Cystic Fibrosis Forum (EXP)

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  1. C

    how many times do you take pulmozyme

    It has always been once a day too, ever since I started taking it when I was 6.
  2. C

    First CF Hemoptysis

    Basically, Pulmozym and HS can cause hemoptysis by causing lung inflammation. Note that chest pain is listed too as a side effect for Pulmozym (no clue about HS), which is another indication that it can cause an inflammatory reaction. You say that you were feeling heavy, I assume you had more...
  3. C

    First CF Hemoptysis

    Basically, Pulmozym and HS can cause hemoptysis by causing lung inflammation. Note that chest pain is listed too as a side effect for Pulmozym (no clue about HS), which is another indication that it can cause an inflammatory reaction. You say that you were feeling heavy, I assume you had more...
  4. C

    Read this! Aggressive antibiotic treatments may not always be the best answer

    First, my own testimony.In the last 4 years, I had something like 6 courses of IV antibiotics. It is my opinion that I did not need most of them. I was pretty much stable. Not a high stable, but stable nonetheless. I had been around 40%-37% FEV1 for at least 2 years.What was happening is that...
  5. C

    Read this! Aggressive antibiotic treatments may not always be the best answer

    First, my own testimony.In the last 4 years, I had something like 6 courses of IV antibiotics. It is my opinion that I did not need most of them. I was pretty much stable. Not a high stable, but stable nonetheless. I had been around 40%-37% FEV1 for at least 2 years.What was happening is that...
  6. C

    Resistant Strains

    Your PA community might be a good thing in this case. Many different bacterias means more competition. Likely your PA is keeping your Achromabacter low and in check. You should read this article : <a...
  7. C

    Resistant Strains

    Your PA community might be a good thing in this case. Many different bacterias means more competition. Likely your PA is keeping your Achromabacter low and in check. You should read this article : <a...
  8. C

    No more PA

    No, the cause of mucus in the lungs is the defective CFTR proteins. I would think that the same... or close to the same amount of mucus would be produced, with the exception that it is not infected. I wouldn't know though, I had PA my whole life.
  9. C

    No more PA

    No, the cause of mucus in the lungs is the defective CFTR proteins. I would think that the same... or close to the same amount of mucus would be produced, with the exception that it is not infected. I wouldn't know though, I had PA my whole life.
  10. C

    Children and colloidal silver

    If you do nebulize it, be VERY attentive to any sign of wheezing, which would mean that it caused inflammation.
  11. C

    Children and colloidal silver

    If you do nebulize it, be VERY attentive to any sign of wheezing, which would mean that it caused inflammation.
  12. C

    Alternative treatments for MRSA

    I posted this in another thread but I think I should post it here too. I have inhaled Advanced Colloidal Silver from Utopia Silver twice. The first time was 2 years ago. The second time was a month ago. I had ordered 2 bottles and I opened a new one to use it in inhalation last month to be on...
  13. C

    Silver and CF

    I have inhaled Advanced Colloidal Silver from Utopia silver twice. The first time was 2 years ago. The second time was a month ago. I had ordered 2 bottles and I opened a new one to use it in inhalation last month to be on the safe side. It didn't go well. My lungs reacted to it and became...
  14. C

    Silver and CF

    I have inhaled Advanced Colloidal Silver from Utopia silver twice. The first time was 2 years ago. The second time was a month ago. I had ordered 2 bottles and I opened a new one to use it in inhalation last month to be on the safe side. It didn't go well. My lungs reacted to it and became...
  15. C

    Does my daughter's nebulizer suck?

    I think you cannot go wrong using the Pari nebs. They were recommended for Tobi and Pulmozym when it came out.
  16. C

    Does my daughter's nebulizer suck?

    I think you cannot go wrong using the Pari nebs. They were recommended for Tobi and Pulmozym when it came out.
  17. C

    Big advancement in the fight against cystic fibrosis

    <div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Anomie</b></i>Like they would know something about it that I didn't.</end quote> lol I know right...
  18. C

    Big advancement in the fight against cystic fibrosis

    <div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Anomie</b></i>Like they would know something about it that I didn't.</end quote> lol I know right...
  19. C

    Hypertonic saline (hts) & electronics

    <div class="FTQUOTE"><begin quote><em>Originally posted by: <strong>hammerpocket</strong></em> I've had bad luck with optical (DVD/CD) drives in my computers going bad. I suspect it has something to do with the nebulized meds, especially the sticky antibiotics. (I don't use HTS.) I now use an...
  20. C

    Hypertonic saline (hts) & electronics

    <div class="FTQUOTE"><begin quote><em>Originally posted by: <strong>hammerpocket</strong></em> I've had bad luck with optical (DVD/CD) drives in my computers going bad. I suspect it has something to do with the nebulized meds, especially the sticky antibiotics. (I don't use HTS.) I now use an...
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