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Well can you all help again please!
Ely has another lung thing going on and so yesterday they took her back to the CF center. Her last screening has came back with no mutuations found in the genetic sequencing. My daughter in law says this is genetic sequencing with full disclosure - I am...
Well can you all help again please!
Ely has another lung thing going on and so yesterday they took her back to the CF center. Her last screening has came back with no mutuations found in the genetic sequencing. My daughter in law says this is genetic sequencing with full disclosure - I am...
Well can you all help again please!
Ely has another lung thing going on and so yesterday they took her back to the CF center. Her last screening has came back with no mutuations found in the genetic sequencing. My daughter in law says this is genetic sequencing with full disclosure - I am...
Well can you all help again please!
Ely has another lung thing going on and so yesterday they took her back to the CF center. Her last screening has came back with no mutuations found in the genetic sequencing. My daughter in law says this is genetic sequencing with full disclosure - I am...
Thanks so much. Ely turned 6 today and we are still waiting. She is feeling really good right now so there isnt any big urgency at this time. They have doubled her enzymes to help with weight gain so we will see how that works.
Reading through this web site is very educational and I thank you...
Thanks so much. Ely turned 6 today and we are still waiting. She is feeling really good right now so there isnt any big urgency at this time. They have doubled her enzymes to help with weight gain so we will see how that works.
Reading through this web site is very educational and I thank you...
Thanks so much. Ely turned 6 today and we are still waiting. She is feeling really good right now so there isnt any big urgency at this time. They have doubled her enzymes to help with weight gain so we will see how that works.
Reading through this web site is very educational and I thank you...
Thanks so much. Ely turned 6 today and we are still waiting. She is feeling really good right now so there isnt any big urgency at this time. They have doubled her enzymes to help with weight gain so we will see how that works.
Reading through this web site is very educational and I thank you...
Thanks so much. Ely turned 6 today and we are still waiting. She is feeling really good right now so there isnt any big urgency at this time. They have doubled her enzymes to help with weight gain so we will see how that works.
Reading through this web site is very educational and I thank you...
Thanks so much. Ely turned 6 today and we are still waiting. She is feeling really good right now so there isnt any big urgency at this time. They have doubled her enzymes to help with weight gain so we will see how that works.
Reading through this web site is very educational and I thank you...
From one grandma to another I know there are lots of questions. I am also new here and my granddaughter is in the process of being diagnosed currently. She is being treated for CF even before the diagnosis is confirmed completely.
About the physical exercise. My daughter in law and son were...
From one grandma to another I know there are lots of questions. I am also new here and my granddaughter is in the process of being diagnosed currently. She is being treated for CF even before the diagnosis is confirmed completely.
About the physical exercise. My daughter in law and son were...
From one grandma to another I know there are lots of questions. I am also new here and my granddaughter is in the process of being diagnosed currently. She is being treated for CF even before the diagnosis is confirmed completely.
About the physical exercise. My daughter in law and son were...
From one grandma to another I know there are lots of questions. I am also new here and my granddaughter is in the process of being diagnosed currently. She is being treated for CF even before the diagnosis is confirmed completely.
About the physical exercise. My daughter in law and son were...
From one grandma to another I know there are lots of questions. I am also new here and my granddaughter is in the process of being diagnosed currently. She is being treated for CF even before the diagnosis is confirmed completely.
About the physical exercise. My daughter in law and son were...
From one grandma to another I know there are lots of questions. I am also new here and my granddaughter is in the process of being diagnosed currently. She is being treated for CF even before the diagnosis is confirmed completely.
About the physical exercise. My daughter in law and son were...
Hello,
I read your update on the adults page and I too am appalled at the stupidity of some people that are allowed to call themselves "doctors"!
The waiting is the hardest, I can relate to that since we are still waiting also. However they have began treating her for CF and she seems to be...
Hello,
I read your update on the adults page and I too am appalled at the stupidity of some people that are allowed to call themselves "doctors"!
The waiting is the hardest, I can relate to that since we are still waiting also. However they have began treating her for CF and she seems to be...
Hello,
I read your update on the adults page and I too am appalled at the stupidity of some people that are allowed to call themselves "doctors"!
The waiting is the hardest, I can relate to that since we are still waiting also. However they have began treating her for CF and she seems to be...
Hello,
I read your update on the adults page and I too am appalled at the stupidity of some people that are allowed to call themselves "doctors"!
The waiting is the hardest, I can relate to that since we are still waiting also. However they have began treating her for CF and she seems to be...
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