Cystic Fibrosis Forum (EXP)

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  1. M

    Wanting some more info

    Yes, push to have her tested sooner rather than later. If she has CF - the sooner you start the correct treatment, the better.
  2. M

    Niece having sweat test today..just wondering

    There are a number of posters on this site that had negative sweat tests, but positive genetic screenings. False negatives are very possible with sweat tests. Since your son has digestive problems, and you know you are a carrier, I would also recommend that he have blood tests done. Depending...
  3. M

    Advice for my baby...

    Get tested. You have a family history of CF and your daughter has symptoms. Find a center on the CFF.org website and get your daughter tested (be sure to get it done at a CF center)!
  4. M

    Comment for Miesl

    I would strongly recommend that you immediately and permanently cease any thoughts about or attempts to convert me.
  5. M

    I found this interesting (about me and exercise, trolls need not read)

    Nono, you have it all wrong. Shop smart, shop S-MART. YOU GOT THAT!?!?
  6. M

    Cf and religion

    I have but two words for John, 26, cf. Occam's razor.
  7. M

    Shocked

    Genetics breakdown... Identical twins (or higher order multiple). Since they have the same genetic makeup - it's the same odds as a single birth - one in four (the twins will either both have CF (25%), both be carriers (of the same gene - 50%), or both carry no CF gene at all (25%))...
  8. M

    needing advice

    <div class="FTQUOTE"><begin quote>B/c I mean these are teeny tiny streaks</end quote></div> Are you coughing more frequently and with more force than you used to?
  9. M

    Update on My Mom

    My thoughts are with you and your family.
  10. M

    Orphan drud approval - New Biotic for P.A.

    I am the woman with the linkage... <a target=_blank class=ftalternatingbarlinklarge href="http://www.transaveinc.com/news/2006-3-21.cfm">Transave's Press Release</a>
  11. M

    Looking for advice

    Another thing that might be helpful... have him come here and chat with everyone. We promise we won't tell him any juicy stories about you!
  12. M

    portable gas stove to boil treatment parts

    The other option is to microwave - lots of hotel rooms have one.
  13. M

    What do you take for a multivit?

    Jeremy takes the Source CF, mostly because he hated chewing the ADEKs.
  14. M

    Potty Problems

    In the absense of miralax (which can take 2-3 days to work)... Go Litely. HA! That is the funniest product name ever.
  15. M

    making oregano oil more palatable

    I would say... wash it down afterward with a strongly flavored juice. Concord grape can kill just about any flavor.
  16. M

    Blog Update

    *bump* Me too.
  17. M

    Noisy Nebulizer

    We've had compressors do this before (The SportNeb) - it meant that some of the internal parts had become worn. At the same time, we noticed that the time to do neb treatments had been slowly creeping up. I think it would probably be best to have it taken in for service.
  18. M

    I can't believe........

    Another poster agreeing that the post should not have been locked. Generally, when someone says they're posting it here so it can't be ignored... it means they HAVE tried other methods.
  19. M

    Opinions...

    Write it. Do it now!
  20. M

    You guys are NOT going to believe this

    That is so awesome! Congrats!
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