Cystic Fibrosis Forum (EXP)

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  1. M

    cost of cf carrier testing

    You NEED to appeal to your insurance. This isn't some willy-nilly desire to test! It's to find out if your child has a 50% chance of having CF. Early treatment means so much - talk to your CF clinic, see if they will help you fight it. I would strongly recommend the full Ambry panel for...
  2. M

    cost of cf carrier testing

    You NEED to appeal to your insurance. This isn't some willy-nilly desire to test! It's to find out if your child has a 50% chance of having CF. Early treatment means so much - talk to your CF clinic, see if they will help you fight it. I would strongly recommend the full Ambry panel for...
  3. M

    cost of cf carrier testing

    You NEED to appeal to your insurance. This isn't some willy-nilly desire to test! It's to find out if your child has a 50% chance of having CF. Early treatment means so much - talk to your CF clinic, see if they will help you fight it. I would strongly recommend the full Ambry panel for...
  4. M

    Boo!

    Congrats and welcome home!
  5. M

    Boo!

    Congrats and welcome home!
  6. M

    Boo!

    Congrats and welcome home!
  7. M

    Private Topic Lists

    Well the easiest way to show we dislike the idea is to not sign up for it. If there aren't people in the lists - it will fail. This idea requires the support of the people who post a lot to the forum.
  8. M

    Private Topic Lists

    Well the easiest way to show we dislike the idea is to not sign up for it. If there aren't people in the lists - it will fail. This idea requires the support of the people who post a lot to the forum.
  9. M

    Private Topic Lists

    Well the easiest way to show we dislike the idea is to not sign up for it. If there aren't people in the lists - it will fail. This idea requires the support of the people who post a lot to the forum.
  10. M

    Treatments based on genetics

    I'm sure they are referring to PTC124 - a drug currently in development. It's been shown to partially restore CFTR function for nonsense mutations. From the <a target=_blank class=ftalternatingbarlinklarge href="http://www.ptcbio.com/3.1.1_generic_disorders.aspx">website</a> of PTC...
  11. M

    Treatments based on genetics

    I'm sure they are referring to PTC124 - a drug currently in development. It's been shown to partially restore CFTR function for nonsense mutations. From the <a target=_blank class=ftalternatingbarlinklarge href="http://www.ptcbio.com/3.1.1_generic_disorders.aspx">website</a> of PTC...
  12. M

    Treatments based on genetics

    I'm sure they are referring to PTC124 - a drug currently in development. It's been shown to partially restore CFTR function for nonsense mutations. From the <a target=_blank class=ftalternatingbarlinklarge href="http://www.ptcbio.com/3.1.1_generic_disorders.aspx">website</a> of PTC...
  13. M

    Really silly IVF question

    So I have the most evil moster cramps from hell (so I'm worried about endo - joy).. because of that I'm on Seasonale BC pills. Since we're dealing with CBAVD, there's no reason for us to have ever TTCed the normal way and I love my "only 4 periods a year" existance. When the heck do I go off...
  14. M

    Really silly IVF question

    So I have the most evil moster cramps from hell (so I'm worried about endo - joy).. because of that I'm on Seasonale BC pills. Since we're dealing with CBAVD, there's no reason for us to have ever TTCed the normal way and I love my "only 4 periods a year" existance. When the heck do I go off...
  15. M

    Really silly IVF question

    So I have the most evil moster cramps from hell (so I'm worried about endo - joy).. because of that I'm on Seasonale BC pills. Since we're dealing with CBAVD, there's no reason for us to have ever TTCed the normal way and I love my "only 4 periods a year" existance. When the heck do I go off...
  16. M

    Yay!

    Amy, here's a reminder of the most important grade school lesson you failed to learn - "If you don't have anything nice to say, don't say anything at all." That said - Yay for his carrier results!
  17. M

    Yay!

    Amy, here's a reminder of the most important grade school lesson you failed to learn - "If you don't have anything nice to say, don't say anything at all." That said - Yay for his carrier results!
  18. M

    Yay!

    Amy, here's a reminder of the most important grade school lesson you failed to learn - "If you don't have anything nice to say, don't say anything at all." That said - Yay for his carrier results!
  19. M

    which a/b's cover which bugs?

    A better way to find out is to ask your doc to look at your latest sensitivity report. It should show which antibiotics will work best on the strains of bacteria you grow.
  20. M

    which a/b's cover which bugs?

    A better way to find out is to ask your doc to look at your latest sensitivity report. It should show which antibiotics will work best on the strains of bacteria you grow.
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