Cystic Fibrosis Forum (EXP)

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  1. M

    Pamidronate

    You need to talk to your doctor about alternatives. They tried to give Jeremy that in the hospital - WITHOUT warning us about it's lovely side effects. We sent it back - no way in hell. You should seriously talk with your doc about alternatives - that kind of pain and vomiting isn't...
  2. M

    Pamidronate

    You need to talk to your doctor about alternatives. They tried to give Jeremy that in the hospital - WITHOUT warning us about it's lovely side effects. We sent it back - no way in hell. You should seriously talk with your doc about alternatives - that kind of pain and vomiting isn't...
  3. M

    Divorce update

    Good riddance indeed. One hopes you are in a state where you can get some nice spousal support... Good luck!
  4. M

    Divorce update

    Good riddance indeed. One hopes you are in a state where you can get some nice spousal support... Good luck!
  5. M

    Divorce update

    Good riddance indeed. One hopes you are in a state where you can get some nice spousal support... Good luck!
  6. M

    Divorce update

    Good riddance indeed. One hopes you are in a state where you can get some nice spousal support... Good luck!
  7. M

    Divorce update

    Good riddance indeed. One hopes you are in a state where you can get some nice spousal support... Good luck!
  8. M

    Divorce update

    Good riddance indeed. One hopes you are in a state where you can get some nice spousal support... Good luck!
  9. M

    Positive sweat test and now maybe not CF?

    Two questions... Which genetic screening was done? Have her parents get a copy of the report explaining what screen was done. It sounds like she is not being seen at a CF Center, (the comment about 80). Where is she being seen?
  10. M

    Positive sweat test and now maybe not CF?

    Two questions... Which genetic screening was done? Have her parents get a copy of the report explaining what screen was done. It sounds like she is not being seen at a CF Center, (the comment about 80). Where is she being seen?
  11. M

    Positive sweat test and now maybe not CF?

    Two questions... Which genetic screening was done? Have her parents get a copy of the report explaining what screen was done. It sounds like she is not being seen at a CF Center, (the comment about 80). Where is she being seen?
  12. M

    Going in for a tune-up and first PICC Line

    Renee, has your daughter been rechecked for the CFRD since she regained most of her FEV1? Being so ill, it would effect her results. Do you have the diagram that Dr. Moran used to explain? As far as PICCs go... Jeremy HATES IVs. Heck, he hates having blood drawn. He hates having a PICC...
  13. M

    Going in for a tune-up and first PICC Line

    Renee, has your daughter been rechecked for the CFRD since she regained most of her FEV1? Being so ill, it would effect her results. Do you have the diagram that Dr. Moran used to explain? As far as PICCs go... Jeremy HATES IVs. Heck, he hates having blood drawn. He hates having a PICC...
  14. M

    Going in for a tune-up and first PICC Line

    Renee, has your daughter been rechecked for the CFRD since she regained most of her FEV1? Being so ill, it would effect her results. Do you have the diagram that Dr. Moran used to explain? As far as PICCs go... Jeremy HATES IVs. Heck, he hates having blood drawn. He hates having a PICC...
  15. M

    CF and the monthly cycle- again, for the ladies...

    From a non-CFers perspective... Period skipping is wonderful. I'm on Seasonale, and I have been since it came on the market a few years ago. The "period" one gets during the placebo week on BCPs isn't a normal period; it is a result of hormone withdrawl. The only reason it was started in the...
  16. M

    CF and the monthly cycle- again, for the ladies...

    From a non-CFers perspective... Period skipping is wonderful. I'm on Seasonale, and I have been since it came on the market a few years ago. The "period" one gets during the placebo week on BCPs isn't a normal period; it is a result of hormone withdrawl. The only reason it was started in the...
  17. M

    CF and the monthly cycle- again, for the ladies...

    From a non-CFers perspective... Period skipping is wonderful. I'm on Seasonale, and I have been since it came on the market a few years ago. The "period" one gets during the placebo week on BCPs isn't a normal period; it is a result of hormone withdrawl. The only reason it was started in the...
  18. M

    Colleen

    I remember her, too. So full of life and now gone long before her time. Breathe easy, Colleen.
  19. M

    Colleen

    I remember her, too. So full of life and now gone long before her time. Breathe easy, Colleen.
  20. M

    Colleen

    I remember her, too. So full of life and now gone long before her time. Breathe easy, Colleen.
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