Cystic Fibrosis Forum (EXP)

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  1. A

    actigall

    We are having her liver enzymes checked tomorrow. So, we're on Actigall until then. We'll see! Thanks
  2. A

    Need help with nebulizer

    We have a Pari compressor with Pari LC Plus nebulizer. We are doing hypertonic saline twice a day. We were told by another CF parent to take the cap off the nebulizer to make it go faster, but it still take over 15 minutes. Is this normal? We've changed to a new nebulizer, we've cleaned the...
  3. A

    Need help with nebulizer

    We have a Pari compressor with Pari LC Plus nebulizer. We are doing hypertonic saline twice a day. We were told by another CF parent to take the cap off the nebulizer to make it go faster, but it still take over 15 minutes. Is this normal? We've changed to a new nebulizer, we've cleaned the...
  4. A

    Need help with nebulizer

    We have a Pari compressor with Pari LC Plus nebulizer. We are doing hypertonic saline twice a day. We were told by another CF parent to take the cap off the nebulizer to make it go faster, but it still take over 15 minutes. Is this normal? We've changed to a new nebulizer, we've cleaned the...
  5. A

    Need help with nebulizer

    We have a Pari compressor with Pari LC Plus nebulizer. We are doing hypertonic saline twice a day. We were told by another CF parent to take the cap off the nebulizer to make it go faster, but it still take over 15 minutes. Is this normal? We've changed to a new nebulizer, we've cleaned the...
  6. A

    Need help with nebulizer

    We have a Pari compressor with Pari LC Plus nebulizer. We are doing hypertonic saline twice a day. We were told by another CF parent to take the cap off the nebulizer to make it go faster, but it still take over 15 minutes. Is this normal? We've changed to a new nebulizer, we've cleaned the...
  7. A

    actigall

    So, I guess I need to find out if her liver enzymes were elevated. When you're in the NICU that long, its hard to remember what everyone tells you. Thanks for your reply. At least I know one other CF'er on it!
  8. A

    actigall

    So, I guess I need to find out if her liver enzymes were elevated. When you're in the NICU that long, its hard to remember what everyone tells you. Thanks for your reply. At least I know one other CF'er on it!
  9. A

    actigall

    So, I guess I need to find out if her liver enzymes were elevated. When you're in the NICU that long, its hard to remember what everyone tells you. Thanks for your reply. At least I know one other CF'er on it!
  10. A

    actigall

    So, I guess I need to find out if her liver enzymes were elevated. When you're in the NICU that long, its hard to remember what everyone tells you. Thanks for your reply. At least I know one other CF'er on it!
  11. A

    actigall

    So, I guess I need to find out if her liver enzymes were elevated. When you're in the NICU that long, its hard to remember what everyone tells you. Thanks for your reply. At least I know one other CF'er on it!
  12. A

    actigall

    My daughter was diagnosed at 2 weeks of age. She was born with a meconium ileus. We were seen by multiple doctors because we were in the NICU for a month. A Peds GI doc put her on actigall and I still can't figure out why. Is anyone else on this or has anyone heard of another CF baby on it...
  13. A

    actigall

    My daughter was diagnosed at 2 weeks of age. She was born with a meconium ileus. We were seen by multiple doctors because we were in the NICU for a month. A Peds GI doc put her on actigall and I still can't figure out why. Is anyone else on this or has anyone heard of another CF baby on it...
  14. A

    actigall

    My daughter was diagnosed at 2 weeks of age. She was born with a meconium ileus. We were seen by multiple doctors because we were in the NICU for a month. A Peds GI doc put her on actigall and I still can't figure out why. Is anyone else on this or has anyone heard of another CF baby on it...
  15. A

    actigall

    My daughter was diagnosed at 2 weeks of age. She was born with a meconium ileus. We were seen by multiple doctors because we were in the NICU for a month. A Peds GI doc put her on actigall and I still can't figure out why. Is anyone else on this or has anyone heard of another CF baby on it...
  16. A

    actigall

    My daughter was diagnosed at 2 weeks of age. She was born with a meconium ileus. We were seen by multiple doctors because we were in the NICU for a month. A Peds GI doc put her on actigall and I still can't figure out why. Is anyone else on this or has anyone heard of another CF baby on it...
  17. A

    Infant in hospital from MI surgery with ileostomy, Waiting for 'reconnection'...

    My daughter just had her ileostomy reversed on June 25. She passed gas the next day and had a bowel movement the following day. It was the greatest day of our lives so far! Yay for poop! She was released from the hospital in less than a week and is doing great. Just wanted to share our...
  18. A

    Infant in hospital from MI surgery with ileostomy, Waiting for 'reconnection'...

    My daughter just had her ileostomy reversed on June 25. She passed gas the next day and had a bowel movement the following day. It was the greatest day of our lives so far! Yay for poop! She was released from the hospital in less than a week and is doing great. Just wanted to share our...
  19. A

    Infant in hospital from MI surgery with ileostomy, Waiting for 'reconnection'...

    My daughter just had her ileostomy reversed on June 25. She passed gas the next day and had a bowel movement the following day. It was the greatest day of our lives so far! Yay for poop! She was released from the hospital in less than a week and is doing great. Just wanted to share our...
  20. A

    Infant in hospital from MI surgery with ileostomy, Waiting for 'reconnection'...

    My daughter just had her ileostomy reversed on June 25. She passed gas the next day and had a bowel movement the following day. It was the greatest day of our lives so far! Yay for poop! She was released from the hospital in less than a week and is doing great. Just wanted to share our...
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