Cystic Fibrosis Forum (EXP)

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  1. P

    Vomitting blood

    I felt like I was overreacting while in the ER, and kept telling the nurses and doctors that I just worry about the things it COULD be b/c of the CF. Kind of silly that I felt like I had to make excuses for bringing my sick child to the ER. Why is it we feel guilty about bring our sick kids to...
  2. P

    Vomitting blood

    Hey there, had a rough weekend, Ainsley seemed fine thursday afternoon besides a mild cough that she had picked up from her brother, so I left for some me time. When I got home, her dad said she had been grumpy while I was away. Within 15 minutes of sitting down, I heard crying and ran to her...
  3. P

    Vomitting blood

    Hey there, had a rough weekend, Ainsley seemed fine thursday afternoon besides a mild cough that she had picked up from her brother, so I left for some me time. When I got home, her dad said she had been grumpy while I was away. Within 15 minutes of sitting down, I heard crying and ran to her...
  4. P

    Vomitting blood

    Hey there, had a rough weekend, Ainsley seemed fine thursday afternoon besides a mild cough that she had picked up from her brother, so I left for some me time. When I got home, her dad said she had been grumpy while I was away. Within 15 minutes of sitting down, I heard crying and ran to her...
  5. P

    newborn diagnosed

    As far as I've been told, the degree of severity has to do with the individual as well as the prevention of illness and good therapy practices. The more you prevent your child from getting sick and keep up on good therapy practices the better her chances are, so be proactive. Also I know she...
  6. P

    newborn diagnosed

    As far as I've been told, the degree of severity has to do with the individual as well as the prevention of illness and good therapy practices. The more you prevent your child from getting sick and keep up on good therapy practices the better her chances are, so be proactive. Also I know she...
  7. P

    newborn diagnosed

    As far as I've been told, the degree of severity has to do with the individual as well as the prevention of illness and good therapy practices. The more you prevent your child from getting sick and keep up on good therapy practices the better her chances are, so be proactive. Also I know she...
  8. P

    runny nose

    I posted this somewhere else, but would like to start a conversation since this is something that has been bugging me for a while. My 3 yr old has had a runny nose since birth and constantly had trouble nursing, bottle drinking and even now as she drinks out of her sippy cup, she can barely...
  9. P

    runny nose

    I posted this somewhere else, but would like to start a conversation since this is something that has been bugging me for a while. My 3 yr old has had a runny nose since birth and constantly had trouble nursing, bottle drinking and even now as she drinks out of her sippy cup, she can barely...
  10. P

    runny nose

    I posted this somewhere else, but would like to start a conversation since this is something that has been bugging me for a while. My 3 yr old has had a runny nose since birth and constantly had trouble nursing, bottle drinking and even now as she drinks out of her sippy cup, she can barely...
  11. P

    Teacher 'outed' my daughter!

    <div class="FTQUOTE"><begin quote>. I thought I was a perfect parent too when all I had was one child and he was 2 or 3 years old... heck, where's the challenge in that? </end quote></div> I personally think this is a little rude, my children are young and I believe anybody with an experience...
  12. P

    Teacher 'outed' my daughter!

    <div class="FTQUOTE"><begin quote>. I thought I was a perfect parent too when all I had was one child and he was 2 or 3 years old... heck, where's the challenge in that? </end quote></div> I personally think this is a little rude, my children are young and I believe anybody with an experience...
  13. P

    Teacher 'outed' my daughter!

    <div class="FTQUOTE"><begin quote>. I thought I was a perfect parent too when all I had was one child and he was 2 or 3 years old... heck, where's the challenge in that? </end quote></div> I personally think this is a little rude, my children are young and I believe anybody with an experience...
  14. P

    Sinus issues

    I'm curious about the symptoms your son has been having. My 3 yr old has had a runny nose since birth and constantly had trouble nursing, bottle drinking and even now as she drinks out of her sippy cup, she can barely breathe. She's a horrible sleeper and is constantly waking up. Does this sound...
  15. P

    Sinus issues

    I'm curious about the symptoms your son has been having. My 3 yr old has had a runny nose since birth and constantly had trouble nursing, bottle drinking and even now as she drinks out of her sippy cup, she can barely breathe. She's a horrible sleeper and is constantly waking up. Does this sound...
  16. P

    Sinus issues

    I'm curious about the symptoms your son has been having. My 3 yr old has had a runny nose since birth and constantly had trouble nursing, bottle drinking and even now as she drinks out of her sippy cup, she can barely breathe. She's a horrible sleeper and is constantly waking up. Does this sound...
  17. P

    Hospital Tune-ups

    As far as I knew, tune-ups come along whenever treatment at home is not adequate ie. CPT and tobi, to shake an infection and lung health is deteriorating. I've never heard of being admitted to the hospital every 3-4 months for a tune-up, is it considered preventative maintenance? I just met a 45...
  18. P

    Hospital Tune-ups

    As far as I knew, tune-ups come along whenever treatment at home is not adequate ie. CPT and tobi, to shake an infection and lung health is deteriorating. I've never heard of being admitted to the hospital every 3-4 months for a tune-up, is it considered preventative maintenance? I just met a 45...
  19. P

    Hospital Tune-ups

    As far as I knew, tune-ups come along whenever treatment at home is not adequate ie. CPT and tobi, to shake an infection and lung health is deteriorating. I've never heard of being admitted to the hospital every 3-4 months for a tune-up, is it considered preventative maintenance? I just met a 45...
  20. P

    vest

    Our daughter was diagnosed at the beginning of September and we recieved our vest late October. The moment we started treatment with her, I knew there had to be a better way and work my butt off to get one. Our church had a fundraiser and raised all the money to purchase it. Ainsley was 2 1/2...
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