Cystic Fibrosis Forum (EXP)

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  1. M

    The Vest and Hotel Stays

    We've never had an issue with it - hotels are fairly well sound insulated, otherwise you'd be hearing *lots* of other things you didn't want to.
  2. M

    The Vest and Hotel Stays

    We've never had an issue with it - hotels are fairly well sound insulated, otherwise you'd be hearing *lots* of other things you didn't want to.
  3. M

    the call!!

    Good luck to both of you!
  4. M

    the call!!

    Good luck to both of you!
  5. M

    the call!!

    Good luck to both of you!
  6. M

    G576A and R668C

    I don't have confirmed CF. They're currently running tests for those two genes on my parents. If one of them has both mutations, I end up a carrier since it would be that both mutations are on the same copy of the chromosome. It's rare but it's happened. If each of my parents have one, then...
  7. M

    G576A and R668C

    I don't have confirmed CF. They're currently running tests for those two genes on my parents. If one of them has both mutations, I end up a carrier since it would be that both mutations are on the same copy of the chromosome. It's rare but it's happened. If each of my parents have one, then...
  8. M

    G576A and R668C

    I don't have confirmed CF. They're currently running tests for those two genes on my parents. If one of them has both mutations, I end up a carrier since it would be that both mutations are on the same copy of the chromosome. It's rare but it's happened. If each of my parents have one, then...
  9. M

    G576A and R668C

    Amy, I don't know what your deal is. I'm sort of aware what this "team" is about, seeing as I'm married to a CF patient. Rightfully so, it's not a team I have ANY desire to join. In fact, it's not a team I EXPECTED to even have a chance of joining. I went for a simple carrier screen, hoping...
  10. M

    G576A and R668C

    Amy, I don't know what your deal is. I'm sort of aware what this "team" is about, seeing as I'm married to a CF patient. Rightfully so, it's not a team I have ANY desire to join. In fact, it's not a team I EXPECTED to even have a chance of joining. I went for a simple carrier screen, hoping...
  11. M

    G576A and R668C

    Amy, I don't know what your deal is. I'm sort of aware what this "team" is about, seeing as I'm married to a CF patient. Rightfully so, it's not a team I have ANY desire to join. In fact, it's not a team I EXPECTED to even have a chance of joining. I went for a simple carrier screen, hoping...
  12. M

    G576A and R668C

    I wasn't supposed to have ANY - it was a carrier screen! My husband has CF. This sucks.
  13. M

    G576A and R668C

    I wasn't supposed to have ANY - it was a carrier screen! My husband has CF. This sucks.
  14. M

    G576A and R668C

    I wasn't supposed to have ANY - it was a carrier screen! My husband has CF. This sucks.
  15. M

    G576A and R668C

    Anyone have both of these mutations? I want to pester you for more information. UPDATE: Testing on my parents showed that the mutations are both on the same chromosome, and I am a carrier.
  16. M

    G576A and R668C

    Anyone have both of these mutations? I want to pester you for more information. UPDATE: Testing on my parents showed that the mutations are both on the same chromosome, and I am a carrier.
  17. M

    G576A and R668C

    Anyone have both of these mutations? I want to pester you for more information. UPDATE: Testing on my parents showed that the mutations are both on the same chromosome, and I am a carrier.
  18. M

    PFT's

    The "box" - once a year. Standard PFTs, every clinic visit.
  19. M

    PFT's

    The "box" - once a year. Standard PFTs, every clinic visit.
  20. M

    PFT's

    The "box" - once a year. Standard PFTs, every clinic visit.
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