Cystic Fibrosis Forum (EXP)

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  1. C

    Hypertonic saline (hts) & electronics

    Get a standalone monitor, keyboard and mouse so you can use your computer while keeping it away from the neb!
  2. C

    Hypertonic saline (hts) & electronics

    Get a standalone monitor, keyboard and mouse so you can use your computer while keeping it away from the neb!
  3. C

    Night sweats, reflux and hemoptysis

    <div class="FTQUOTE"><begin quote><i>Originally posted by: <b>UNCLoveCF</b></i> CFsucks: You have not posted a reply recently and I would like to know what your GI doctor said about your reflux symptoms and correlation (if any) to hemoptysis.</end quote> I know that acid reflux is the reason why...
  4. C

    Night sweats, reflux and hemoptysis

    <div class="FTQUOTE"><begin quote><i>Originally posted by: <b>UNCLoveCF</b></i> CFsucks: You have not posted a reply recently and I would like to know what your GI doctor said about your reflux symptoms and correlation (if any) to hemoptysis.</end quote> I know that acid reflux is the reason why...
  5. C

    Night sweats, reflux and hemoptysis

    I confirm that acid reflux is a side effect of Prednisone. My doctor gave me a prescription of Zantac to take 30 minutes before I take Prednisone even though I never had acid reflux.
  6. C

    Night sweats, reflux and hemoptysis

    I confirm that acid reflux is a side effect of Prednisone. My doctor gave me a prescription of Zantac to take 30 minutes before I take Prednisone even though I never had acid reflux.
  7. C

    What's your lung function and what can you do with it?

    Right now, there is little I can do or am interested in doing. Anything that would interest me is well beyond what I can do. It is a pain, because I was very active and energetic when I was younger and I loved being physically active. Doing my bed and cleaning the bath are examples of things...
  8. C

    What's your lung function and what can you do with it?

    Right now, there is little I can do or am interested in doing. Anything that would interest me is well beyond what I can do. It is a pain, because I was very active and energetic when I was younger and I loved being physically active. Doing my bed and cleaning the bath are examples of things...
  9. C

    Pleurisy or lung inflammation

    Also, I had episodes of pleurisy that were so painful that 2 tablets of ibuprophen barely took the edge off.
  10. C

    Pleurisy or lung inflammation

    Also, I had episodes of pleurisy that were so painful that 2 tablets of ibuprophen barely took the edge off.
  11. C

    Pleurisy or lung inflammation

    I have that rather often. I would say once every 2-3 months. The frequency and intensity varies. Usually, an episode of pleurisy/inflammation will be followed/relieved by an episode of hemoptysis. It was much worse before I had a bilateral embolization to fix my oversized lung arteries (my right...
  12. C

    Pleurisy or lung inflammation

    I have that rather often. I would say once every 2-3 months. The frequency and intensity varies. Usually, an episode of pleurisy/inflammation will be followed/relieved by an episode of hemoptysis. It was much worse before I had a bilateral embolization to fix my oversized lung arteries (my right...
  13. C

    What's your lung function and what can you do with it?

    The weirdest is the sick/not sick dichotomy that appears. You are sick, in the sense that your body malfunctions and bends your will. Yet, if you just sit there and do nothing, you don't feel the restrictions that the disease puts on your body, so you don't feel sick. For the restrictions that...
  14. C

    What's your lung function and what can you do with it?

    The weirdest is the sick/not sick dichotomy that appears. You are sick, in the sense that your body malfunctions and bends your will. Yet, if you just sit there and do nothing, you don't feel the restrictions that the disease puts on your body, so you don't feel sick. For the restrictions that...
  15. C

    What's your lung function and what can you do with it?

    Last time I think I tested at 27%. I don't do much. I stopped college 2 years ago because I was getting hospitalized every session which made things very difficult to deal with. I am now on disability. I have been sitting on my skinny behind in front of the computer since then. I blame my...
  16. C

    What's your lung function and what can you do with it?

    Last time I think I tested at 27%. I don't do much. I stopped college 2 years ago because I was getting hospitalized every session which made things very difficult to deal with. I am now on disability. I have been sitting on my skinny behind in front of the computer since then. I blame my...
  17. C

    My experience with Levaquin

    Background : I have 2 pseudomonas strains. They both show in vitro resistance to everything I can be given in intraveinous therapy. They are sensitive to Tazocin, but I'm allergic to it. They used to be very sensitive in vitro and in vivo to Ceftazidime, but now they both seem to have developped...
  18. C

    My experience with Levaquin

    Background : I have 2 pseudomonas strains. They both show in vitro resistance to everything I can be given in intraveinous therapy. They are sensitive to Tazocin, but I'm allergic to it. They used to be very sensitive in vitro and in vivo to Ceftazidime, but now they both seem to have developped...
  19. C

    Vertex 809 trial

    I read in the most recent issue of ACFCQ's SVB magazine that VX-809 is not very effective when used alone, but that there may be hope if used with Ivacaftor which helps the protein reach the surface of the cell. But I think it was already known... and someone else on the forum said that so far...
  20. C

    Vertex 809 trial

    I read in the most recent issue of ACFCQ's SVB magazine that VX-809 is not very effective when used alone, but that there may be hope if used with Ivacaftor which helps the protein reach the surface of the cell. But I think it was already known... and someone else on the forum said that so far...
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