Cystic Fibrosis Forum (EXP)

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  1. M

    VERY funny tech support phone calls for the new site :)

    Having worked tech support... Yes, calls like that are real.
  2. M

    since we're talkin' babies...

    *does the baby dance* Congrats!
  3. M

    since we're talkin' babies...

    *does the baby dance* Congrats!
  4. M

    Need to vent

    Yeah, I'm concerned about the only getting PFTs 1x year and cultures 2x year. Do you have an option of a) seeing another doctor or b) demanding whatever test would determine the aspergillus allergy?
  5. M

    Need to vent

    Yeah, I'm concerned about the only getting PFTs 1x year and cultures 2x year. Do you have an option of a) seeing another doctor or b) demanding whatever test would determine the aspergillus allergy?
  6. M

    information please

    You should make sure that the sweat test will be performed at a CF Center. A list of CF centers can be found at the <a target=new class=ftalternatingbarlinklarge href="http://www.cff.org">CFF website</a>.
  7. M

    information please

    You should make sure that the sweat test will be performed at a CF Center. A list of CF centers can be found at the <a target=new class=ftalternatingbarlinklarge href="http://www.cff.org">CFF website</a>.
  8. M

    has oregano oil changed your routine?

    Wallflower - what doctor are you seeing? (I was sure you were at U of MN - Dr. Dunitz was more than happy to have Jeremy try the HS) -Michelle
  9. M

    has oregano oil changed your routine?

    Wallflower - what doctor are you seeing? (I was sure you were at U of MN - Dr. Dunitz was more than happy to have Jeremy try the HS) -Michelle
  10. M

    JUST GOT HOME FROM THE HOSPITAL

    That's what Google is for. :-)
  11. M

    JUST GOT HOME FROM THE HOSPITAL

    That's what Google is for. :-)
  12. M

    My Hubby's Test Was Negative, Yea!

    Yay for the non-carrier results! I still need to get around to doing that, but with my current crappy health insurance... not so much.
  13. M

    My Hubby's Test Was Negative, Yea!

    Yay for the non-carrier results! I still need to get around to doing that, but with my current crappy health insurance... not so much.
  14. M

    JUST GOT HOME FROM THE HOSPITAL

    Generally, they will give you PFT results in percentage form... meaning standardized to the sex, age, weight, height of the patient. Bad bugs are: Pseudomonas aeruginosa (PA) Methicillin resistant Staphylococcus aureus (MRSA) Burkholderia cepacia (the worst of the bad bugs) Does she currently...
  15. M

    JUST GOT HOME FROM THE HOSPITAL

    Generally, they will give you PFT results in percentage form... meaning standardized to the sex, age, weight, height of the patient. Bad bugs are: Pseudomonas aeruginosa (PA) Methicillin resistant Staphylococcus aureus (MRSA) Burkholderia cepacia (the worst of the bad bugs) Does she currently...
  16. M

    Mannatech Ambrotose

    I'm another in the group advising against Mannatech. They stink of "scam" to me with the marketing practices and the refusal to submit to or apply for grants for standardized testing.
  17. M

    Mannatech Ambrotose

    I'm another in the group advising against Mannatech. They stink of "scam" to me with the marketing practices and the refusal to submit to or apply for grants for standardized testing.
  18. M

    I'm No Scrooge, But Here's What Irks Me

    Wow, if I'd have known your name sooner, supermanfan, I'd have called you out for the massive *insert naughty b word here* I think you are. Really - insulting the memory of a dead man to his widow - the ultimate in uncool. I didn't reply to the original post because the reply I would have made...
  19. M

    I'm No Scrooge, But Here's What Irks Me

    Wow, if I'd have known your name sooner, supermanfan, I'd have called you out for the massive *insert naughty b word here* I think you are. Really - insulting the memory of a dead man to his widow - the ultimate in uncool. I didn't reply to the original post because the reply I would have made...
  20. M

    Ideas for cf family vacation?

    Nice (and pretty close to each other) places to go... San Antonio, Galveston, and Houston Texas. San Antonio has the Riverwalk (which is lots of fun) and the Alamo. Galveston has the beach (we were there in early January, still a bit cold to swim, but we were wading above the knees), the Lone...
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