Cystic Fibrosis Forum (EXP)

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  1. M

    Paige Update

    If she continues having tummy trouble, you might look at switching her to a lactose free formula. We struggled for months with my daughter vomitting before we finally figured out that she was lactose intolerant. It is very common in cystic fibrosis and people who have had bowel surgeries. The...
  2. M

    Paige Update

    If she continues having tummy trouble, you might look at switching her to a lactose free formula. We struggled for months with my daughter vomitting before we finally figured out that she was lactose intolerant. It is very common in cystic fibrosis and people who have had bowel surgeries. The...
  3. M

    About G-tubes

    I have to agree with Susan. My daughter Mariah is eight months old now and weighs 17 lbs 5 oz. She has flourished with the g-tube and I just couldn't be more thankful for it. I just wish they made different colored ones. I was very resistant to the thought of it when she was in the NICU, but...
  4. M

    About G-tubes

    I have to agree with Susan. My daughter Mariah is eight months old now and weighs 17 lbs 5 oz. She has flourished with the g-tube and I just couldn't be more thankful for it. I just wish they made different colored ones. I was very resistant to the thought of it when she was in the NICU, but...
  5. M

    About G-tubes

    I have to agree with Susan. My daughter Mariah is eight months old now and weighs 17 lbs 5 oz. She has flourished with the g-tube and I just couldn't be more thankful for it. I just wish they made different colored ones. I was very resistant to the thought of it when she was in the NICU, but...
  6. M

    About G-tubes

    I have to agree with Susan. My daughter Mariah is eight months old now and weighs 17 lbs 5 oz. She has flourished with the g-tube and I just couldn't be more thankful for it. I just wish they made different colored ones. I was very resistant to the thought of it when she was in the NICU, but...
  7. M

    About G-tubes

    I have to agree with Susan. My daughter Mariah is eight months old now and weighs 17 lbs 5 oz. She has flourished with the g-tube and I just couldn't be more thankful for it. I just wish they made different colored ones. I was very resistant to the thought of it when she was in the NICU, but...
  8. M

    CREON OR ULTRASE?

    I don't know much about Ultrase, but my daughter is on Creon 5 and she has done fine with it as far as gaining weight and no adverse reactions. She is almost always on the max dose but I am not sure if this is just because of her insufficiency or mutation. I am interseted too if maybe Ultrase is...
  9. M

    CREON OR ULTRASE?

    I don't know much about Ultrase, but my daughter is on Creon 5 and she has done fine with it as far as gaining weight and no adverse reactions. She is almost always on the max dose but I am not sure if this is just because of her insufficiency or mutation. I am interseted too if maybe Ultrase is...
  10. M

    CREON OR ULTRASE?

    I don't know much about Ultrase, but my daughter is on Creon 5 and she has done fine with it as far as gaining weight and no adverse reactions. She is almost always on the max dose but I am not sure if this is just because of her insufficiency or mutation. I am interseted too if maybe Ultrase is...
  11. M

    CREON OR ULTRASE?

    I don't know much about Ultrase, but my daughter is on Creon 5 and she has done fine with it as far as gaining weight and no adverse reactions. She is almost always on the max dose but I am not sure if this is just because of her insufficiency or mutation. I am interseted too if maybe Ultrase is...
  12. M

    CREON OR ULTRASE?

    I don't know much about Ultrase, but my daughter is on Creon 5 and she has done fine with it as far as gaining weight and no adverse reactions. She is almost always on the max dose but I am not sure if this is just because of her insufficiency or mutation. I am interseted too if maybe Ultrase is...
  13. M

    Switching from formula to whole milk

    My daughters nutrionist suggested switching to a drink like pediasure when she is at least 18 pounds because of the amount of protein. It is concentrated to thirty calorie already. I am going to use an organic brand called pediasmart because it uses coconut oil as a fat source which I think is...
  14. M

    Switching from formula to whole milk

    My daughters nutrionist suggested switching to a drink like pediasure when she is at least 18 pounds because of the amount of protein. It is concentrated to thirty calorie already. I am going to use an organic brand called pediasmart because it uses coconut oil as a fat source which I think is...
  15. M

    Switching from formula to whole milk

    My daughters nutrionist suggested switching to a drink like pediasure when she is at least 18 pounds because of the amount of protein. It is concentrated to thirty calorie already. I am going to use an organic brand called pediasmart because it uses coconut oil as a fat source which I think is...
  16. M

    Switching from formula to whole milk

    My daughters nutrionist suggested switching to a drink like pediasure when she is at least 18 pounds because of the amount of protein. It is concentrated to thirty calorie already. I am going to use an organic brand called pediasmart because it uses coconut oil as a fat source which I think is...
  17. M

    Switching from formula to whole milk

    My daughters nutrionist suggested switching to a drink like pediasure when she is at least 18 pounds because of the amount of protein. It is concentrated to thirty calorie already. I am going to use an organic brand called pediasmart because it uses coconut oil as a fat source which I think is...
  18. M

    Two Diagnosed

    First of all I just wanted to welcome you to this forum and tell you how glad I am that you are reaching out for support. I wish I had of sooner, especially while we were in the NICU with my daughter. This will not be your life forever. There is a break from the hospital scene. I can't promise...
  19. M

    Two Diagnosed

    First of all I just wanted to welcome you to this forum and tell you how glad I am that you are reaching out for support. I wish I had of sooner, especially while we were in the NICU with my daughter. This will not be your life forever. There is a break from the hospital scene. I can't promise...
  20. M

    Two Diagnosed

    First of all I just wanted to welcome you to this forum and tell you how glad I am that you are reaching out for support. I wish I had of sooner, especially while we were in the NICU with my daughter. This will not be your life forever. There is a break from the hospital scene. I can't promise...
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