Cystic Fibrosis Forum (EXP)

This is a sample guest message. Register a free account today to become a member! Once signed in, you'll be able to participate on this site by adding your own topics and posts, as well as connect with other members through your own private inbox!

Search results

  1. M

    Has anyone done tobi neb. just once daily

    <div style="text-align: left;"><br>
  2. M

    Advice for my 8 year old

    <P>I AM SO SORRY TO HEAR ABOUT YOUR DAUGHTER! i will definitly be praying for you and her! i dont have much advice to give you... that is a tough situation to be in it sounds like.  have they sputum cultured her.. i know for me personally i was sick for 6 months straight with no relief until...
  3. M

    Advice for my 8 year old

    <P>I AM SO SORRY TO HEAR ABOUT YOUR DAUGHTER! i will definitly be praying for you and her! i dont have much advice to give you... that is a tough situation to be in it sounds like. have they sputum cultured her.. i know for me personally i was sick for 6 months straight with no relief until...
  4. M

    Advice for my 8 year old

    <P><BR>I AM SO SORRY TO HEAR ABOUT YOUR DAUGHTER! i will definitly be praying for you and her! i dont have much advice to give you... that is a tough situation to be in it sounds like. have they sputum cultured her.. i know for me personally i was sick for 6 months straight with no relief until...
  5. M

    Hemoptysis - Solution without Embolization

    <P>thank you soooo much for posting this information!!!! i suffer tremendously with hemoptysis..for over 10 years now! i have had 4 embolizations...and hundreds of massive hemoptysis episodes that all could have been embolized. i am apparently one of the worst bleeding cases my docs have seen...
  6. M

    Hemoptysis - Solution without Embolization

    <P>thank you soooo much for posting this information!!!! i suffer tremendously with hemoptysis..for over 10 years now! i have had 4 embolizations...and hundreds of massive hemoptysis episodes that all could have been embolized. i am apparently one of the worst bleeding cases my docs have seen...
  7. M

    Hemoptysis - Solution without Embolization

    <P><BR>thank you soooo much for posting this information!!!! i suffer tremendously with hemoptysis..for over 10 years now! i have had 4 embolizations...and hundreds of massive hemoptysis episodes that all could have been embolized. i am apparently one of the worst bleeding cases my docs have...
  8. M

    Mycobacterium abcsessus

    i grew it in high school about 10 years ago. i was treated with IV cefoxitin, zosyn, and moxyfloxin...along with inhaled amikacin...and i want to say biaxin at some point too. the treatment was tough and my body eventually copuldnt take the ivs anymore...but i guess that was Gods way of saying i...
  9. M

    Mycobacterium abcsessus

    i grew it in high school about 10 years ago. i was treated with IVcefoxitin, zosyn, and moxyfloxin...along with inhaled amikacin...and i want to say biaxin at some point too. the treatment was tough and my body eventually copuldnt take the ivs anymore...but i guess that was Gods way of saying i...
  10. M

    Mycobacterium abcsessus

    <p>i grew it in high school about 10 years ago. i was treated with IVcefoxitin, zosyn, and moxyfloxin...along with inhaled amikacin...and i want to say biaxin at some point too. the treatment was tough and my body eventually copuldnt take the ivs anymore...but i guess that was Gods way of saying...
  11. M

    Lung function Fev1% dropped 9% in 2weeks!?

    maybe the IV meds they have had you on need to be changed... or maybe you are having airway restriction from asthma/bronchiactasis like symptoms, and may need to be on prednisone/steroids.  i just got off 3 weeks of ivs my self and my pfts had not improved hardly at all and i was still feeling...
  12. M

    Lung function Fev1% dropped 9% in 2weeks!?

    maybe the IV meds they have had you on need to be changed... or maybe you are having airway restriction from asthma/bronchiactasis likesymptoms, and may need to be on prednisone/steroids. i just got off 3 weeks of ivs my self and my pfts had not improved hardly at all and i was still feeling...
  13. M

    Lung function Fev1% dropped 9% in 2weeks!?

    <p>maybe the IV meds they have had you on need to be changed... or maybe you are having airway restriction from asthma/bronchiactasis likesymptoms, and may need to be on prednisone/steroids. i just got off 3 weeks of ivs my self and my pfts had not improved hardly at all and i was still feeling...
  14. M

    newbie here

    oh and by the way, if you are not on hypertonic saline...you should try it out! some people swear by it, while others dont...but for me it is  one of the single greatest things they have came out with in my opinion... who knew something so simple and natural as salt water, could do such amazing...
  15. M

    newbie here

    oh and by the way, if you are not on hypertonic saline...you should try it out! some people swear by it, while others dont...but for me it is one of the single greatest things they have came out with in my opinion... who knew something so simple and natural as salt water, could do such amazing...
  16. M

    newbie here

    <p>oh and by the way, if you are not on hypertonic saline...you should try it out! some people swear by it, while others dont...but for me it is one of the single greatest things they have came out with in my opinion... who knew something so simple and natural as salt water, could do such...
  17. M

    newbie here

    Nice to meet you matt! i love this site..everyone is super helpful and encouraging!! as far as having ct scans done. they are good to have periodically so that when you do get sick and they need to evaluate you by ct scan, you have a previous one to compare it to.  in a ct scan tehy get a much...
  18. M

    newbie here

    Nice to meet you matt! i love this site..everyone is super helpful and encouraging!! as far as having ct scans done. they are good to have periodically so that when you do get sick and they need to evaluate you by ct scan, you have a previous one to compare it to. in a ct scan tehy get a much...
  19. M

    newbie here

    <p>Nice to meet you matt! i love this site..everyone is super helpful and encouraging!! as far as having ct scans done. they are good to have periodically so that when you do get sick and they need to evaluate you by ct scan, you have a previous one to compare it to. in a ct scan tehy get a much...
  20. M

    I get embarrassed when I'm out of breath

    i know what you mean. my lung function is still pretty good, but i do get out of breath frequently. working out in the gym in an aerobics class is the worst. i hardly go any more because i have to quit and catch my breath or go sit down. i am one of the younger ones in the class, and from the...
Top