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Just FYI - we have our appt for nasal test - July 25th they go to Iowa. Not sure how long the results will take but at least we finally have the appointment. Ely is good right now - and has gained 3 lbs. That is really great for her. Thanks for caring.

Just FYI - we have our appt for nasal test - July 25th they go to Iowa. Not sure how long the results will take but at least we finally have the appointment. Ely is good right now - and has gained 3 lbs. That is really great for her. Thanks for caring.

Just FYI - we have our appt for nasal test - July 25th they go to Iowa. Not sure how long the results will take but at least we finally have the appointment. Ely is good right now - and has gained 3 lbs. That is really great for her. Thanks for caring.

Just FYI - we have our appt for nasal test - July 25th they go to Iowa. Not sure how long the results will take but at least we finally have the appointment. Ely is good right now - and has gained 3 lbs. That is really great for her. Thanks for caring.

Just FYI - we have our appt for nasal test - July 25th they go to Iowa. Not sure how long the results will take but at least we finally have the appointment. Ely is good right now - and has gained 3 lbs. That is really great for her. Thanks for caring.

Just FYI - we have our appt for nasal test - July 25th they go to Iowa. Not sure how long the results will take but at least we finally have the appointment. Ely is good right now - and has gained 3 lbs. That is really great for her. Thanks for caring.

Thanks for your positive thoughts - we will get to the bottom of this. The place they are sending us to in Iowa City is suppoed to be very good and the best for several states here in the midwest. The only place that does the nasal test. Yes they are leaving no stone unturned and that is great.

Thanks for your positive thoughts - we will get to the bottom of this. The place they are sending us to in Iowa City is suppoed to be very good and the best for several states here in the midwest. The only place that does the nasal test. Yes they are leaving no stone unturned and that is great.

Thanks for your positive thoughts - we will get to the bottom of this. The place they are sending us to in Iowa City is suppoed to be very good and the best for several states here in the midwest. The only place that does the nasal test. Yes they are leaving no stone unturned and that is great.

Thanks for your positive thoughts - we will get to the bottom of this. The place they are sending us to in Iowa City is suppoed to be very good and the best for several states here in the midwest. The only place that does the nasal test. Yes they are leaving no stone unturned and that is great.

Thanks for your positive thoughts - we will get to the bottom of this. The place they are sending us to in Iowa City is suppoed to be very good and the best for several states here in the midwest. The only place that does the nasal test. Yes they are leaving no stone unturned and that is great.

Thanks for your positive thoughts - we will get to the bottom of this. The place they are sending us to in Iowa City is suppoed to be very good and the best for several states here in the midwest. The only place that does the nasal test. Yes they are leaving no stone unturned and that is great.

Here's to your reply Claudette, I agree almost every child grows up to be an adult and a CF'er will find it very difficult to be insured later on. In the newly diagnosed section I read somewhere about a family whose doctor held off on the final dx until the family had their insurance needs in...

Here's to your reply Claudette, I agree almost every child grows up to be an adult and a CF'er will find it very difficult to be insured later on. In the newly diagnosed section I read somewhere about a family whose doctor held off on the final dx until the family had their insurance needs in...

Here's to your reply Claudette, I agree almost every child grows up to be an adult and a CF'er will find it very difficult to be insured later on. In the newly diagnosed section I read somewhere about a family whose doctor held off on the final dx until the family had their insurance needs in...

Here's to your reply Claudette, I agree almost every child grows up to be an adult and a CF'er will find it very difficult to be insured later on. In the newly diagnosed section I read somewhere about a family whose doctor held off on the final dx until the family had their insurance needs in...

Here's to your reply Claudette, I agree almost every child grows up to be an adult and a CF'er will find it very difficult to be insured later on. In the newly diagnosed section I read somewhere about a family whose doctor held off on the final dx until the family had their insurance needs in...

Here's to your reply Claudette, I agree almost every child grows up to be an adult and a CF'er will find it very difficult to be insured later on. In the newly diagnosed section I read somewhere about a family whose doctor held off on the final dx until the family had their insurance needs in...

Well can you all help again please! Ely has another lung thing going on and so yesterday they took her back to the CF center. Her last screening has came back with no mutuations found in the genetic sequencing. My daughter in law says this is genetic sequencing with full disclosure - I am...

Well can you all help again please! Ely has another lung thing going on and so yesterday they took her back to the CF center. Her last screening has came back with no mutuations found in the genetic sequencing. My daughter in law says this is genetic sequencing with full disclosure - I am...