Cystic Fibrosis Forum (EXP)

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  1. A

    Update on hypertonic saline

    Glad to hear she's tolerating it well. My daughter started HS in February, we've also noticed a huge increase in appetite. She's was 35.4 lbs on 2/14 and is now 37 lbs!!! Constantly asking for something to eat, which is unusual for her.
  2. A

    Fundraising idea for kids

    I love this idea!! My sister and I have been talking about doing this at my nephews pre-school. I've contacted M & M's to see if they would donate the Mini's tubes but they won't. Kids love to help and what a fun way to do it <img src="i/expressions/face-icon-small-smile.gif" border="0">
  3. A

    Fundraising idea for kids

    I love this idea!! My sister and I have been talking about doing this at my nephews pre-school. I've contacted M & M's to see if they would donate the Mini's tubes but they won't. Kids love to help and what a fun way to do it <img src="i/expressions/face-icon-small-smile.gif" border="0">
  4. A

    Fundraising idea for kids

    I love this idea!! My sister and I have been talking about doing this at my nephews pre-school. I've contacted M & M's to see if they would donate the Mini's tubes but they won't. Kids love to help and what a fun way to do it <img src="i/expressions/face-icon-small-smile.gif" border="0">
  5. A

    Newborn screening

    It was announced at a fundraiser last night that Michigan has passed legislation to begin newborn screening for CF in September 2007!!! I was lucky enough to thank my senator in person. Please take the time to contact your senator and thank them also if you reside in Michigan.
  6. A

    Newborn screening

    It was announced at a fundraiser last night that Michigan has passed legislation to begin newborn screening for CF in September 2007!!! I was lucky enough to thank my senator in person. Please take the time to contact your senator and thank them also if you reside in Michigan.
  7. A

    Newborn screening

    It was announced at a fundraiser last night that Michigan has passed legislation to begin newborn screening for CF in September 2007!!! I was lucky enough to thank my senator in person. Please take the time to contact your senator and thank them also if you reside in Michigan.
  8. A

    Newborn Screening

    It was announced at a fundraiser last night that Michigan has passed legislation to begin newborn screening for CF in September 2007!!! I was lucky enough to thank my senator in person. Please take the time to contact your senator and thank them also if you reside in Michigan.
  9. A

    Newborn Screening

    It was announced at a fundraiser last night that Michigan has passed legislation to begin newborn screening for CF in September 2007!!! I was lucky enough to thank my senator in person. Please take the time to contact your senator and thank them also if you reside in Michigan.
  10. A

    Newborn Screening

    It was announced at a fundraiser last night that Michigan has passed legislation to begin newborn screening for CF in September 2007!!! I was lucky enough to thank my senator in person. Please take the time to contact your senator and thank them also if you reside in Michigan.
  11. A

    hypertonic saline

    Hi Rebecca, My daughter just started HS last week and we haven't had any problems with it at all. She doesn't complain about the taste, actually said it tasted good. The nurse from the CF Clinic called to ask how things were going and I had to ask her if it was normal for her NOT to cough. I...
  12. A

    hypertonic saline

    Hi Rebecca, My daughter just started HS last week and we haven't had any problems with it at all. She doesn't complain about the taste, actually said it tasted good. The nurse from the CF Clinic called to ask how things were going and I had to ask her if it was normal for her NOT to cough. I...
  13. A

    hypertonic saline

    Hi Rebecca, My daughter just started HS last week and we haven't had any problems with it at all. She doesn't complain about the taste, actually said it tasted good. The nurse from the CF Clinic called to ask how things were going and I had to ask her if it was normal for her NOT to cough. I...
  14. A

    CF Families in Michigan

    The Michigan chapters of the Cystic Fibrosis Foundation will be hosting a Cystic Fibrosis Awareness Luncheon for State Representatives on Tuesday, February 13, 2007 in Lansing. The purpose of the luncheon is to educate our State Representatives about cystic fibrosis and hopefully to include...
  15. A

    CF Families in Michigan

    The Michigan chapters of the Cystic Fibrosis Foundation will be hosting a Cystic Fibrosis Awareness Luncheon for State Representatives on Tuesday, February 13, 2007 in Lansing. The purpose of the luncheon is to educate our State Representatives about cystic fibrosis and hopefully to include...
  16. A

    CF Families in Michigan

    The Michigan chapters of the Cystic Fibrosis Foundation will be hosting a Cystic Fibrosis Awareness Luncheon for State Representatives on Tuesday, February 13, 2007 in Lansing. The purpose of the luncheon is to educate our State Representatives about cystic fibrosis and hopefully to include...
  17. A

    CF Families in Michigan

    The Michigan chapters of the Cystic Fibrosis Foundation will be hosting a Cystic Fibrosis Awareness Luncheon for State Representatives on Tuesday, February 13, 2007 in Lansing. The purpose of the luncheon is to educate our State Representatives about cystic fibrosis and hopefully to include...
  18. A

    CF Families in Michigan

    The Michigan chapters of the Cystic Fibrosis Foundation will be hosting a Cystic Fibrosis Awareness Luncheon for State Representatives on Tuesday, February 13, 2007 in Lansing. The purpose of the luncheon is to educate our State Representatives about cystic fibrosis and hopefully to include...
  19. A

    CF Families in Michigan

    The Michigan chapters of the Cystic Fibrosis Foundation will be hosting a Cystic Fibrosis Awareness Luncheon for State Representatives on Tuesday, February 13, 2007 in Lansing. The purpose of the luncheon is to educate our State Representatives about cystic fibrosis and hopefully to include...
  20. A

    So I'm confused.....???

    I agree with Liza above and it's basically the same thing we do. I've learned to differentiate Abby's coughs. The post nasal drip cough, the dry throat cough, the gunky, need medicine cough. I usually give her 4-5 days to get over the gunky cough on her own. If she's not kicking it or it's...
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