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I would just like to say CF family members, including siblings, rule. I never put much thought into it, because I figure it has to be easier to be my sister and my parents because they don't actually deal with the CF firsthand. And this is true, but at the same time... if I think about which...

Keep in mind there are many natural substances that aren't so good to just take at will. Marijuana, for instance. And ephedra. That was the major selling point in those diet pills, it was natural, so it must be safe. Well if it was safe, would people have been dropping dead from it? I think not...

I would be willing to guess that there are lasting effects from a CFer getting MRSA. Any lung infection that a CFer gets causes some kind of damage, and it will happen. There's no way around it, but it's not the end of the world, either. It may just be timing, but I never started going on IV...

One thing that my boyfriend always calls to my attention is how I don't take most stuff for granted. We were out on a walk late one night and it started to rain. I just stood in the rain laughing (I love rain), and it rubbed off on him. He started laughing too, and we ended up just standing in...

I'm not sure, but I heard that CF men can use in vitro, as in you can use his own sperm and have it done IVF and it has a much better chance of working.

I've been left before because of the CF. Or guys have shown interest, and then once they learned I was sick, they backed off. However, personally, I prefer people to know. If whoever I'm with would really leave me because I'm sick, then I don't want to be with them. And though I'm young, you...

Oh and PS--- I actually have asthma too. So she may have been diagnosed with asthma when it's CF... or she may have both. Demand the test be done.

Yup, I have one sister, age 16. She doesn't even carry the gene for CF. So we got both extreme ends.

If you think it might be CF, demand a sweat test. You can never go wrong making sure the tests get done just in case. And try to have it done at a CF center... non-CF-centers do sweat tests all the time, and they get screwed up. When I was born, I had one copy of the most common gene, Delta...

Those aren't questions you will find answers to in a book, haha. I don't know if there is a concrete answer... but I will tell you this : I don't even remember my parents telling me about the CF. I've known since before I can remember that I have it, and what it means. I've known since before I...

Okay, let's see. That's a lot of questions. First of all, any questions of a medical or technical nature, you can ask your doctor, they're very helpful usually. I don't imagine it's anything like being a mom when the baby is born and you just know. This is a lot more technical and a lot less...

Oh... well I don't know what to tell you. I'm not a parent, just a CFer. My sister doesn't have it, but I don't remember her doing anything like that (that's not to say she didn't). And this is no consolation for right now, but one day the "left-out" sibling will be happy she doesn't have it...

Why can't she watch the video with the ones who are doing the treatment?

I wouldn't say waste your wish on a Vest. First of all, not everyone likes them. I know it works for a lot of people, but I personally hated it. Plus, your wish can be used for much more fun stuff. As far as going to get a Vest... My insurance wouldn't cover mine either when I had it, but the...

Some people don't work well with the TOBI, and others don't work well with the Coliston. I personally am a Coliston fan over the TOBI. The TOBI never sat well with me, but I had no trouble with the Coliston, and it usually helped. But from what I've heard others say, Coliston can have side...

Okay, so then I assume that a tattoo less than a year old is more than likely safe from this metal problem? I only got mine last August. <img src="i/expressions/rose.gif" border="0">Thanks. <img src="i/expressions/face-icon-small-smile.gif" border="0">

RE:Your opinion on the term "cystic" or"Cysti" is it offensive to you? My two cents would be that... as long as the doctors, nurses, and whoever else treat me as if I am a person with feelings as opposed to just a pin cushion, or a fun case to come stare at, they can refer to me as whatever...

Oooh I assumed with the stars that you said the "F word." My mistake, sorry Kylie. <img src="i/expressions/face-icon-small-happy.gif" border="0">

The thing with the Vest that annoyed me... first of all, the shaking for half an hour at a time made me sick to my stomach, and kind of disoriented. But the other thing... whoever invented it must've been a guy... because they did not make it with adult females in mind. There is absolutely no...

I have MRSA. Got it when I was 16.. and really haven't had any trouble from it since I was 17. But they still isolate me when I go overnight. My own hospital room, and I can't leave without gowning up, and everyone that comes in has to be really careful. I think (think being the key word, I'm...