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Hi Steve, I'm still waiting to hear about the appeal that was submitted to insurance but hoping that it gets approved quickly so we can have my daughter's blood sent to Ambry. But I was just wondering out of curiousity, does Ambry receive many blood samples that get the full gene sequencing...

Hi Steve, I am currently in the process of appealing to insurance to have them cover the full Ambry Test that a pulmonologist ordered for my daughter. Assuming that the appeal gets approved, do I need to have the test materials in hand when I take her to the lab for the blood draw or will they...

I've posted here a few times and am in the process of appealing to insurance to have them cover the full genetic Ambry test for my 1 year old daughter. When my DD pediatrician ordered the first sweat test 8 months ago and it came back at 34, I told my family (parents) and they said "great, she...

I've posted here a few times and am in the process of appealing to insurance to have them cover the full genetic Ambry test for my 1 year old daughter. When my DD pediatrician ordered the first sweat test 8 months ago and it came back at 34, I told my family (parents) and they said "great, she...

I've posted here a few times and am in the process of appealing to insurance to have them cover the full genetic Ambry test for my 1 year old daughter. When my DD pediatrician ordered the first sweat test 8 months ago and it came back at 34, I told my family (parents) and they said "great, she...

I've posted here a few times and am in the process of appealing to insurance to have them cover the full genetic Ambry test for my 1 year old daughter. When my DD pediatrician ordered the first sweat test 8 months ago and it came back at 34, I told my family (parents) and they said "great, she...

I've posted here a few times and am in the process of appealing to insurance to have them cover the full genetic Ambry test for my 1 year old daughter. When my DD pediatrician ordered the first sweat test 8 months ago and it came back at 34, I told my family (parents) and they said "great, she...

I know there are a lot of people on these boards who had sweat tests below 40 but does anyone know how common that is among all CF patients? Is it 10%, 5%. Just trying to get an idea of how likely it is that she has CF with a sweat test below 40 and a negative CF genetic screen. I do...

I know there are a lot of people on these boards who had sweat tests below 40 but does anyone know how common that is among all CF patients? Is it 10%, 5%. Just trying to get an idea of how likely it is that she has CF with a sweat test below 40 and a negative CF genetic screen. I do...

I know there are a lot of people on these boards who had sweat tests below 40 but does anyone know how common that is among all CF patients? Is it 10%, 5%. Just trying to get an idea of how likely it is that she has CF with a sweat test below 40 and a negative CF genetic screen. I do...

I know there are a lot of people on these boards who had sweat tests below 40 but does anyone know how common that is among all CF patients? Is it 10%, 5%. Just trying to get an idea of how likely it is that she has CF with a sweat test below 40 and a negative CF genetic screen. I do...

I know there are a lot of people on these boards who had sweat tests below 40 but does anyone know how common that is among all CF patients? Is it 10%, 5%. Just trying to get an idea of how likely it is that she has CF with a sweat test below 40 and a negative CF genetic screen. I do...

I just wanted to update everyone. I contacted our local CF center and spoke to a nurse telling her my concerns and questions. She took this to the Pulmonologist on call and he suggested I bring her in to see him in his office. So I'm going to call tomorrow for an appointment. The nurse did...

I just wanted to update everyone. I contacted our local CF center and spoke to a nurse telling her my concerns and questions. She took this to the Pulmonologist on call and he suggested I bring her in to see him in his office. So I'm going to call tomorrow for an appointment. The nurse did...

I just wanted to update everyone. I contacted our local CF center and spoke to a nurse telling her my concerns and questions. She took this to the Pulmonologist on call and he suggested I bring her in to see him in his office. So I'm going to call tomorrow for an appointment. The nurse did...

I just wanted to update everyone. I contacted our local CF center and spoke to a nurse telling her my concerns and questions. She took this to the Pulmonologist on call and he suggested I bring her in to see him in his office. So I'm going to call tomorrow for an appointment. The nurse did...

I just wanted to update everyone. I contacted our local CF center and spoke to a nurse telling her my concerns and questions. She took this to the Pulmonologist on call and he suggested I bring her in to see him in his office. So I'm going to call tomorrow for an appointment. The nurse did...

Thank you all for your replies. I'm going to call the CF center here in town and see what they think. I'll let you know how it goes. Oh, to answer your question about why she was sweat tested in the first place. From 3-4 months of age she had failure to thrive. The GI Dr ordered an upper GI...

Thank you all for your replies. I'm going to call the CF center here in town and see what they think. I'll let you know how it goes. Oh, to answer your question about why she was sweat tested in the first place. From 3-4 months of age she had failure to thrive. The GI Dr ordered an upper GI...

Thank you all for your replies. I'm going to call the CF center here in town and see what they think. I'll let you know how it goes. Oh, to answer your question about why she was sweat tested in the first place. From 3-4 months of age she had failure to thrive. The GI Dr ordered an upper GI...