Cystic Fibrosis Forum (EXP)

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  1. M

    I am in hospital

    well keep your hopes high! i was diagnosed 3 years ago with B-cepacia as well, but after further culturing they found out it was indeed in the family of B-Cepacia but was in fact called "pandorea" (not sure if spelling is correct) which they do not know much about...but believe it is not severe...
  2. M

    Praying for Eva (65_redroses)

    I have been reading her journal as well...i am speechless...she is the most amazing person i have ever seen, and i have only seen her through a computer screen. There is something undeniably special and radiant about her! her love for life and her fun spirit. i will never be the same after...
  3. M

    Praying for Eva (65_redroses)

    I have been reading her journal as well...i am speechless...she is the most amazing person i have ever seen, and i have only seen her through a computer screen. There is something undeniably special and radiant about her! her love for life and her fun spirit. i will never be the same after...
  4. M

    Praying for Eva (65_redroses)

    I have been reading her journal as well...i am speechless...she is the most amazing person i have ever seen, and i have only seen her through a computer screen. There is something undeniably special and radiant about her! her love for life and her fun spirit. i will never be the same after...
  5. M

    Praying for Eva (65_redroses)

    I have been reading her journal as well...i am speechless...she is the most amazing person i have ever seen, and i have only seen her through a computer screen. There is something undeniably special and radiant about her! her love for life and her fun spirit. i will never be the same after...
  6. M

    Praying for Eva (65_redroses)

    I have been reading her journal as well...i am speechless...she is the most amazing person i have ever seen, and i have only seen her through a computer screen. There is something undeniably special and radiant about her! her love for life and her fun spirit. i will never be the same after...
  7. M

    preventing DIOS

    i also have scarring and adhesions from prior meconium ileus removal in my intestines as a newborn... and it has caused me severe blockages in the past too. i take miralax to try and keep things moving, but the docs will also give me Golytely. (pronounced "go lightly") haha thats an oxymoron...
  8. M

    preventing DIOS

    i also have scarring and adhesions from prior meconium ileus removal in my intestines as a newborn... and it has caused me severe blockages in the past too. i take miralax to try and keep things moving, but the docs will also give me Golytely. (pronounced "go lightly") haha thats an oxymoron...
  9. M

    preventing DIOS

    i also have scarring and adhesions from prior meconium ileus removal in my intestines as a newborn... and it has caused me severe blockages in the past too. i take miralax to try and keep things moving, but the docs will also give me Golytely. (pronounced "go lightly") haha thats an oxymoron...
  10. M

    preventing DIOS

    i also have scarring and adhesions from prior meconium ileus removal in my intestines as a newborn... and it has caused me severe blockages in the past too. i take miralax to try and keep things moving, but the docs will also give me Golytely. (pronounced "go lightly") haha thats an oxymoron...
  11. M

    preventing DIOS

    i also have scarring and adhesions from prior meconium ileus removal in my intestines as a newborn... and it has caused me severe blockages in the past too. i take miralax to try and keep things moving, but the docs will also give me Golytely. (pronounced "go lightly") haha thats an oxymoron...
  12. M

    Hemoptysis success story

    it can be anywhere from a few tablespoons to half a cup. Its pure red blood and comes out with a vengeance! it is horrifying and you never know when it ma happen. some menstural cycles i dont do it but evrytime i have done it (which is too much to count over the last 10 yrs) it has been while i...
  13. M

    Hemoptysis success story

    it can be anywhere from a few tablespoons to half a cup. Its pure red blood and comes out with a vengeance! it is horrifying and you never know when it ma happen. some menstural cycles i dont do it but evrytime i have done it (which is too much to count over the last 10 yrs) it has been while i...
  14. M

    Hemoptysis success story

    it can be anywhere from a few tablespoons to half a cup. Its pure red blood and comes out with a vengeance! it is horrifying and you never know when it ma happen. some menstural cycles i dont do it but evrytime i have done it (which is too much to count over the last 10 yrs) it has been while i...
  15. M

    Hemoptysis success story

    it can be anywhere from a few tablespoons to half a cup. Its pure red blood and comes out with a vengeance! it is horrifying and you never know when it ma happen. some menstural cycles i dont do it but evrytime i have done it (which is too much to count over the last 10 yrs) it has been while i...
  16. M

    Hemoptysis success story

    it can be anywhere from a few tablespoons to half a cup. Its pure red blood and comes out with a vengeance! it is horrifying and you never know when it ma happen. some menstural cycles i dont do it but evrytime i have done it (which is too much to count over the last 10 yrs) it has been while i...
  17. M

    Hemoptysis success story

    me too!!! p.s. also it is a good for of birth control! It differs from the progesterone only pill in that the levels are much higher that it completely stops your ovaries (therefore completely effective) . And i am proned to blood clots through picc lines so regular birth control with estrogen...
  18. M

    Hemoptysis success story

    me too!!! p.s. also it is a good for of birth control! It differs from the progesterone only pill in that the levels are much higher that it completely stops your ovaries (therefore completely effective) . And i am proned to blood clots through picc lines so regular birth control with estrogen...
  19. M

    Hemoptysis success story

    me too!!! p.s. also it is a good for of birth control! It differs from the progesterone only pill in that the levels are much higher that it completely stops your ovaries (therefore completely effective) . And i am proned to blood clots through picc lines so regular birth control with estrogen...
  20. M

    Hemoptysis success story

    me too!!! p.s. also it is a good for of birth control! It differs from the progesterone only pill in that the levels are much higher that it completely stops your ovaries (therefore completely effective) . And i am proned to blood clots through picc lines so regular birth control with estrogen...
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