am so glad to hear she is doing better. Thank the Lord for medicines. Hopefully this hypertonic saline will work for our daughter's it is so exciting yet scary. It is hard to use your child as a guinea pig. I am just waiting to hear back from her Dr. because I wanted to know how they felt...
  3. M

    Has anyone done the ISIS trial?

    Does your dd have lung issues?
  4. M

    Has anyone done the ISIS trial?

    Does your dd have lung issues?
  5. M

    Has anyone done the ISIS trial?

    Does your dd have lung issues?
  6. M

    Has anyone done the ISIS trial?

    Does your dd have lung issues?
  7. M

    Has anyone done the ISIS trial?

    Does your dd have lung issues?
  8. M

    Has anyone done the ISIS trial?

    I got an emai from oour CF Center social worker with a link to a clinical trial in infants where they inhale hypertonic saline twice a day for about a year. Has anyone done this? My daughters lungs aren't affected right now but we want to do anything and everything we can to prevent lung...
  9. M

    Has anyone done the ISIS trial?

    I got an emai from oour CF Center social worker with a link to a clinical trial in infants where they inhale hypertonic saline twice a day for about a year. Has anyone done this? My daughters lungs aren't affected right now but we want to do anything and everything we can to prevent lung...
  10. M

    Has anyone done the ISIS trial?

    I got an emai from oour CF Center social worker with a link to a clinical trial in infants where they inhale hypertonic saline twice a day for about a year. Has anyone done this? My daughters lungs aren't affected right now but we want to do anything and everything we can to prevent lung...
  11. M

    Has anyone done the ISIS trial?

    I got an emai from oour CF Center social worker with a link to a clinical trial in infants where they inhale hypertonic saline twice a day for about a year. Has anyone done this? My daughters lungs aren't affected right now but we want to do anything and everything we can to prevent lung...
  12. M

    Has anyone done the ISIS trial?

    I got an emai from oour CF Center social worker with a link to a clinical trial in infants where they inhale hypertonic saline twice a day for about a year. Has anyone done this? My daughters lungs aren't affected right now but we want to do anything and everything we can to prevent lung...
  13. M

    Anyone switch clinics before?

    I just recently switched my dd to a clinic that is three hours away, but it is so worth it. We see Dr. Bauer at the Children's Hospital in Little Rock, AR. He is awesome, has an excellent nurse named Sonya, and a dietician who is always quick to call back and very knowledgable. We are so glad...
  14. M

    Anyone switch clinics before?

    I just recently switched my dd to a clinic that is three hours away, but it is so worth it. We see Dr. Bauer at the Children's Hospital in Little Rock, AR. He is awesome, has an excellent nurse named Sonya, and a dietician who is always quick to call back and very knowledgable. We are so glad...
  15. M

    Anyone switch clinics before?

    I just recently switched my dd to a clinic that is three hours away, but it is so worth it. We see Dr. Bauer at the Children's Hospital in Little Rock, AR. He is awesome, has an excellent nurse named Sonya, and a dietician who is always quick to call back and very knowledgable. We are so glad...
  16. M

    Anyone switch clinics before?

    I just recently switched my dd to a clinic that is three hours away, but it is so worth it. We see Dr. Bauer at the Children's Hospital in Little Rock, AR. He is awesome, has an excellent nurse named Sonya, and a dietician who is always quick to call back and very knowledgable. We are so glad...
  17. M

    Anyone switch clinics before?

    I just recently switched my dd to a clinic that is three hours away, but it is so worth it. We see Dr. Bauer at the Children's Hospital in Little Rock, AR. He is awesome, has an excellent nurse named Sonya, and a dietician who is always quick to call back and very knowledgable. <br />We are so...
  18. M

    Paige Update

    If she continues having tummy trouble, you might look at switching her to a lactose free formula. We struggled for months with my daughter vomitting before we finally figured out that she was lactose intolerant. It is very common in cystic fibrosis and people who have had bowel surgeries. The...
  19. M

    Paige Update

    If she continues having tummy trouble, you might look at switching her to a lactose free formula. We struggled for months with my daughter vomitting before we finally figured out that she was lactose intolerant. It is very common in cystic fibrosis and people who have had bowel surgeries. The...
  20. M

    Paige Update

    If she continues having tummy trouble, you might look at switching her to a lactose free formula. We struggled for months with my daughter vomitting before we finally figured out that she was lactose intolerant. It is very common in cystic fibrosis and people who have had bowel surgeries. The...
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