Cystic Fibrosis Forum (EXP)

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  1. M

    Male/Female Perspective of CF

    That was adorable! such a "lift me up."
  2. M

    Eva got her wings

    oh i cant even tell you how bad this saddens me. i am thankful that she is in a much better place, but it sure is hard to love someone (even if you never got to meet them) and have to let them go. i am praying for her family and friends and all the many many many people affected by her beautiful...
  3. M

    Eva got her wings

    oh i cant even tell you how bad this saddens me. i am thankful that she is in a much better place, but it sure is hard to love someone (even if you never got to meet them) and have to let them go. i am praying for her family and friends and all the many many many people affected by her beautiful...
  4. M

    Eva got her wings

    oh i cant even tell you how bad this saddens me. i am thankful that she is in a much better place, but it sure is hard to love someone (even if you never got to meet them) and have to let them go. i am praying for her family and friends and all the many many many people affected by her beautiful...
  5. M

    Eva got her wings

    oh i cant even tell you how bad this saddens me. i am thankful that she is in a much better place, but it sure is hard to love someone (even if you never got to meet them) and have to let them go. i am praying for her family and friends and all the many many many people affected by her beautiful...
  6. M

    Eva got her wings

    oh i cant even tell you how bad this saddens me. i am thankful that she is in a much better place, but it sure is hard to love someone (even if you never got to meet them) and have to let them go. i am praying for her family and friends and all the many many many people affected by her beautiful...
  7. M

    I need help please!

    i am so sorry to hear that you and your wife are going through this right now! I do not really have any info to give you other than i know i have grown a certain bacteria that my doc told me is in the family of tuberculosis. I got sick really fats all at once. I was treated with strong iv...
  8. M

    I need help please!

    i am so sorry to hear that you and your wife are going through this right now! I do not really have any info to give you other than i know i have grown a certain bacteria that my doc told me is in the family of tuberculosis. I got sick really fats all at once. I was treated with strong iv...
  9. M

    I need help please!

    i am so sorry to hear that you and your wife are going through this right now! I do not really have any info to give you other than i know i have grown a certain bacteria that my doc told me is in the family of tuberculosis. I got sick really fats all at once. I was treated with strong iv...
  10. M

    I need help please!

    i am so sorry to hear that you and your wife are going through this right now! I do not really have any info to give you other than i know i have grown a certain bacteria that my doc told me is in the family of tuberculosis. I got sick really fats all at once. I was treated with strong iv...
  11. M

    I need help please!

    i am so sorry to hear that you and your wife are going through this right now! I do not really have any info to give you other than i know i have grown a certain bacteria that my doc told me is in the family of tuberculosis. I got sick really fats all at once. I was treated with strong iv...
  12. M

    Hemoptysis

    yes i also have hemoptysis. i have had it for 10 years now. i am 24 years old. i thought i would respond because this is the biggest part of my struggle with c.f. i know how scary it can be and frusturating to hav e to stop treatments. i myself stop treatment hypertonic saline and the vest...
  13. M

    Hemoptysis

    yes i also have hemoptysis. i have had it for 10 years now. i am 24 years old. i thought i would respond because this is the biggest part of my struggle with c.f. i know how scary it can be and frusturating to hav e to stop treatments. i myself stop treatment hypertonic saline and the vest...
  14. M

    Hemoptysis

    yes i also have hemoptysis. i have had it for 10 years now. i am 24 years old. i thought i would respond because this is the biggest part of my struggle with c.f. i know how scary it can be and frusturating to hav e to stop treatments. i myself stop treatment hypertonic saline and the vest...
  15. M

    Hemoptysis

    yes i also have hemoptysis. i have had it for 10 years now. i am 24 years old. i thought i would respond because this is the biggest part of my struggle with c.f. i know how scary it can be and frusturating to hav e to stop treatments. i myself stop treatment hypertonic saline and the vest...
  16. M

    Hemoptysis

    yes i also have hemoptysis. i have had it for 10 years now. i am 24 years old. i thought i would respond because this is the biggest part of my struggle with c.f. i know how scary it can be and frusturating to hav e to stop treatments. i myself stop treatment hypertonic saline and the vest...
  17. M

    I am in hospital

    well keep your hopes high! i was diagnosed 3 years ago with B-cepacia as well, but after further culturing they found out it was indeed in the family of B-Cepacia but was in fact called "pandorea" (not sure if spelling is correct) which they do not know much about...but believe it is not severe...
  18. M

    I am in hospital

    well keep your hopes high! i was diagnosed 3 years ago with B-cepacia as well, but after further culturing they found out it was indeed in the family of B-Cepacia but was in fact called "pandorea" (not sure if spelling is correct) which they do not know much about...but believe it is not severe...
  19. M

    I am in hospital

    well keep your hopes high! i was diagnosed 3 years ago with B-cepacia as well, but after further culturing they found out it was indeed in the family of B-Cepacia but was in fact called "pandorea" (not sure if spelling is correct) which they do not know much about...but believe it is not severe...
  20. M

    I am in hospital

    well keep your hopes high! i was diagnosed 3 years ago with B-cepacia as well, but after further culturing they found out it was indeed in the family of B-Cepacia but was in fact called "pandorea" (not sure if spelling is correct) which they do not know much about...but believe it is not severe...
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