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Our DD had a rectal prolapse before dx at age 3. The only time a rectal exam has been done was right after the prolapse, at the pediatrician's. This was still before the CF dx. There has never been a rectal exam done at any of the CF visits. When we took her to a pediatric GI for stomach...

Our DD had a rectal prolapse before dx at age 3. The only time a rectal exam has been done was right after the prolapse, at the pediatrician's. This was still before the CF dx. <br /> <br />There has never been a rectal exam done at any of the CF visits. When we took her to a pediatric GI...

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>MaeFlower</b></i> The genetic testing was sent to the Mayo Clinic & they ran the Amplified test I believe. Which only checks for the 100 most common mutations & they checked to see if she was a carrier. That came back negative. Is...

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>MaeFlower</b></i> The genetic testing was sent to the Mayo Clinic & they ran the Amplified test I believe. Which only checks for the 100 most common mutations & they checked to see if she was a carrier. That came back negative. Is...

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>MaeFlower</b></i> <br /> <br />The genetic testing was sent to the Mayo Clinic & they ran the Amplified test I believe. Which only checks for the 100 most common mutations & they checked to see if she was a carrier. That came back...

Hi Julie - I sent you a PM.

Hi Julie - I sent you a PM.

Hi Julie - I sent you a PM.

Welcome to the forums. You will find help and support here. I am sorry for the tough road that you and Vivien have traveled so far. I can't speak to the laryngomalacia and the jaundice. However, I feel very strongly that a failure to thrive 4 month old with two episodes of pneumonia, GERD...

Welcome to the forums. You will find help and support here. I am sorry for the tough road that you and Vivien have traveled so far. I can't speak to the laryngomalacia and the jaundice. However, I feel very strongly that a failure to thrive 4 month old with two episodes of pneumonia, GERD...

Welcome to the forums. You will find help and support here. I am sorry for the tough road that you and Vivien have traveled so far. <br /> <br />I can't speak to the laryngomalacia and the jaundice. However, I feel very strongly that a failure to thrive 4 month old with two episodes of...

I am very sorry to hear this. I wish you could get the answers you need. Did you determine for sure which Quest test was done (i.e. how many mutations did they test for)? Other than that I don't have any advice but I certainly feel your frustation and am hoping for the best for you and your...

I am very sorry to hear this. I wish you could get the answers you need. Did you determine for sure which Quest test was done (i.e. how many mutations did they test for)? Other than that I don't have any advice but I certainly feel your frustation and am hoping for the best for you and your...

I am very sorry to hear this. I wish you could get the answers you need. <br /> <br />Did you determine for sure which Quest test was done (i.e. how many mutations did they test for)? Other than that I don't have any advice but I certainly feel your frustation and am hoping for the best for...

cff.org actually has some info on this. Apparently they've added a 6th Class. <a target=_blank class=ftalternatingbarlinklarge href="http://www.cff.org/aboutCFFoundation/Publications/connections/archive/March2010/Targeting-Mutations-that-Cause-Cystic-Fibrosis.cfm">CFF.org link re mutation...

cff.org actually has some info on this. Apparently they've added a 6th Class. <a target=_blank class=ftalternatingbarlinklarge href="http://www.cff.org/aboutCFFoundation/Publications/connections/archive/March2010/Targeting-Mutations-that-Cause-Cystic-Fibrosis.cfm">CFF.org link re mutation...

cff.org actually has some info on this. Apparently they've added a 6th Class. <br /> <br /><a target=_blank class=ftalternatingbarlinklarge href="http://www.cff.org/aboutCFFoundation/Publications/connections/archive/March2010/Targeting-Mutations-that-Cause-Cystic-Fibrosis.cfm">CFF.org link re...

Planning - I do as much as possible the night before. Washing lunch box containers/thermoses, laying out snacks for both during school and after-school care. Thinking about what's for breakfast, laying out clothes, etc. Giving myself plenty of time in the morning - I get up two and a half...

Planning - I do as much as possible the night before. Washing lunch box containers/thermoses, laying out snacks for both during school and after-school care. Thinking about what's for breakfast, laying out clothes, etc. Giving myself plenty of time in the morning - I get up two and a half...

Planning - I do as much as possible the night before. Washing lunch box containers/thermoses, laying out snacks for both during school and after-school care. Thinking about what's for breakfast, laying out clothes, etc. <br /> <br />Giving myself plenty of time in the morning - I get up two...