Cystic Fibrosis Forum (EXP)

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  1. L

    What to feed a 1 yr old?

    i'm not a toddler but recently i gained quite a bit of weight by eating baby cereal with spoons of full cream milk powder stirred in, and tea/hot chocolate with cream in every day (remember to take lots of enzymes with this or he's gonna suffer). Dairy doesn't agree with everyone and isn't...
  2. L

    What to feed a 1 yr old?

    i'm not a toddler but recently i gained quite a bit of weight by eating baby cereal with spoons of full cream milk powder stirred in, and tea/hot chocolate with cream in every day (remember to take lots of enzymes with this or he's gonna suffer). Dairy doesn't agree with everyone and isn't...
  3. L

    What to feed a 1 yr old?

    i'm not a toddler but recently i gained quite a bit of weight by eating baby cereal with spoons of full cream milk powder stirred in, and tea/hot chocolate with cream in every day (remember to take lots of enzymes with this or he's gonna suffer). Dairy doesn't agree with everyone and isn't...
  4. L

    What to feed a 1 yr old?

    i'm not a toddler but recently i gained quite a bit of weight by eating baby cereal with spoons of full cream milk powder stirred in, and tea/hot chocolate with cream in every day (remember to take lots of enzymes with this or he's gonna suffer). Dairy doesn't agree with everyone and isn't...
  5. L

    What to feed a 1 yr old?

    i'm not a toddler but recently i gained quite a bit of weight by eating baby cereal with spoons of full cream milk powder stirred in, and tea/hot chocolate with cream in every day (remember to take lots of enzymes with this or he's gonna suffer). Dairy doesn't agree with everyone and isn't...
  6. L

    FEV1, O2 Sat with and without exercise

    I thought something was up when I couldn't keep up my stamina despite trying really hard to get fit so I got a sats monitor and tested it myself, to find they always go below 90 when exercising. My FEV1 is 66, resting sats is 91-97 (it varies) and exercising made it drop to 84-89, I even once...
  7. L

    FEV1, O2 Sat with and without exercise

    I thought something was up when I couldn't keep up my stamina despite trying really hard to get fit so I got a sats monitor and tested it myself, to find they always go below 90 when exercising. My FEV1 is 66, resting sats is 91-97 (it varies) and exercising made it drop to 84-89, I even once...
  8. L

    FEV1, O2 Sat with and without exercise

    I thought something was up when I couldn't keep up my stamina despite trying really hard to get fit so I got a sats monitor and tested it myself, to find they always go below 90 when exercising. My FEV1 is 66, resting sats is 91-97 (it varies) and exercising made it drop to 84-89, I even once...
  9. L

    FEV1, O2 Sat with and without exercise

    I thought something was up when I couldn't keep up my stamina despite trying really hard to get fit so I got a sats monitor and tested it myself, to find they always go below 90 when exercising. My FEV1 is 66, resting sats is 91-97 (it varies) and exercising made it drop to 84-89, I even once...
  10. L

    FEV1, O2 Sat with and without exercise

    I thought something was up when I couldn't keep up my stamina despite trying really hard to get fit so I got a sats monitor and tested it myself, to find they always go below 90 when exercising. My FEV1 is 66, resting sats is 91-97 (it varies) and exercising made it drop to 84-89, I even once...
  11. L

    FEV1, O2 Sat with and without exercise

    I thought something was up when I couldn't keep up my stamina despite trying really hard to get fit so I got a sats monitor and tested it myself, to find they always go below 90 when exercising. My FEV1 is 66, resting sats is 91-97 (it varies) and exercising made it drop to 84-89, I even once...
  12. L

    Drop in PFT's Does this sound werid?

    Go for a second opinion with a different clinic. Maybe they see many ill cystics and therefore think you are doing well by comparison, but you are the one living with it so you can tell. Don't play with ur health, ur body tells u when things aren't right, regardless of the 'numbers'. One IV med...
  13. L

    Drop in PFT's Does this sound werid?

    Go for a second opinion with a different clinic. Maybe they see many ill cystics and therefore think you are doing well by comparison, but you are the one living with it so you can tell. Don't play with ur health, ur body tells u when things aren't right, regardless of the 'numbers'. One IV med...
  14. L

    Drop in PFT's Does this sound werid?

    Go for a second opinion with a different clinic. Maybe they see many ill cystics and therefore think you are doing well by comparison, but you are the one living with it so you can tell. Don't play with ur health, ur body tells u when things aren't right, regardless of the 'numbers'. One IV med...
  15. L

    Very confused mother

    It's normal to worry if one had done the right thing, but you can't change the past, so don't beat yourself up on it. I'm sure there are all things we regret doing/not doing in terms of our past treatment. You did the best you could with the resources and knowledge you had at the time. The...
  16. L

    Very confused mother

    It's normal to worry if one had done the right thing, but you can't change the past, so don't beat yourself up on it. I'm sure there are all things we regret doing/not doing in terms of our past treatment. You did the best you could with the resources and knowledge you had at the time. The...
  17. L

    Very confused mother

    It's normal to worry if one had done the right thing, but you can't change the past, so don't beat yourself up on it. I'm sure there are all things we regret doing/not doing in terms of our past treatment. You did the best you could with the resources and knowledge you had at the time. The...
  18. L

    Hospital Tune-ups

    Well I've read (and heard) that if you catch the bacteria soon enough, when you acquire it for the first time as a kid, you can wipe it out totally so yes it is apparently possible. The problem is that Cfers have chronic colonisations of bugs that are very clever and very tough, and have been...
  19. L

    Hospital Tune-ups

    Well I've read (and heard) that if you catch the bacteria soon enough, when you acquire it for the first time as a kid, you can wipe it out totally so yes it is apparently possible. The problem is that Cfers have chronic colonisations of bugs that are very clever and very tough, and have been...
  20. L

    Hospital Tune-ups

    Well I've read (and heard) that if you catch the bacteria soon enough, when you acquire it for the first time as a kid, you can wipe it out totally so yes it is apparently possible. The problem is that Cfers have chronic colonisations of bugs that are very clever and very tough, and have been...
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