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matt70592: <br />wow. what a tremendous story. thank you for the insight and personal time you took to share this with me. i read this and can't help but think how amazing you are to have dealt with all of this and then share it with me, a total stranger. as the years pass by and my chances of...

thanks, guys. i do not have a flexible spending account; but, WOW, i too cannot believe that they understood and approved it. yeah! i like the pulmonary rehab idea. i am going to investigate that one further. i hope this message finds the both of you well today!

thanks, guys. i do not have a flexible spending account; but, WOW, i too cannot believe that they understood and approved it. yeah! i like the pulmonary rehab idea. i am going to investigate that one further. i hope this message finds the both of you well today!

thanks, guys. i do not have a flexible spending account; but, WOW, i too cannot believe that they understood and approved it. yeah! i like the pulmonary rehab idea. i am going to investigate that one further. i hope this message finds the both of you well today!

Does anyone out there get prescribed to them (by your health care provider) exercise therapy or physical therapy for the sole purpose of maintaining healthy lungs/airway clearance?

Does anyone out there get prescribed to them (by your health care provider) exercise therapy or physical therapy for the sole purpose of maintaining healthy lungs/airway clearance?

Does anyone out there get prescribed to them (by your health care provider) exercise therapy or physical therapy for the sole purpose of maintaining healthy lungs/airway clearance?

regina, keep calling your doctor. maybe even tell her what you've read here in the forum. it seems as though the docs are still feeling out how to treat this and what works best for whom. being this backed up can be serious; so, please keep calling. do you go to a cf center or see a private doc...

To all who responded: I told you all I would update you on my liver once I knew anything. So far, so good! <img src="i/expressions/face-icon-small-smile.gif" border="0"> Every test has come back normal. The only test I have left is the endoscopy and ph cap placement--to check for severe acid...

To all who responded: I told you all I would update you on my liver once I knew anything. So far, so good! <img src="i/expressions/face-icon-small-smile.gif" border="0"> Every test has come back normal. The only test I have left is the endoscopy and ph cap placement--to check for severe acid...

To all who responded: <br /> <br />I told you all I would update you on my liver once I knew anything. So far, so good! <img src="i/expressions/face-icon-small-smile.gif" border="0"> Every test has come back normal. The only test I have left is the endoscopy and ph cap placement--to check for...

shane, thanks for the explanation. glad to hear you've found something that works for you because it sounds not-so-pleasant!

shane, thanks for the explanation. glad to hear you've found something that works for you because it sounds not-so-pleasant!

shane, <br />thanks for the explanation. glad to hear you've found something that works for you because it sounds not-so-pleasant!

patti, thanks for your response. yeah, so glad to hear after all of your struggles that you received new lungs and liver. (it doesn't even seem real to say that!). i really hope you are feeling well. out of curiosity, do you remember if you had any facial, neck or abdominal swelling due to the...

patti, thanks for your response. yeah, so glad to hear after all of your struggles that you received new lungs and liver. (it doesn't even seem real to say that!). i really hope you are feeling well. out of curiosity, do you remember if you had any facial, neck or abdominal swelling due to the...

patti, <br />thanks for your response. yeah, so glad to hear after all of your struggles that you received new lungs and liver. (it doesn't even seem real to say that!). i really hope you are feeling well. <br /> <br />out of curiosity, do you remember if you had any facial, neck or abdominal...

Thanks Liza and Teri. Teri, my experience has actually been almost exactly that of Liza's child (thanks you two, by the way, for writing in and sharing)--miralax, miralax, water, water, water, gastrograffin enemas (last hospital stay it took upwards of 17 bottles just to get things moving)...

Shane, hello. what does a hyper-acidity dx actually mean? i saw it in your signature and very curious.

Shane, hello. what does a hyper-acidity dx actually mean? i saw it in your signature and very curious.