Cystic Fibrosis Forum (EXP)

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  1. J

    When are you getting Flu shots?

    According to the CDC, the flu vaccination protects for about a year. In other words, why wait? I got mine at CF clinic on Thursday. <img src="i/expressions/face-icon-small-smile.gif" border="0">
  2. J

    Flu Shots

    According to the CDC, the vaccination lasts for about a year. In other words, why wait? I just got mine at CF clinic. <img src="i/expressions/face-icon-small-smile.gif" border="0">
  3. J

    Flu Shots

    According to the CDC, the vaccination lasts for about a year. In other words, why wait? I just got mine at CF clinic. <img src="i/expressions/face-icon-small-smile.gif" border="0">
  4. J

    Flu Shots

    According to the CDC, the vaccination lasts for about a year. In other words, why wait? I just got mine at CF clinic. <img src="i/expressions/face-icon-small-smile.gif" border="0">
  5. J

    disappointed with CF pharmacy

    Well, I finally got my meds today and I am just gonna count my blessings and move on. <img src="i/expressions/face-icon-small-smile.gif" border="0">
  6. J

    disappointed with CF pharmacy

    Well, I finally got my meds today and I am just gonna count my blessings and move on. <img src="i/expressions/face-icon-small-smile.gif" border="0">
  7. J

    disappointed with CF pharmacy

    Well, I finally got my meds today and I am just gonna count my blessings and move on. <img src="i/expressions/face-icon-small-smile.gif" border="0">
  8. J

    anyone on SSDI

    I love Autumn's idea of taking a leave of absence if you can afford it. I also have to say that I try never to make a big decision when I am on IVs. It is so difficult to keep up with work and IVs and to throw school in there, too. Wow! Take a break while you are on IVs and maybe for a few...
  9. J

    anyone on SSDI

    I love Autumn's idea of taking a leave of absence if you can afford it. I also have to say that I try never to make a big decision when I am on IVs. It is so difficult to keep up with work and IVs and to throw school in there, too. Wow! Take a break while you are on IVs and maybe for a few...
  10. J

    anyone on SSDI

    I love Autumn's idea of taking a leave of absence if you can afford it. I also have to say that I try never to make a big decision when I am on IVs. It is so difficult to keep up with work and IVs and to throw school in there, too. Wow! Take a break while you are on IVs and maybe for a few...
  11. J

    disappointed with CF pharmacy

    Today, I called the pharmacy 4 times and left several messages for an elusive "representative" who was the "only one who could tell me why my order had not been shipped." I was livid. Finally, after calling from 5 am my time until 1:40 pm my time (I live in AK.), I was able to talk to her and...
  12. J

    disappointed with CF pharmacy

    Today, I called the pharmacy 4 times and left several messages for an elusive "representative" who was the "only one who could tell me why my order had not been shipped." I was livid. Finally, after calling from 5 am my time until 1:40 pm my time (I live in AK.), I was able to talk to her and...
  13. J

    disappointed with CF pharmacy

    Today, I called the pharmacy 4 times and left several messages for an elusive "representative" who was the "only one who could tell me why my order had not been shipped." I was livid. Finally, after calling from 5 am my time until 1:40 pm my time (I live in AK.), I was able to talk to her and...
  14. J

    disappointed with CF pharmacy

    Thanks for all your input. It sounds like I might have to switch to Foundation Care. I plan to call first thing Monday and get the tracking number. Does anyone know who they ship through? FedEx?? Liza, does someone have to be there to sign? Because no one is at my house until 3 pm. Also...
  15. J

    disappointed with CF pharmacy

    Thanks for all your input. It sounds like I might have to switch to Foundation Care. I plan to call first thing Monday and get the tracking number. Does anyone know who they ship through? FedEx?? Liza, does someone have to be there to sign? Because no one is at my house until 3 pm. Also...
  16. J

    disappointed with CF pharmacy

    Thanks for all your input. It sounds like I might have to switch to Foundation Care. I plan to call first thing Monday and get the tracking number. Does anyone know who they ship through? FedEx?? <br /> <br />Liza, does someone have to be there to sign? Because no one is at my house until 3...
  17. J

    disappointed with CF pharmacy

    I had heard such good things about the CF pharmacy and getting drugs right away, so when they told me that my Cayston was being sent was being shipped on Tuesday and would arrive Thursday, I was very happy. Well, it's Friday and my Cayston still hasn't showed up. I probably wouldn't be as...
  18. J

    disappointed with CF pharmacy

    I had heard such good things about the CF pharmacy and getting drugs right away, so when they told me that my Cayston was being sent was being shipped on Tuesday and would arrive Thursday, I was very happy. Well, it's Friday and my Cayston still hasn't showed up. I probably wouldn't be as...
  19. J

    disappointed with CF pharmacy

    I had heard such good things about the CF pharmacy and getting drugs right away, so when they told me that my Cayston was being sent was being shipped on Tuesday and would arrive Thursday, I was very happy. Well, it's Friday and my Cayston still hasn't showed up. I probably wouldn't be as...
  20. J

    Will my insurance pay for Cayston?

    When I took it previously as part of the drug study, I had no side effects and it was much more tolerable than TOBI. It eliminated my PA for over a year. I will also tell you that my experience once the paper work has been filled out is a 9 day wait to go through the insurance, get the...
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