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Unless there's something like pneumonia running around the daycare, I'd definitely say send the kid to daycare. Colds are easy enough to get through with CF or not (though, sure, it's a little harder with CF). And personally, I think it's an EXCELLENT idea to build up some immunity to regular...
There are different ways to do PT. The manual "old-fashioned" way (that I still prefer, by the way) is being pounded on the back, sides, chest, and shoudlers with cupped hands. There's also a thing called the Vest which you put on and it vibrates, and does basically the same thing. There's a...
Seeing a minor cough doesn't really say anything about her condition. CFers can be pretty good about hiding it if we want to. But anyways...Well I'm only 20 right now, but I wanted to comment real quick. When I was born, in 1984, my parents were told I'd never graduate high school because I...
Damn straight, I'm special! lol I'm not against abortion, I think it's always a woman's right, but I hate people that abuse it. If you're going to abort every CF fetus you create, I say try something else. Adoption or sperm donor because obviously both your eggs and swimmers are carriers of...
Okay obviously this is your decision, but why are you sharing that here? Do you really think we (we being CFers and loved ones of CFers) really want to hear that you aborted your baby because it was going to have the same thing I've lived with for 20 years? Not really. So what's the point of...
Once I decided to do it and started, it only took about 4 months. I went much lower calories, yes. And I told you, I didn't really talk to a CF nutritionist. My pulmo doc and my parents knew what I was doing and they were fine with it. I didn't really count calories either, just watched what I ate.
CF nutritionist didn't do anything for me. After I started on birth control a few years ago, I gained 50 lbs in less than a year. And I hated it. I just exercised as much as possible, and stopped eating crap. I still ate meat, and some higher fat stuff, but not empty fat, like cheetos and...
I still mourn the loss of what could've been a healthy life for myself. It's completely fine. But at the same time, you're right, it's much better to know ahead of time that the baby has CF. Too many times I've heard about CFers not knowing until they were toddlers, or teenagers or older and...
The different genes and just different cases make one worse than the other. Also if one smokes and the other doesn't, that could be why. The expectancy (that is, the country's average), is 32. But basically that means half the people die before 32 and half live longer. There aren't different...
As far as showeing, I take baths where the water doesn't go higher than my legs, and I wash with a cloth or whatever. For my hair, I have my boyfriend or my sister wash it for me over the bathtub.
I used to go to the office in elemnetary school to get my enzymes before lunch. After that, once I started junior high and high school, I just stopped telling them. The same nurse was at my high school, but she knew me very well, so she never harassed me. She knew that living with CF my whole...
Jennifer, it changes from person to person. And the last thing I want is to freak you out, but I'm going to tell you the truth as far as I go. I got MRSA when I was 16. And since then I've been on IV meds for lung infections about twice a year. It's happened with other people too, that MRSA...
And just a sidenote... I know the percentages of Caucasians with CF are higher, but that doesn't mean other cultured-people don't get it too. I've met African Americans and Hispanics and whoever else have you with CF before. Just because it's less common doesn't mean it's impossible. Get...
You say Jack had to have a liver transplant... 9 months ago.. and he's 9 months old?? Or did I confuse that? <img src="i/expressions/rose.gif" border="0">
Good luck with the port placement, Kylie. More than anything else, the one thing that bothered me after the incision healed was my tissue getting used to the odd thing in there. But after it got used to it, it's been a breeze, and so worth it. <img src="i/expressions/rose.gif" border="0">
Cepacia really comes from onions? I don't suppose I could get it from eating them, could I? Onions are one of my smelly favorites. Heh. <img src="i/expressions/rose.gif" border="0">
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