Cystic Fibrosis Forum (EXP)

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  1. A

    Insights from current 661 or 809 trials

    Forgot to post the link. http://www.cfgirlseyeofthetiger.com/blog/2012/03/27/One-week-left.aspx
  2. A

    Insights from current 661 or 809 trials

    Forgot to post the link. http://www.cfgirlseyeofthetiger.com/blog/2012/03/27/One-week-left.aspx
  3. A

    Insights from current 661 or 809 trials

    She has a more current post on her blog. Her lung function went up another 3% for a total of 14% in 3 weeks. WOW!! Let's just hope she's not an anomalie.
  4. A

    Insights from current 661 or 809 trials

    She has a more current post on her blog. Her lung function went up another 3% for a total of 14% in 3 weeks. WOW!! Let's just hope she's not an anomalie.
  5. A

    Insights from current 661 or 809 trials

    The 661 seems to be doing as good as 770 did and I know that vertex is really excited about it. 809 however got the axe and clinical trials for it are being terminated.
  6. A

    Insights from current 661 or 809 trials

    The 661 seems to be doing as good as 770 did and I know that vertex is really excited about it. 809 however got the axe and clinical trials for it are being terminated.
  7. A

    help with diagnosis

    Yes. I do believe that you can have CF and still pass a sweat test even though the results are usually higher than 6. It really sounds like you have alot of the symptoms and should be doing treatments like a CF person would to control the bacteria and bronchiectasis in your lungs. If you really...
  8. A

    help with diagnosis

    Yes. I do believe that you can have CF and still pass a sweat test even though the results are usually higher than 6. It really sounds like you have alot of the symptoms and should be doing treatments like a CF person would to control the bacteria and bronchiectasis in your lungs. If you really...
  9. A

    CF antibiotic use on Yahoo news

    I know that once my kid finishes her tobi cycle she starts getting gunky right away.
  10. A

    CF antibiotic use on Yahoo news

    I know that once my kid finishes her tobi cycle she starts getting gunky right away.
  11. A

    Bad news from Vertex

    Ya but that could change here in the near future. Does anybody know if the rumor is true that they changed the vx-809 trial to include DF508 heterozytes because the drug wasn't being successful enough on the double deltas and they wanted to see if it would work on other mutations?
  12. A

    Bad news from Vertex

    Ya but that could change here in the near future. Does anybody know if the rumor is true that they changed the vx-809 trial to include DF508 heterozytes because the drug wasn't being successful enough on the double deltas and they wanted to see if it would work on other mutations?
  13. A

    DAVID BOWIE exploration

    I saw him live at the filmore in '85. He changed sparkly leotards 7 times during the show.
  14. A

    DAVID BOWIE exploration

    I saw him live at the filmore in '85. He changed sparkly leotards 7 times during the show.
  15. A

    Pink Floyd

    Yea, all of them. They're all awesome and unique.
  16. A

    Pink Floyd

    Yea, all of them. They're all awesome and unique.
  17. A

    Bad news from Vertex

    Maybe you don't live near a participating center.
  18. A

    Bad news from Vertex

    Maybe you don't live near a participating center.
  19. A

    661 & 770 recruiting

    Yep! Looks like you pretty much have to live on the east coast or in Missouri to participate in this study.
  20. A

    661 & 770 recruiting

    Yep! Looks like you pretty much have to live on the east coast or in Missouri to participate in this study.
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