Cystic Fibrosis Forum (EXP)

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  1. R

    vx-661

    <P><BR>Yeah I called a Research clinic that was doing the vx770/809 trials and that trialgot put on hold. Wont know until October when they meet with the company.She did not know why. Ergh. Maybe the vx-661 is moving up.</P> <P></P> <P></P>
  2. R

    CF and IBS?

    <P>For years I was struggling with my stomach. No matter what I did more pills, acid blockers, timing etc. nothing was working.</P> <P>I went to a nutritionist and found out I had gluten sensitivity. Well low and behold gluten is the number one problem for all digestive ailments. From gas...
  3. R

    CF and IBS?

    <P>For years I was struggling with my stomach. No matter what I did more pills, acid blockers, timing etc. nothing was working.</P> <P>I went to a nutritionist and found out I had gluten sensitivity. Well low and behold gluten is the number one problem for all digestive ailments. From gas...
  4. R

    CF and IBS?

    <P><BR>For years I was struggling with my stomach. No matter what I did more pills, acid blockers, timing etc. nothing was working.</P> <P>I went to a nutritionist and found out I had gluten sensitivity. Well low and behold gluten is the number one problem for all digestive ailments. From gas...
  5. R

    Tall CFers?

    I was just in the hosp and saw a guy with cf ad he was the tallest cf'er I'd ever seen well over 6'3" I am 5'8"140lbs my mom is short and my dad tall
  6. R

    Tall CFers?

    I was just in the hosp and saw a guy with cf ad he was the tallest cf'er I'd ever seen well over 6'3" I am 5'8"140lbs my mom is short and my dad tall
  7. R

    Tall CFers?

    I was just in the hosp and saw a guy with cf ad he was the tallest cf'er I'd ever seen well over 6'3" <br />I am 5'8"140lbs my mom is short and my dad tall
  8. R

    SEVERE Acid Reflux

    SEVERE Acid Reflux- go gluten free <P>Hi:</P> <P>I use to be on prilosec, tagament etc for years. My stomach was so bad that I was real sick.</P> <P>I went to a nutritionist and found out I had an allergy to wheat. Told my CF doc and they gave me a test to test gluten antibodies, then a genetic...
  9. R

    SEVERE Acid Reflux

    SEVERE Acid Reflux- go gluten free <P>Hi:</P> <P>I use to be on prilosec, tagament etc for years. My stomach was so bad that I was real sick.</P> <P>I went to a nutritionist and found out I had an allergy to wheat. Told my CF doc and they gave me a test to test gluten antibodies, then a genetic...
  10. R

    SEVERE Acid Reflux

    SEVERE Acid Reflux- go gluten free <P><BR>Hi:</P> <P>I use to be on prilosec, tagament etc for years. My stomach was so bad that I was real sick.</P> <P>I went to a nutritionist and found out I had an allergy to wheat. Told my CF doc and they gave me a test to test gluten antibodies, then a...
  11. R

    Who are you in a nut shell

    who are you in a nut shell Interesting post. Here goes. Rob male 37 y/o 38 in 2 months Live in Los Angeles (lived in East coast 1978-1991) Boston and New Hampshire. Diagnosed when 3 (Failure to thrive) no one else in family has cf Liver Biopsy - to see what else Prior to CF diagnosis - doc...
  12. R

    cf and celiac?

    Interesting. I am glad to find out that there is someone else with these quetions. I would think that the prevalance of CF and celiac are more. There is some info but not alot. The funny thing is that celiac is very underdiagnosed and with Cf I bet that celiac is under the radar because all the...
  13. R

    cf and celiac?

    Interesting. I am glad to find out that there is someone else with these quetions. I would think that the prevalance of CF and celiac are more. There is some info but not alot. The funny thing is that celiac is very underdiagnosed and with Cf I bet that celiac is under the radar because all the...
  14. R

    cf and celiac?

    Interesting. I am glad to find out that there is someone else with these quetions. I would think that the prevalance of CF and celiac are more. There is some info but not alot. The funny thing is that celiac is very underdiagnosed and with Cf I bet that celiac is under the radar because all the...
  15. R

    cf and celiac?

    Interesting. I am glad to find out that there is someone else with these quetions. I would think that the prevalance of CF and celiac are more. There is some info but not alot. The funny thing is that celiac is very underdiagnosed and with Cf I bet that celiac is under the radar because all the...
  16. R

    cf and celiac?

    Interesting. I am glad to find out that there is someone else with these quetions. I would think that the prevalance of CF and celiac are more. There is some info but not alot. The funny thing is that celiac is very underdiagnosed and with Cf I bet that celiac is under the radar because all the...
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