What's new
By:
Filters
Cystic Fibrosis Forum (EXP)

This is a sample guest message. Register a free account today to become a member! Once signed in, you'll be able to participate on this site by adding your own topics and posts, as well as connect with other members through your own private inbox!

Search results

  1. A

    SSI?

    I'm trying to figure out if we applied for SSI or SSDI. Its our 4 year old daughter who has CF and our monthly maximum is like $700. Whats the difference and is it possible to get both?
  2. A

    SSI?

    I'm trying to figure out if we applied for SSI or SSDI. Its our 4 year old daughter who has CF and our monthly maximum is like $700. Whats the difference and is it possible to get both?
  3. A

    SSI?

    I've heard 3 to 5 months but I'm not sure since we're still waiting on the medical review.
  4. A

    SSI?

    I've heard 3 to 5 months but I'm not sure since we're still waiting on the medical review.
  5. A

    vx 661 discussion moved

    Yeah, they don't want their investors to see what people are saying about the new drugs until they've verified everything and are ready to release a statement.
  6. A

    vx 661 discussion moved

    Yeah, they don't want their investors to see what people are saying about the new drugs until they've verified everything and are ready to release a statement.
  7. A

    vx 661 discussion moved

    Thank you for clearing that all up.
  8. A

    vx 661 discussion moved

    Thank you for clearing that all up.
  9. A

    vx 661 discussion moved

    Hmmm. So I'm guessing they won't know if 661 will reactly badly with 770 until they try upping the dose in the second phase of the trial. Or do they?
  10. A

    vx 661 discussion moved

    Hmmm. So I'm guessing they won't know if 661 will reactly badly with 770 until they try upping the dose in the second phase of the trial. Or do they?
  11. A

    vx 661 discussion moved

    BTW: All of the posts from the girl's blog still appear to be deleted. If you have found them then please post the link.
  12. A

    vx 661 discussion moved

    BTW: All of the posts from the girl's blog still appear to be deleted. If you have found them then please post the link.
  13. A

    Insights from current 661 or 809 trials

    BTW: All of the posts from the girl's blog still appear to be deleted. If you have found them then please post the link.
  14. A

    Insights from current 661 or 809 trials

    BTW: All of the posts from the girl's blog still appear to be deleted. If you have found them then please post the link.
  15. A

    Insights from current 661 or 809 trials

    My daughter has those same mutations and they will most definitely qualify for the new drugs.
  16. A

    Insights from current 661 or 809 trials

    My daughter has those same mutations and they will most definitely qualify for the new drugs.
  17. A

    vx 661 discussion moved

    Its because the average drop in sweat chloride was less than they had hoped for even though some patients experienced significant decreases. I'm just speculating here but they may be planning to scrap 809 after the phase 2b trial if vx 661 out performs in its current phase 2a trial. This is...
  18. A

    vx 661 discussion moved

    Its because the average drop in sweat chloride was less than they had hoped for even though some patients experienced significant decreases. I'm just speculating here but they may be planning to scrap 809 after the phase 2b trial if vx 661 out performs in its current phase 2a trial. This is...
  19. A

    vx 661 discussion moved

    It looks like all of the info relating to the vx 661 trials has been removed from that girls blog shortly after I posted the link on another thread last night. That thread broke down so I started a new one here. MamaScarlett, if you read this will you please post the link to the cff press...
  20. A

    vx 661 discussion moved

    It looks like all of the info relating to the vx 661 trials has been removed from that girls blog shortly after I posted the link on another thread last night. That thread broke down so I started a new one here. MamaScarlett, if you read this will you please post the link to the cff press...
Top