Cystic Fibrosis Forum (EXP)

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  1. R

    Adult feeding tube placement consideration. Questions!

    G-Tube Advantage II We all are looking to a silver bullet for CF. We all agree we only need a slight improvement in CFTR or other channel to make a difference in our health. Well we will still need a good foundation for good health. Any new therapy will only be as effective as you are healthy...
  2. R

    Adult feeding tube placement consideration. Questions!

    G-Tube Advantage II We all are looking to a silver bullet for CF. We all agree we only need a slight improvement in CFTR or other channel to make a difference in our health. Well we will still need a good foundation for good health. Any new therapy will only be as effective as you are healthy...
  3. R

    Adult feeding tube placement consideration. Questions!

    G-Tube Advantage II <br />We all are looking to a silver bullet for CF. We all agree we only need a slight improvement in CFTR or other channel to make a difference in our health. Well we will still need a good foundation for good health. Any new therapy will only be as effective as you are...
  4. R

    Adult feeding tube placement consideration. Questions!

    Apple Cider Vinegar - Congestion Buster Food Calories Benefit 1 oz Apple Cider Vinegar 10 Clears congestion, helps digestion 3 TBL Honey 180 Concentrated Good Carbs and many nutrients 1 oz Lemon Juice 10 Good for nutrients, congestion and PH ½ tsp Sea Salt Helps with congestion...
  5. R

    Adult feeding tube placement consideration. Questions!

    Apple Cider Vinegar - Congestion Buster Food Calories Benefit 1 oz Apple Cider Vinegar 10 Clears congestion, helps digestion 3 TBL Honey 180 Concentrated Good Carbs and many nutrients 1 oz Lemon Juice 10 Good for nutrients, congestion and PH ½ tsp Sea Salt Helps with congestion...
  6. R

    Adult feeding tube placement consideration. Questions!

    <br />Apple Cider Vinegar - Congestion Buster <br />Food Calories Benefit <br />1 oz Apple Cider Vinegar 10 Clears congestion, helps digestion <br />3 TBL Honey 180 Concentrated Good Carbs and many nutrients <br />1 oz Lemon Juice 10 Good for nutrients, congestion and PH <br /> ½...
  7. R

    Adult feeding tube placement consideration. Questions!

    Night Feeds Food Calories Benefit 1 Cup Rice Flakes 100 Adds Calories, bulk and nutrition 2 TBL Olive Oil 135 Adds Calories and Omega 3's or similar 2 TBL Sunflower seed Butter 200 Adds Calories and Omega 3's or similar 3 TBL Honey 180 Concentrated Good Carbs and many nutrients 8 OZ...
  8. R

    Adult feeding tube placement consideration. Questions!

    Night Feeds Food Calories Benefit 1 Cup Rice Flakes 100 Adds Calories, bulk and nutrition 2 TBL Olive Oil 135 Adds Calories and Omega 3's or similar 2 TBL Sunflower seed Butter 200 Adds Calories and Omega 3's or similar 3 TBL Honey 180 Concentrated Good Carbs and many nutrients 8 OZ...
  9. R

    Adult feeding tube placement consideration. Questions!

    Night Feeds <br /> <br />Food Calories Benefit <br />1 Cup Rice Flakes 100 Adds Calories, bulk and nutrition <br />2 TBL Olive Oil 135 Adds Calories and Omega 3's or similar <br />2 TBL Sunflower seed Butter 200 Adds Calories and Omega 3's or similar <br />3 TBL Honey 180 Concentrated...
  10. R

    Adult feeding tube placement consideration. Questions!

    Tell me the last time you could eat this much high quality food? RECIPE Super Get Going breakfast - High Protein, Low Glycemic Balanced and easily digested. Over 700 calories of easy to digest and low glycemic foods. Compatible foods less likely to rebound or feel full. Gluten Free and...
  11. R

    Adult feeding tube placement consideration. Questions!

    Tell me the last time you could eat this much high quality food? RECIPE Super Get Going breakfast - High Protein, Low Glycemic Balanced and easily digested. Over 700 calories of easy to digest and low glycemic foods. Compatible foods less likely to rebound or feel full. Gluten Free and...
  12. R

    Adult feeding tube placement consideration. Questions!

    Tell me the last time you could eat this much high quality food? <br /> <br />RECIPE <br />Super Get Going breakfast <br /> - High Protein, Low Glycemic Balanced and easily digested. <br />Over 700 calories of easy to digest and low glycemic foods. <br />Compatible foods less likely to...
  13. R

    Adult feeding tube placement consideration. Questions!

    Wow Gretchen how timely your post. I have been re inspired recently to really embrace my G-Tube and not for the obvious reasons. This is a long post so I will split in two. G-Tube Advantage "Let food be your medicine and Medicine be your food" Hippocrates For many years I looked at having to...
  14. R

    Adult feeding tube placement consideration. Questions!

    Wow Gretchen how timely your post. I have been re inspired recently to really embrace my G-Tube and not for the obvious reasons. This is a long post so I will split in two. G-Tube Advantage "Let food be your medicine and Medicine be your food" Hippocrates For many years I looked at having to...
  15. R

    Adult feeding tube placement consideration. Questions!

    Wow Gretchen how timely your post. I have been re inspired recently to really embrace my G-Tube and not for the obvious reasons. This is a long post so I will split in two. <br />G-Tube Advantage <br />"Let food be your medicine and Medicine be your food" Hippocrates <br /> <br /> <br />For...
  16. R

    zenpep packaging

    <P>Glass protects the product better, and with BPA in plastic might be too.</P> <P>HOw is the zenpep?</P> <P> </P>
  17. R

    zenpep packaging

    <P>Glass protects the product better, and with BPA in plastic might be too.</P> <P>HOw is the zenpep?</P> <P></P>
  18. R

    zenpep packaging

    <P><BR>Glass protects the product better, and with BPA in plastic might be too.</P> <P>HOw is the zenpep?</P> <P></P>
  19. R

    vx-661

    <P>Yeah I called a Research clinic that was doing the vx770/809 trials and that trial got put on hold. Wont know until October when they meet with the company.  She did not know why. Ergh. Maybe the vx-661 is moving up.</P> <P> </P> <P> </P>
  20. R

    vx-661

    <P>Yeah I called a Research clinic that was doing the vx770/809 trials and that trialgot put on hold. Wont know until October when they meet with the company.She did not know why. Ergh. Maybe the vx-661 is moving up.</P> <P></P> <P></P>
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