Cystic Fibrosis Forum (EXP)

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  1. J

    times a day you do pulmozyme

    I think twice a day Pulmozyme would make me feel better, but my doctor acts like insurance doesn't pay, etc. Then, I find out from the rt that other people do it twice a day. What kind of situation would make the insurance pay?
  2. J

    times a day you do pulmozyme

    I think twice a day Pulmozyme would make me feel better, but my doctor acts like insurance doesn't pay, etc. Then, I find out from the rt that other people do it twice a day. What kind of situation would make the insurance pay?
  3. J

    Handi-cap parking spots for people with CF

    I would like one, but not because walking myself is difficult. Just when I am carrying stuff--like groceries, my 20-month-old. I am not even sure my doctor would write me a note for that. I do tend to dread running errands, with far away parking. And even sometimes put off getting...
  4. J

    Handi-cap parking spots for people with CF

    I would like one, but not because walking myself is difficult. Just when I am carrying stuff--like groceries, my 20-month-old. I am not even sure my doctor would write me a note for that. I do tend to dread running errands, with far away parking. And even sometimes put off getting...
  5. J

    Handi-cap parking spots for people with CF

    I would like one, but not because walking myself is difficult. Just when I am carrying stuff--like groceries, my 20-month-old. I am not even sure my doctor would write me a note for that. I do tend to dread running errands, with far away parking. And even sometimes put off getting...
  6. J

    flu mist

    Hey Tammy, Before accepting the mist, you have to fill out a form (at least I think it's more than just my hospital's form) and your child has to "pass." He wouldn't have passed due to a line on the form that talks about respiratory issues. Weird that a nurse administering the mist didn't know...
  7. J

    flu mist

    Hey Tammy, Before accepting the mist, you have to fill out a form (at least I think it's more than just my hospital's form) and your child has to "pass." He wouldn't have passed due to a line on the form that talks about respiratory issues. Weird that a nurse administering the mist didn't know...
  8. J

    flu mist

    Hey Tammy, <br />Before accepting the mist, you have to fill out a form (at least I think it's more than just my hospital's form) and your child has to "pass." He wouldn't have passed due to a line on the form that talks about respiratory issues. Weird that a nurse administering the mist...
  9. J

    Cayston, total treatment takes a lot of time

    I am curious. Would you be taking HTS/Pulmozyme and Albuterol if not for Cayston? Personally, I would be doing Pulmozyme and Albuterol regardless, just to be able to breathe and feel good, so I don't feel that I am spending extra time on these treatments. If you were not, you must be in very...
  10. J

    Cayston, total treatment takes a lot of time

    I am curious. Would you be taking HTS/Pulmozyme and Albuterol if not for Cayston? Personally, I would be doing Pulmozyme and Albuterol regardless, just to be able to breathe and feel good, so I don't feel that I am spending extra time on these treatments. If you were not, you must be in very...
  11. J

    Cayston, total treatment takes a lot of time

    I am curious. Would you be taking HTS/Pulmozyme and Albuterol if not for Cayston? Personally, I would be doing Pulmozyme and Albuterol regardless, just to be able to breathe and feel good, so I don't feel that I am spending extra time on these treatments. If you were not, you must be in very...
  12. J

    Using Altera for other meds

    Is anyone using their Altera for Pulmozyme or Albuterol/Xopenex? How long does it take? Do you feel that it/they are having as much of an impact as your regular nebulizer? Any side effects?
  13. J

    Using Altera for other meds

    Is anyone using their Altera for Pulmozyme or Albuterol/Xopenex? How long does it take? Do you feel that it/they are having as much of an impact as your regular nebulizer? Any side effects?
  14. J

    Using Altera for other meds

    Is anyone using their Altera for Pulmozyme or Albuterol/Xopenex? How long does it take? Do you feel that it/they are having as much of an impact as your regular nebulizer? Any side effects?
  15. J

    Those on Cayston

    I use Xopenex before my am and night doses and my albuterol inhaler before my afternoon dose.
  16. J

    Those on Cayston

    I use Xopenex before my am and night doses and my albuterol inhaler before my afternoon dose.
  17. J

    Those on Cayston

    I use Xopenex before my am and night doses and my albuterol inhaler before my afternoon dose.
  18. J

    flu mist

    I'm just wondering if CF docs are giving any advice about the flu mist as opposed to the shot. I know as a CFer I got the shot, but I'm wondering if my older son can get the flu mist without having any ramifications for me. Does anyone know?
  19. J

    flu mist

    I'm just wondering if CF docs are giving any advice about the flu mist as opposed to the shot. I know as a CFer I got the shot, but I'm wondering if my older son can get the flu mist without having any ramifications for me. Does anyone know?
  20. J

    flu mist

    I'm just wondering if CF docs are giving any advice about the flu mist as opposed to the shot. I know as a CFer I got the shot, but I'm wondering if my older son can get the flu mist without having any ramifications for me. Does anyone know?
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