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<P><div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Printer</b></i> Of course she could have 2 mutations even tho the others have only one. Barbara, what is the CF Doctor recommending? Bill</end quote></div> </P> <P> </P> <P> </P> <P>never thought of that. Guess it could provide...

<P><div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Printer</b></i> Of course she could have 2 mutations even tho the others have only one. Barbara, what is the CF Doctor recommending? Bill</end quote> </P> <P></P> <P></P> <P>never thought of that. Guess it could provide some useful...

<P><div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Printer</b></i> Of course she could have 2 mutations even tho the others have only one. Barbara, what is the CF Doctor recommending? Bill</end quote> </P> <P></P> <P></P> <P>never thought of that. Guess it could provide some useful...

<P><div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Printer</b></i> Yes. There are several levels of gene testing. There are almost 1900 mutations. Only one test scans for all mutations. If the Ambry that was done is NOT a FULL CF GENE SEQUENCING, I would think that is now required...

<P><div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Printer</b></i> Yes. There are several levels of gene testing. There are almost 1900 mutations. Only one test scans for all mutations. If the Ambry that was done is NOT a FULL CF GENE SEQUENCING, I would think that is now required...

<P><div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Printer</b></i> Yes. There are several levels of gene testing. There are almost 1900 mutations. Only one test scans for all mutations. If the Ambry that was done is NOT a FULL CF GENE SEQUENCING, I would think that is now required...

<P>DD (7) and DS(5) are both dx with CRMS, although their pulm. is leaning towards changing it to a cf dx. Both had high borderline sweat tests, and are having them redone in November. They both had the Ambry done, which came back with 1mutation, the S1235R. Both have a ton of symptons - both...

<P>DD (7) and DS(5) are both dx with CRMS, although their pulm. is leaning towards changing it to a cf dx. Both had high borderline sweat tests, and are having them redone in November. They both had the Ambry done, which came back with 1mutation, the S1235R. Both have a ton of symptons - both...

<P><BR>DD (7) and DS(5) are both dx with CRMS, although their pulm. is leaning towards changing it to a cf dx. Both had high borderline sweat tests, and are having them redone in November. They both had the Ambry done, which came back with 1mutation, the S1235R. Both have a ton of symptons -...

My kids are also dx with atypical cf. They have both had borderline sweat tests, and only have 1 known mutation through the ambry test. However, they have a ton of symptons. Both have had numerous rounds of peumonia, Jack's lung collapsed last winter, both have PI.

My kids are also dx with atypical cf. They have both had borderline sweat tests, and only have 1 known mutation through the ambry test. However, they have a ton of symptons. Both have had numerous rounds of peumonia, Jack's lung collapsed last winter, both have PI.

<BR>My kids are also dx with atypical cf. They have both had borderline sweat tests, and only have 1 known mutation through the ambry test. However, they have a ton of symptons. Both have had numerous rounds of peumonia, Jack's lung collapsed last winter, both have PI.

I just looked up the paperwork that our doc gave us, and they say you should not take more than 10,000 units of lipase per kilo per day.

I just looked up the paperwork that our doc gave us, and they say you should not take more than 10,000 units of lipase per kilo per day.

I just looked up the paperwork that our doc gave us, and they say you should not take more than 10,000 units of lipase per kilo per day.

My daughter was at her max for Creaon - at leats that is what we were told. She weighs 44 pounds, so about just under 20 kilos, and she was on Creon 24000. She was taking 5 with meals and 4 with snacks (so between 23 and 27 a day, depending on how many snacks she ate), and still having greasy...

My daughter was at her max for Creaon - at leats that is what we were told. She weighs 44 pounds, so about just under 20 kilos, and she was on Creon 24000. She was taking 5 with meals and 4 with snacks (so between 23 and 27 a day, depending on how many snacks she ate), and still having greasy...

My daughter was at her max for Creaon - at leats that is what we were told. She weighs 44 pounds, so about just under 20 kilos, and she was on Creon 24000. She was taking 5 with meals and 4 with snacks (so between 23 and 27 a day, depending on how many snacks she ate), and still having greasy...

<P>At our clinic we are brought into a room right away. They do height and weight in the room, someone comes in gowned to do ttheir PFTs, then the nurse comes in gowned to do cultures, then the doctor comes in gowned for the appointment. If they need x-rays or whatever, when we go down to...

<P>At our clinic we are brought into a room right away. They do height and weight in the room, someone comes in gowned to do ttheir PFTs, then the nurse comes in gowned to do cultures, then the doctor comes in gowned for the appointment. If they need x-rays or whatever, when we go down to...