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Great, I hope your transplant coordinator can address the adrenal fatigue issue. However, be aware that many MDs and mainstream health practitioners are not educated on the complex interworkings of the adrenal system, and so may poo-poo the issue of adrenal fatigue. You may then have to do your...

Yup, I would look into HPA-axis dysfunction, also known as "adrenal fatigue" in layman's terms. What may be happening is that your body is under so much stress (life stress plus post-transplant stress) that your ability to produce cortisol (which is the hormone that wakes you up in the morning...

Thanks so much for this LL. If I may attempt to distill your explanation into a few words, is it that when pseudo is in a pre-biofilm state (i.e. "planktonic"), it is non-mucoid. Once Pa moves into a biofilm-producing state (mediated by alginate secretion), it becomes mucoid. Is that a fair...

I see real promise in the development of biofilm-breaking agents such as xylitol and certain enzymes for treatment of chronic CF lung infections. It is actually the only thing that is really going to address this issue - the newest and most expensive antibiotic on the market will only get us so...

I've had an embolism and I've written an article about it and on hemoptysis in general on my website (might as well direct you there so I don't rewrite the whole thing): http://cfnaturalhealth.weebly.com/1/category/lung%20disease/1.html Hope this helps.

Hey MotherofCFBoy11yrs. Thank you for posting that study, it was unexpectedly interesting! It sent me down a wild rabbit hole of research and I discovered some really interesting things to contemplate (see below)! Regarding your last sentence - I hope you are not referring to the artificial...

Actually, it is available and has been used for several years now at certain high-level CF clinics (e.g. Johns Hopkins). I used it for several months at one point. I got it compounded from Foundation Care, if I remember correctly. Your doc can order it from them. Be warned, it tastes really...

Since you say your son has never been on IV antibiotics this may not interest you, but I discovered recently that the only anti-MRSA antibiotic that has no impact on the gut microbiome when used IV is vancomycin. That is my anti-MRSA drug of choice, and last time I was inpatient I asked them to...

Hey friends. This is a great study and I hope that it translates into further research into non-antibiotic treatments for disrupting bacterial biofilm formation. Although sugar consumption absolutely feeds infection and bacteria proliferation, as some in this thread have mentioned, that is...

Hi again! Would you mind sending me the link to that study on CF and lactose intolerance? I would love to see it. The issue with dairy is that if you can tolerate it (no lactose intolerance and no casein intolerance) it is great for you. However, many many people cannot tolerate it (particularly...

Hello MotherofCFboy11yrs. Great that mupirocin is working for your son. I used the water pik when I was a kid, and I agree, it is the best. In response to the comment on improved GI symptoms on IV antibiotics, that may be the case in a minority of situations, but they would only benefit while on...

This is AWESOME! Thanks for posting this. Where did you find this?

Hey! I sent the recipe to you via personal message. Let me know if you didn't get it. Also, I kinda want to restate myself a little bit. If you're going to try this recipe and be very diligent about it (2xday) then there should be no need for the additional oral antibiotics. It might be overkill...

I respect that your ENT doesn't want to just throw antibiotics at the problem - shows he's a bit more enlightened than most other allopathic docs. However, the fact that your sinus issues cleared up with a course of abx shows that he may need to rethink his position. I'm not usually an advocate...

Also be aware that your diet can be causing chronic sinus congestion and inflammation. This is very, very common, even in the non-CF population. Dairy is the number one culprit (both lactose-intolerance and casein-intolerance), along with gluten. Cut those two out and see if that helps with the...

Her reply was really fascinating, thank you for sharing it. Protein digestion is a very interesting subject, and I have wondered the same about the sufficiency of CF supplemental pancreatic enzymes in helping with protein digestion. I wonder if the fact that most CF enzyme supplements are...

Hello Juniper. I am sorry for your pains. Please PLEASE go online right now to www.theglutensummit.com and listen to the lecture by Dr. Natasha Campbell-McBride. She clearly outlines how autoimmunity develops, how RA develops, and how it can be cured with cleaning up your diet and correcting...

Oral supplementation with NAC is actually effective, as several studies have shown (a previous reply listed a few of them). One study showed that NAC from 600mg to 1g per day) taken orally significantly increased neutrophil glutathione levels in the lungs - and that's a really good thing since...

Rheumatoid arthritis, like all autoimmune diseases, is caused by leaky gut syndrome, or increased intestinal permeability. Given that studies have shown almost all CFers have some degree of increased intestinal permeability, we are at a higher risk for autoimmune diseases like RA, celiac's, etc...

Hi LL. Yes, GERD is caused by low stomach acid, as is any problem with heartburn or acid reflux. The main gist is that having low stomach acid (which is suppressed by a variety of things including antibiotics, yeast infections, GI infections, many drugs, and of course anti-acids) causes a...