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I have CFRD and I am constantly dealing with managing lows. My doc said to eat whatever I want cause us CF'rs need all the fat, carbs etc and then just give myself enough insulin to cover the meal or snack. So I do not eat a certain amount of carbs I just eat whatever and then take insulin. To...
I have CFRD and I am constantly dealing with managing lows. My doc said to eat whatever I want cause us CF'rs need all the fat, carbs etc and then just give myself enough insulin to cover the meal or snack. So I do not eat a certain amount of carbs I just eat whatever and then take insulin. To...
I have CFRD and I am constantly dealing with managing lows. My doc said to eat whatever I want cause us CF'rs need all the fat, carbs etc and then just give myself enough insulin to cover the meal or snack. So I do not eat a certain amount of carbs I just eat whatever and then take insulin. To...
there are assistance programs out there for paying for some of the CF drugs. You can contact Cystic Fibrosis Assistance Program at 1-888-315-4154 they provide assistance for Pulmozyme, Cayston and HTS and then there is PSI who does the tobraymycin at 1-800-366-7741. I use them both! Call them...
there are assistance programs out there for paying for some of the CF drugs. You can contact Cystic Fibrosis Assistance Program at 1-888-315-4154 they provide assistance for Pulmozyme, Cayston and HTS and then there is PSI who does the tobraymycin at 1-800-366-7741. I use them both! Call them...
there are assistance programs out there for paying for some of the CF drugs. You can contact Cystic Fibrosis Assistance Program at 1-888-315-4154 they provide assistance for Pulmozyme, Cayston and HTS and then there is PSI who does the tobraymycin at 1-800-366-7741. I use them both! Call them...
Our walk says you can not come if you have B Cepacia. But I am not afraid to be around any CF'r no matter what they culture as long as we are outside!!! I know B Cepacia is bad but if you are outside in an open environment I do not feel afraid. And I am a total germaphobia and I wear a mask...
Our walk says you can not come if you have B Cepacia. But I am not afraid to be around any CF'r no matter what they culture as long as we are outside!!! I know B Cepacia is bad but if you are outside in an open environment I do not feel afraid. And I am a total germaphobia and I wear a mask...
Our walk says you can not come if you have B Cepacia. But I am not afraid to be around any CF'r no matter what they culture as long as we are outside!!! I know B Cepacia is bad but if you are outside in an open environment I do not feel afraid. And I am a total germaphobia and I wear a mask...
You can try Cystic Fibrosis Assistance Program they have certain drugs they help with but not sure what they do for supplements. Their number is 888-315-4154
You can try Cystic Fibrosis Assistance Program they have certain drugs they help with but not sure what they do for supplements. Their number is 888-315-4154
You can try Cystic Fibrosis Assistance Program they have certain drugs they help with but not sure what they do for supplements. Their number is 888-315-4154
Interesting. Cause Foundation Care said as long as I do one med right after the other which I do the TRIO is so efficient in using all the medication that I would not have to do any cleaning between the meds. I also did talk to them and they said across the board the HTS and Pulmozyme cause the...
Interesting. Cause Foundation Care said as long as I do one med right after the other which I do the TRIO is so efficient in using all the medication that I would not have to do any cleaning between the meds. I also did talk to them and they said across the board the HTS and Pulmozyme cause the...
Interesting. Cause Foundation Care said as long as I do one med right after the other which I do the TRIO is so efficient in using all the medication that I would not have to do any cleaning between the meds. I also did talk to them and they said across the board the HTS and Pulmozyme cause the...
Well it appears I will be having to use the Eflow for the Albuterol and Antibiotic and the Pari Pro Neb with my compressor for Pulmozyme and HTS. I HATE to have to use two machines but this combo makes the less treatment time vs using Eflow for ALL or Pari for all. So I will see how this goes...
Well it appears I will be having to use the Eflow for the Albuterol and Antibiotic and the Pari Pro Neb with my compressor for Pulmozyme and HTS. I HATE to have to use two machines but this combo makes the less treatment time vs using Eflow for ALL or Pari for all. So I will see how this goes...
Well it appears I will be having to use the Eflow for the Albuterol and Antibiotic and the Pari Pro Neb with my compressor for Pulmozyme and HTS. I HATE to have to use two machines but this combo makes the less treatment time vs using Eflow for ALL or Pari for all. So I will see how this goes...
I do Colistin in my eflow but I do not get any weird feeling. Maybe it is breaking up the mucus for you and you are feeling more congested????
Sorry I can not be of more help!
Jennifer 38 with CF and CFRD
I do Colistin in my eflow but I do not get any weird feeling. Maybe it is breaking up the mucus for you and you are feeling more congested????
Sorry I can not be of more help!
Jennifer 38 with CF and CFRD
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