Cystic Fibrosis Forum (EXP)

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  1. K

    Who are you in a nut shell

    My name is Kyla I'm 27 I'm Catholic I was dx at 2 I'm 5'6'' and about 130lbs (<--thank you J-tube) FEV1 about 35% I have CFRD, cirrhosis of the liver, sinusitis, 2L oxygen full time I have a Masters in Deaf Education and was teaching until this past January I live in AZ but am moving back to...
  2. K

    Tips and Tricks

    Hey! I thought it would be interesting and beneficial to post up some different tips/tricks everyone uses related more to organizing all things CF related. For example: I have one of those giant rubbermaid containers with a bunch of drawers in different sizes to put most of my medical supplies...
  3. K

    Tips and Tricks

    Hey! I thought it would be interesting and beneficial to post up some different tips/tricks everyone uses related more to organizing all things CF related. For example: I have one of those giant rubbermaid containers with a bunch of drawers in different sizes to put most of my medical supplies...
  4. K

    Can't quit coughing

    Pain medicine is another option. My docs (esp when in the hospital) are not fans of letting me have suppressants. (That being said, I use hydromet cough syrup at home when exhaustion from not sleeping kicks in) They prefer to prescribe pain meds to take the edge off so I keep coughing stuff up...
  5. K

    Can't quit coughing

    Pain medicine is another option. My docs (esp when in the hospital) are not fans of letting me have suppressants. (That being said, I use hydromet cough syrup at home when exhaustion from not sleeping kicks in) They prefer to prescribe pain meds to take the edge off so I keep coughing stuff up...
  6. K

    Is it just me...or

    I agree, this past year has been really rough on me too. I been on at least three or four iv bouts for 4-6 weeks twice culturing one bug resistant to everything. Always a fun time. I'm still feeling like I'm not actually better, just as "better as I'm going to get". Hopefully with the warmer...
  7. K

    Is it just me...or

    I agree, this past year has been really rough on me too. I been on at least three or four iv bouts for 4-6 weeks twice culturing one bug resistant to everything. Always a fun time. I'm still feeling like I'm not actually better, just as "better as I'm going to get". Hopefully with the warmer...
  8. K

    Is it just me...or

    I agree, this past year has been really rough on me too. I been on at least three or four iv bouts for 4-6 weeks twice culturing one bug resistant to everything. Always a fun time. I'm still feeling like I'm not actually better, just as "better as I'm going to get". Hopefully with the warmer...
  9. K

    Is it just me...or

    I agree, this past year has been really rough on me too. I been on at least three or four iv bouts for 4-6 weeks twice culturing one bug resistant to everything. Always a fun time. I'm still feeling like I'm not actually better, just as "better as I'm going to get". Hopefully with the warmer...
  10. K

    Is it just me...or

    I agree, this past year has been really rough on me too. I been on at least three or four iv bouts for 4-6 weeks twice culturing one bug resistant to everything. Always a fun time. I'm still feeling like I'm not actually better, just as "better as I'm going to get". Hopefully with the warmer...
  11. K

    looking for job

    Employers are not allowed to refuse to hire you based on the CF, however if you tell them while interviewing that will be near impossible to prove. I would wait until after you have the job and then let your employer know if you think the CF is going to affect your work. Then when you need to...
  12. K

    looking for job

    Employers are not allowed to refuse to hire you based on the CF, however if you tell them while interviewing that will be near impossible to prove. I would wait until after you have the job and then let your employer know if you think the CF is going to affect your work. Then when you need to...
  13. K

    looking for job

    Employers are not allowed to refuse to hire you based on the CF, however if you tell them while interviewing that will be near impossible to prove. I would wait until after you have the job and then let your employer know if you think the CF is going to affect your work. Then when you need to...
  14. K

    looking for job

    Employers are not allowed to refuse to hire you based on the CF, however if you tell them while interviewing that will be near impossible to prove. I would wait until after you have the job and then let your employer know if you think the CF is going to affect your work. Then when you need to...
  15. K

    looking for job

    Employers are not allowed to refuse to hire you based on the CF, however if you tell them while interviewing that will be near impossible to prove. I would wait until after you have the job and then let your employer know if you think the CF is going to affect your work. Then when you need to...
  16. K

    Exercise and Eating??

    I definitely like the idea of finding a class or something. I may have to look into that and see what I can find. I really enjoy dancing and was doing ballroom classes for a while until I moved, so maybe I can find that here. That's nice because just when I think I can't do anymore the song ends...
  17. K

    Exercise and Eating??

    I definitely like the idea of finding a class or something. I may have to look into that and see what I can find. I really enjoy dancing and was doing ballroom classes for a while until I moved, so maybe I can find that here. That's nice because just when I think I can't do anymore the song ends...
  18. K

    Exercise and Eating??

    I definitely like the idea of finding a class or something. I may have to look into that and see what I can find. I really enjoy dancing and was doing ballroom classes for a while until I moved, so maybe I can find that here. That's nice because just when I think I can't do anymore the song ends...
  19. K

    Exercise and Eating??

    I definitely like the idea of finding a class or something. I may have to look into that and see what I can find. I really enjoy dancing and was doing ballroom classes for a while until I moved, so maybe I can find that here. That's nice because just when I think I can't do anymore the song ends...
  20. K

    Exercise and Eating??

    I definitely like the idea of finding a class or something. I may have to look into that and see what I can find. I really enjoy dancing and was doing ballroom classes for a while until I moved, so maybe I can find that here. That's nice because just when I think I can't do anymore the song ends...
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