Cystic Fibrosis Forum (EXP)

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  1. B

    Got the boot from BABY CF CLINIC DAY

    <P><BR>At our clinic we are brought into a room right away. They do height and weight in the room, someone comes in gowned to do ttheir PFTs, then the nurse comes in gowned to do cultures, then the doctor comes in gowned for the appointment. If they need x-rays or whatever, when we go down to...
  2. B

    medical plan

    Lilly is on a 504, and Jack, who is starting K will be on a medical plan. Some things ours include are: changing seats if a classmate is sick preferred seating near the door of the classroom to allow for easy bathroom access leaving class early to get meds still being able to participate in...
  3. B

    medical plan

    Lilly is on a 504, and Jack, who is starting K will be on a medical plan. Some things ours include are: changing seats if a classmate is sick preferred seating near the door of the classroom to allow for easy bathroom access leaving class early to get meds still being able to participate in...
  4. B

    medical plan

    Lilly is on a 504, and Jack, who is starting K will be on a medical plan. <br /> <br />Some things ours include are: <br />changing seats if a classmate is sick <br />preferred seating near the door of the classroom to allow for easy bathroom access <br />leaving class early to get meds <br...
  5. B

    Fatty Liver

    My DD - also dx with atypical cf, has had rising ALTs for the past few months. We are going to set up and u/s to check and see if they can see anything.
  6. B

    Fatty Liver

    My DD - also dx with atypical cf, has had rising ALTs for the past few months. We are going to set up and u/s to check and see if they can see anything.
  7. B

    Fatty Liver

    <BR>My DD - also dx with atypical cf, has had rising ALTs for the past few months. We are going to set up and u/s to check and see if they can see anything.
  8. B

    Anyone else deal with chronic blood in stool?

    <P>DD has had blood off and on for a few years, but lately it has gotten much worse. Usually it is a very small amount, but last night it was dripping. I talked to GI, who said to put her on miralax (She is PI, and even with a large dose of creon has very loose stools), and they are seeing us...
  9. B

    Anyone else deal with chronic blood in stool?

    <P>DD has had blood off and on for a few years, but lately it has gotten much worse. Usually it is a very small amount, but last night it was dripping. I talked to GI, who said to put her on miralax (She is PI, and even with a large dose of creon has very loose stools), and they are seeing us...
  10. B

    Anyone else deal with chronic blood in stool?

    <P><BR>DD has had blood off and on for a few years, but lately it has gotten much worse. Usually it is a very small amount, but last night it was dripping. I talked to GI, who said to put her on miralax (She is PI, and even with a large dose of creon has very loose stools), and they are seeing...
  11. B

    What point to worry?

    Thanks guys. I will def. try the salt, and I am bringing extra gatorade for him tomorrow. He plays outside a lot, but it has not been very warm yet. This was the first nice day in a long time, so I think his body just needs to do a little adjusting.
  12. B

    What point to worry?

    Thanks guys. I will def. try the salt, and I am bringing extra gatorade for him tomorrow. He plays outside a lot, but it has not been very warm yet. This was the first nice day in a long time, so I think his body just needs to do a little adjusting.
  13. B

    What point to worry?

    <BR>Thanks guys. I will def. try the salt, and I am bringing extra gatorade for him tomorrow. He plays outside a lot, but it has not been very warm yet. This was the first nice day in a long time, so I think his body just needs to do a little adjusting.
  14. B

    What point to worry?

    <P>Jack is 5 1/2, weighs 33 pounds, and is dx with CRMS. He started camp today, which is 3 hours. They go in and out of the school, in and out of the pools, have water/popsicles breaks. It was about 72 this am, and sunny.</P> <P> </P> <P>I weighed him last night, and he was 33.2 pounds. He felt...
  15. B

    What point to worry?

    <P>Jack is 5 1/2, weighs 33 pounds, and is dx with CRMS. He started camp today, which is 3 hours. They go in and out of the school, in and out of the pools, have water/popsicles breaks. It was about 72 this am, and sunny.</P> <P></P> <P>I weighed him last night, and he was 33.2 pounds.He felt...
  16. B

    What point to worry?

    <P><BR>Jack is 5 1/2, weighs 33 pounds, and is dx with CRMS. He started camp today, which is 3 hours. They go in and out of the school, in and out of the pools, have water/popsicles breaks. It was about 72 this am, and sunny.</P> <P></P> <P>I weighed him last night, and he was 33.2 pounds.He...
  17. B

    Can I havesome info about the NPD test?

    <P>I want to bring it up with the kids doctor when ew go back in July. Lillian is 7, and Jack is 5. Are they too young? They typically do pretty well with ivs and blood draws, but there is no way of knowing before hand how well they will do.</P> <P> </P> <P>Does this test typically give a def...
  18. B

    Can I havesome info about the NPD test?

    <P>I want to bring it up with the kids doctor when ew go back in July. Lillian is 7, and Jack is 5. Are they too young? They typically do pretty well with ivs and blood draws, but there is no way of knowing before hand how well they will do.</P> <P></P> <P>Does this test typically give a def...
  19. B

    Can I havesome info about the NPD test?

    <P><BR>I want to bring it up with the kids doctor when ew go back in July. Lillian is 7, and Jack is 5. Are they too young? They typically do pretty well with ivs and blood draws, but there is no way of knowing before hand how well they will do.</P> <P></P> <P>Does this test typically give a...
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