Cystic Fibrosis Forum (EXP)

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    Surprising Results with Essential Oils! Give it a Go!

    Glad my post is of help! To HelicopterMom - I originally used hypertonic saline which was great for really inducing a nice productive cough when using eucalyptus together with it. But then I realized that I had a box of unused normal saline syringes (left over from my home-IVs in December) and...
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    Surprising Results with Essential Oils! Give it a Go!

    Hello all. I am going to write a more detailed post on my website soon, but I have been getting great results from nebulizing several oils over the last seven weeks. Just for context, I have a very heavy MRSA burden that responds to very little except vanco. I get chronic fevers and tons of...
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    Gluten free? Anybody know anything?

    There are way to be gluten free and still bake. But I understand if there is a strong emotional attachment there. If you have absolutely no digestive issues at all (like zero, absolute perfect digestion, albeit with enzymes) then I'd say it's not super important to go gluten free. Gluten is...
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    Gluten free? Anybody know anything?

    I have been eating gluten free for several years and Paleo for over a year. It has improved my life immensely and I am not a "celiac" though I do have a mild gluten sensitivity. I could go on and on about the science behind gluten sensitivities and why it is CRITICAL for all CFers to be off...
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    Has Anyone Tried Whole30 Diet to Fight Inflammation (not to lose weight)

    Hey there. I have been eating Paleo/GAPS for more than a year now with great results. My website is dedicated to the science and research behind how eating a whole-foods Paleo-esque diet is critical for CFers. Don't listen to the docs, they know close to nothing about nutrition. I just wrote a...
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    Advice / Suggestions please - Chronic GI Symptoms - Docs don't know what's going on

    Glad to be of help! Please let me know how it goes! Also, another thing that works very well for me in keeping me "regular" in the morning is a mug of chicory tea after I wake up. It usually helps me go within about 30 min, like magic. I add hemp milk and coconut oil to it plus a little stevia...
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    Crazy tired and caffeine doesn't help

    Pharmaceuticals are a band-aid on a gaping wound with your symptoms. They will not heal you, only the natural way can heal. Adrenal fatigue is a result of chronic infection and/or chronic stress, and your meds may have contributed to the stress your body was under. I hope you can find those...
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    Advice / Suggestions please - Chronic GI Symptoms - Docs don't know what's going on

    Thanks Jono. Ok, I have a hypothesis for you, just as a thought experiment (not diagnosis, since I'm not a "doctor"). It would seem that your symptoms indicate a severe case of gut dysbiosis. What you have said in multiple post seems to indicate you do not have any structural or tissue damage to...
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    Advice / Suggestions please - Chronic GI Symptoms - Docs don't know what's going on

    More questions: 1)Have you ever been tested for C.difficile? 2) Did you take any probiotics after your April 2012 stay in the hospital or eat any fermented foods (yogurt/saurkraut/kimchi, etc.) to try to restore gut flora? 3) How long after the March 2012 hospital stay did you start to...
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    Advice / Suggestions please - Chronic GI Symptoms - Docs don't know what's going on

    Hi Jono. I am very sorry to hear your symptoms have not improved. I have read much of this thread and from what I can gather, your symptoms may point towards an extreme case of gut dysbiosis (imbalance in the gut flora). Of course, you probably already know this or have assumed this. A huge...
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    Crazy tired and caffeine doesn't help

    Yay, so happy you at least know what the problem is. But I did a brief search on provigil... holy crap girl, that is scary. If I were you I would stay away from that. It's a heavy duty stimulant and will not help you address the underlying problem at all - as you correctly said. In fact, it may...
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    vapor nicotine

    Lobelia is a common herb used to help people quit smoking because it binds to the nicotine receptors in the brain. It also has an anti-spasmotic/relaxant effect that nicotine has, plus using it will make you feel sick if you try to use nicotine right afterward. It can be taken in tincture form...
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    Zero Energy/Reliant of Caffeine

    A few things. 1) It is a good idea to get your thyroid checked. This is a low-hanging fruit. If it's abnormal there is a short-term quick fix (but needs to be accompanied by longer term lifestyle changes to get at the root of the cause in the first place). If it is "normal" (conventional docs...
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    Thieves Essential Oils-Alternative medicine-Has anyone tried it?

    I am nebulizing eucalyptus essential oil (2 drops in 2mL hypersal) twice a day and so far the results have been incredible. It's only been a few days but I am thinking this is going to be the foundation of my off-antibiotic regime. I will write a post about it once it's been a little longer and...
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    Bronchial Artery Embolization

    Glad it was helpful. I hope everything goes well for you!
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    Bronchial Artery Embolization

    Had one in May. I wrote a post about it: http://cfnaturalhealth.weebly.com/1/post/2013/10/hemoptysis-coughing-up-blood.html
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    Insulin Resistance

    First of all, are you a female or male? This can make a big difference in the way to go about this. For females, often hormone disregulation as well as hypothyroidism can screw with your insulin sensitivity. You say you are eating few carbs, how few? And what kinds? Carbs cause weight gain and...
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    Shoulder problems

    My godmother had frozen shoulder but got rid of it by supplementing with estrogen. She was scheduled for surgery but avoided it this way. It is apparently a common occurrence for menopausal women as estrogen dwindles. There are, however, serious side effects to taking estrogen, such as increased...
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    Advice on Stomach Issues?

    Hey there! My favorite field of research is the CF-specific diet, and I've written a whole website about it. If you're interested: www.cfnaturalhealth.weebly.com
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    does anyone take oil of oregano every day

    An herbalist will not usually recommend taking oregano oil or any essential oil internally (orally) because it is extremely anti-microbial. It is so anti-microbial that it will kill a significant amount of your good bacteria in your guts that you need to digest, maintain your immune system...
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