Search results

ALL I DO IS RUN IT UNDER HOT WATER, RINSE IT OUT, AIR DRY ON A PAPER TOWEL... 1X WEEK I PUT IN LARGE BOWL W/ WHITE VINGAR AND WATER FOR 1 HOUR JUST TO DISINFECT... ITS SIMPLE, DONT GET TOO MANY CHEMACALS IN IT, SOMETIMES THEY DONT COME COME OUT... HOT WATER IN FINE... THATS MY ADVICE...

ALL I DO IS RUN IT UNDER HOT WATER, RINSE IT OUT, AIR DRY ON A PAPER TOWEL... 1X WEEK I PUT IN LARGE BOWL W/ WHITE VINGAR AND WATER FOR 1 HOUR JUST TO DISINFECT... ITS SIMPLE, DONT GET TOO MANY CHEMACALS IN IT, SOMETIMES THEY DONT COME COME OUT... HOT WATER IN FINE... THATS MY ADVICE...

I TAKE IT 3X A WEEK. MON, WEDN. FRIDAY FOR ABOUT 1 YEAR NOW.. MY DR SAID IT HELPS STOP WITH THE GROWTH OF BACTERIA IN CF PATIENTS...

I TAKE IT 3X A WEEK. MON, WEDN. FRIDAY FOR ABOUT 1 YEAR NOW.. MY DR SAID IT HELPS STOP WITH THE GROWTH OF BACTERIA IN CF PATIENTS...

THANKS FOR THE INFO..

PLEASE HELP ME W/ THEIS, EVERYONE TELLS ME I SHOULD BE TAKING THE OMEGA 3 FOR OVERALL GOOD HELP. THEY SAY IT WOULD HELP ME FEEL BETTER AND HELP W/ LUNG FUNCTION.. NOW MY QUESTION IS... DOES ANYONE W/ CF TAKE IT? EVEN THOUGH WE ARE ON ANTIBIOTICS LIKE CIPRO. ZITHROMAX. ALL THE TIME... CAN YOU MIX...

HI, I WOULD ADVISE TO TRY ADVIL OR MOTRIN FOR INFANTS.. ITS THE SAME AS PEOPLE WITH CF AN ADVIL HAS A ANTINFLAMAORTY IN IT THAT HELPS WITH TIGHTNESS, SWELLING. SO IF YOUR SON HAS A COLD AND IS CONGESTED TRY MOTRIN, I SWEAR BY IT IT WILL HELP KEEP EVERYTHING OPEN SO THE CONGESTION CAN BREAK UP...

I USE GOOGLE TOO... I LOVE THAT SITE... THATS HOW I FOUND THIS SITE!

I AGREE WITH YOU, WHAT THE HECK... I DO TAKE A ANTIDEPRESENT EFFEXOR ... 1 EVERY DAY AND IM TELLING THATS LIKE MY HAPPY PILL!!!!LOL WITH BATTLES OF CF AND JUST EVERY DAY LIFE I USED TO BE IN TEARS RAGE. WHEN MY DOC. GAVE IT TO ME I WAS LIKE ANOTHER ''PILL'' BUT I LOVE IT. MY COFFEE AND EFFEXOR...

JUST A QUSTION AND ANSWER>>> WELL ASIDE FROM CF. I GET SIACTIC IN MY BACK ... NOT FROM CF.. I THINK ITS FROM CARRYING MY SON AROUND TO MUCH ON MY HIP.. I SPOILED HIM LIKE THAT. BUT ANYWAY MY PRIMARY DR.. NOT MY CF DR, GAVE MY VICOPROFEN. A PIAN KILLER WITH ADVIL.. I DONT TAKE IT ALL THE TME...

WELL IM 29 WITH CF, A WIFE A MOM, I AM 5-6 A WEIGH 145 LBS... I KNOW ITS ALOT FOR A CF PERSON, BUT THATS THE ONE THING WITH CF THAT I DIDNT HAVE A PROBLEM WITH... MY WEIGHT.. THE THING THAT GETS ME, IS WHEN MY SON GETS ALL THESE RUNNY NOSES, COUGHS AND KIDS STUFF, CAUSE HIS BEING SICK IS...

THANKS, MY DR NEVER MENTIONED A BUSTED VESSEL SHE JUST WOULD TAKE AN XRAY, GIVE ME VIT K AND CIPRO AND SEND ME ON MY WAY, BUT IT IS STILL SO SCARY... WHEN IT HAPPENS I FREAK OUT AT THAT MOMENT YOUR LIKE '' OH MY GOD IS THIS IT''' I KNOW ITS PRETTY NORMAL BUT I HAD TO HEAR FROM ALL OF YOU TO...

GOD, LISTENING TO ALL THAT, MAKES ME FEEL LIKE WE ARE THE COOTY PEOPLE... I HATE IT ! I KNOW ITS FOR THE BETTER BUT IT JUST SUCKS THAT WE HAVE TO STAY AWAY FROM EACH OTHER,,,, WHAT EXACTY IS CEPACIA , I THINK I HAVE PNUSAMONIS--- SORRY ABOUT THE SPELLING ALL THESE WEIRD BACTERIAS FREAK ME OUT, I...

I NEVER EVEN HEARD OF IT.. AND I GO TO ONE OF THE TOP DR.S IN JERSEY!!!! AND I GO 1X A MONTH FOR PFTS EXC.... IS THIS SOMETHING NOT IN THE US YET. I WOULD LOVE TO KNOW ABOUT IT..

HI MEL HAVING CF WHETHER YOU ARE 11 OR 30 ISNT MUCH DIFFERENT, WE ALL CF'ERS HAVE TO PRETTY MUCH DO THE SAME THING, BUT I CAN TELL YOU, DONT SLACK ON ANY MEDS IT WILL ONLY COME BACK TO BIT YOU IN THE BUT!!!! NOW IS THE TIME TO SET HIGH GOALS AND TAKE EXRTA CARE OF YOURSELF AND IM SURE YOU ONE...

CF AND DIABETIES GO HAND IN HAND, IT IS VERY COMMON TO DEVOPLE SUGAR ESPECAILLY WHEN YOU TAKE LOTS OF MEDS... I NEVER HAD A SUGAR PROBLEM UNTILL I HAD MY SON, NOW I HAVE PRE- DIADBETES, HIGH SUGARS BUT NOT HIGH ENOGH FOR INSULLEN, SO I JUST WATCH WHAT I EAT, AND EAT EVERY COUPLE HOURS, EVEN IF...

THANKS FOR EVERYONES COMMENTS... IM NEW ON THIS SITE AND IVE LEARNED SO MUCH FROM EVERYONE AND KNOW IM NOT ALONE... THANKS JENN

I WOULLD LOVE HEAR THAT ANSWER ... MY BEST FRIEND SWEARS BY ORGANIC BUT DOESNT HAVE CF...SHE ALWAYS TRY TO TELL ME I SHOULD BE THE ONE USING ORGANIC STUFF... IS IT TRUE OR NOT?????

OF ONE MORE THING WHATS THE ICE PACKS AND ICE WATER FOR???

THANKS I NEEDED TO HEAR IM NOT ALONE. THEY NEVER ADMITTED ME FOR BLEEDING BUT DID THE HOME IV THING AND VIT.K I GET ALOT OF STREAKING IN MY MUCUS.. MAKES ME GET DEPRESSED BUT I GOT A 3 YEAR OLD WHO I LIVE AND BREATH FOR... WHAT DOES THE BLOOD ACTUALLY MEAN?