Cystic Fibrosis Forum (EXP)

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  1. C

    new GI

    My son is 12 also. He had to go through all of those tests when he was much younger. I would wait until the tests come back before you start opening that can of worms. My son has had cirrohsis for years. Sometimes there is bleeding due to a food allergy. My son is allergic to cow's milk, and if...
  2. C

    colonisation of mrsa

    My son was sick when he was 8 with MRSA. He had symtoms from Sept - May. He had such a horrible cough that he could not sleep and he lost weight. I finally couldn't take it anymore and took him to a ear,nose & throat doctor. They a pic line in, and he was on IV antibiotics for 3 weeks. After the...
  3. C

    colonisation of mrsa

    My son was sick when he was 8 with MRSA. He had symtoms from Sept - May. He had such a horrible cough that he could not sleep and he lost weight. I finally couldn't take it anymore and took him to a ear,nose & throat doctor. They a pic line in, and he was on IV antibiotics for 3 weeks. After the...
  4. C

    colonisation of mrsa

    My son was sick when he was 8 with MRSA. He had symtoms from Sept - May. He had such a horrible cough that he could not sleep and he lost weight. I finally couldn't take it anymore and took him to a ear,nose & throat doctor. They a pic line in, and he was on IV antibiotics for 3 weeks. After the...
  5. C

    I enjoy a good Joke..But...

    I wasn't offended by it. I think he was actually pointing out that politians will use anything to win. Even their sick child. Until people walk in our shoes, they just do not understand. I guess we should be grateful that the subject was brought into the public light. I'm sure many people are...
  6. C

    I enjoy a good Joke..But...

    I wasn't offended by it. I think he was actually pointing out that politians will use anything to win. Even their sick child. Until people walk in our shoes, they just do not understand. I guess we should be grateful that the subject was brought into the public light. I'm sure many people are...
  7. C

    I enjoy a good Joke..But...

    I wasn't offended by it. I think he was actually pointing out that politians will use anything to win. Even their sick child. Until people walk in our shoes, they just do not understand. I guess we should be grateful that the subject was brought into the public light. I'm sure many people are...
  8. C

    wat is the life span for someone with cf?

    My son's doctor says he doesn't like to use a cap. There are so many different mutations and variables to consider. And every year they find better meds and methods.
  9. C

    wat is the life span for someone with cf?

    My son's doctor says he doesn't like to use a cap. There are so many different mutations and variables to consider. And every year they find better meds and methods.
  10. C

    wat is the life span for someone with cf?

    My son's doctor says he doesn't like to use a cap. There are so many different mutations and variables to consider. And every year they find better meds and methods.
  11. C

    Has anyone had sinus surgery due to polyps?

    My son was supposed to have surgery 2 years ago, but because my son's blood was too thin the day of the surgery, they cancelled it. They put my son on steroid drops in his nose, along with Flonase and sinus flushes. His polups are still under control for now, but we still see the doctor every 6...
  12. C

    Has anyone had sinus surgery due to polyps?

    My son was supposed to have surgery 2 years ago, but because my son's blood was too thin the day of the surgery, they cancelled it. They put my son on steroid drops in his nose, along with Flonase and sinus flushes. His polups are still under control for now, but we still see the doctor every 6...
  13. C

    Has anyone had sinus surgery due to polyps?

    My son was supposed to have surgery 2 years ago, but because my son's blood was too thin the day of the surgery, they cancelled it. They put my son on steroid drops in his nose, along with Flonase and sinus flushes. His polups are still under control for now, but we still see the doctor every 6...
  14. C

    Constipation Question????

    I never really had a major problem with my son. If he couldn't go, I'd just give him a snack (like potato chipis) and not give him his full dosage of emzymes. Our CF doctor told us they do not eat the same amount of food every meal, so it is understandable the amount of emzymes needed will...
  15. C

    Constipation Question????

    I never really had a major problem with my son. If he couldn't go, I'd just give him a snack (like potato chipis) and not give him his full dosage of emzymes. Our CF doctor told us they do not eat the same amount of food every meal, so it is understandable the amount of emzymes needed will...
  16. C

    Constipation Question????

    I never really had a major problem with my son. If he couldn't go, I'd just give him a snack (like potato chipis) and not give him his full dosage of emzymes. Our CF doctor told us they do not eat the same amount of food every meal, so it is understandable the amount of emzymes needed will...
  17. C

    Liver Problems??

    My son was 8 when he had his gall bladder removed. The doctor even gave him one of his stones (about the size of a pea), and it sits in a jar with his trophies
  18. C

    Liver Problems??

    My son was 8 when he had his gall bladder removed. The doctor even gave him one of his stones (about the size of a pea), and it sits in a jar with his trophies
  19. C

    Liver Problems??

    My son was 8 when he had his gall bladder removed. The doctor even gave him one of his stones (about the size of a pea), and it sits in a jar with his trophies
  20. C

    Liver Problems??

    I have a 11 year old with liver damage(cirrohis). He too takes URSO. He takes 3 250mg tablets a day. His liver is so enlarged his spleen is swollen and his belly sticks out. We have been to specialists in Childrens Hospital of Philadelphia, and recently a liver transplant team, and they said...
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