Cystic Fibrosis Forum (EXP)

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  1. K

    maybe a clot in my port

    Hi, Jana. Haven't talked to you for a while. Sorry to hear about the port-a-cath 'hiccup'. Thinking about ya! I, too, have had what every here has said and used the same injectable medication that they are speaking of. Let us know how it turns out.
  2. K

    maybe a clot in my port

    Hi, Jana. Haven't talked to you for a while. Sorry to hear about the port-a-cath 'hiccup'. Thinking about ya! I, too, have had what every here has said and used the same injectable medication that they are speaking of. Let us know how it turns out.
  3. K

    maybe a clot in my port

    Hi, Jana. Haven't talked to you for a while. Sorry to hear about the port-a-cath 'hiccup'. Thinking about ya! I, too, have had what every here has said and used the same injectable medication that they are speaking of. Let us know how it turns out.
  4. K

    my 1st time port access...no luck and horribly painful!

    i too feel it is in the hands of the experience of the nurse. it's not to say she is a 'bad' nurse, it's simply saying that she likely did not have much experience accessing ports! you just need to find a way to ask to have another nurse access it; or, as someone else mentioned, have a nurse...
  5. K

    my 1st time port access...no luck and horribly painful!

    i too feel it is in the hands of the experience of the nurse. it's not to say she is a 'bad' nurse, it's simply saying that she likely did not have much experience accessing ports! you just need to find a way to ask to have another nurse access it; or, as someone else mentioned, have a nurse...
  6. K

    my 1st time port access...no luck and horribly painful!

    i too feel it is in the hands of the experience of the nurse. it's not to say she is a 'bad' nurse, it's simply saying that she likely did not have much experience accessing ports! you just need to find a way to ask to have another nurse access it; or, as someone else mentioned, have a nurse...
  7. K

    IV potassium any one else have to get Potassium

    sorry to hear you're having to take iv potassium. yes, i too, have been on iv potassium. i encourage you to continue asking why your potassium level is depleted. is this a normal occurrence for someone with a cf exacerbation? or is there something else going on physiologically? i ask and am...
  8. K

    IV potassium any one else have to get Potassium

    sorry to hear you're having to take iv potassium. yes, i too, have been on iv potassium. i encourage you to continue asking why your potassium level is depleted. is this a normal occurrence for someone with a cf exacerbation? or is there something else going on physiologically? i ask and am...
  9. K

    IV potassium any one else have to get Potassium

    sorry to hear you're having to take iv potassium. yes, i too, have been on iv potassium. i encourage you to continue asking why your potassium level is depleted. is this a normal occurrence for someone with a cf exacerbation? or is there something else going on physiologically? i ask and am...
  10. K

    Can Enzymes stop working?

    yes, i definitely have had similar problems and am so glad i read your post. all of my stuff started several years ago. to make a long story short-i had tremendous pain, extreme distention, wouldn't have a BM for days at a time (or i would being going regularly and the doctors would still tell...
  11. K

    Can Enzymes stop working?

    yes, i definitely have had similar problems and am so glad i read your post. all of my stuff started several years ago. to make a long story short-i had tremendous pain, extreme distention, wouldn't have a BM for days at a time (or i would being going regularly and the doctors would still tell...
  12. K

    Can Enzymes stop working?

    yes, i definitely have had similar problems and am so glad i read your post. all of my stuff started several years ago. to make a long story short-i had tremendous pain, extreme distention, wouldn't have a BM for days at a time (or i would being going regularly and the doctors would still tell...
  13. K

    Thyroid problems anyone?

    yes, i too, have hypothyroidism. i found out about a year ago and have been taking synthroid ever since. my original lab values (TSH) were considered 'normal' by lab standards and overlooked by the large institution that i attend. i complained again last september about fatigue, mental...
  14. K

    Thyroid problems anyone?

    yes, i too, have hypothyroidism. i found out about a year ago and have been taking synthroid ever since. my original lab values (TSH) were considered 'normal' by lab standards and overlooked by the large institution that i attend. i complained again last september about fatigue, mental...
  15. K

    Thyroid problems anyone?

    yes, i too, have hypothyroidism. i found out about a year ago and have been taking synthroid ever since. my original lab values (TSH) were considered 'normal' by lab standards and overlooked by the large institution that i attend. i complained again last september about fatigue, mental...
  16. K

    Exercisce and/or Physical Therapy

    nervous1: super helpful. thank you. i am definitely asking my doctors.
  17. K

    Exercisce and/or Physical Therapy

    nervous1: super helpful. thank you. i am definitely asking my doctors.
  18. K

    Exercisce and/or Physical Therapy

    nervous1: <br />super helpful. thank you. i am definitely asking my doctors.
  19. K

    Liver Trouble Anyone?

    matt70592: wow. what a tremendous story. thank you for the insight and personal time you took to share this with me. i read this and can't help but think how amazing you are to have dealt with all of this and then share it with me, a total stranger. as the years pass by and my chances of liver...
  20. K

    Liver Trouble Anyone?

    matt70592: wow. what a tremendous story. thank you for the insight and personal time you took to share this with me. i read this and can't help but think how amazing you are to have dealt with all of this and then share it with me, a total stranger. as the years pass by and my chances of liver...
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