Cystic Fibrosis Forum (EXP)

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  1. K

    Newly diagnosed and scared to death

    Take it from a fellow "whatifer" - by all means research and read until you can't stand it anymore (and beware of outdated information that will only scare the pants off you!) The knowledge that you gain will empower you as you go and your family go through your journey. Like you, I also...
  2. K

    Newly diagnosed and scared to death

    Take it from a fellow "whatifer" - by all means research and read until you can't stand it anymore (and beware of outdated information that will only scare the pants off you!) The knowledge that you gain will empower you as you go and your family go through your journey. Like you, I also...
  3. K

    Newly diagnosed and scared to death

    Take it from a fellow "whatifer" - by all means research and read until you can't stand it anymore (and beware of outdated information that will only scare the pants off you!) The knowledge that you gain will empower you as you go and your family go through your journey. Like you, I also...
  4. K

    Newly diagnosed and scared to death

    Take it from a fellow "whatifer" - by all means research and read until you can't stand it anymore (and beware of outdated information that will only scare the pants off you!) The knowledge that you gain will empower you as you go and your family go through your journey. Like you, I also...
  5. K

    Newly diagnosed and scared to death

    Take it from a fellow "whatifer" - by all means research and read until you can't stand it anymore (and beware of outdated information that will only scare the pants off you!) The knowledge that you gain will empower you as you go and your family go through your journey. <br /> <br />Like you...
  6. K

    Looking for Advice

    I know advice about the sweat test may be confusing, especially when that is all that the medical community seems to know about! The sweat test <i>can</i> result in a CF dignosis. In that regard, I don't consider them a waste of time. I don't know the statistics about false negatives where...
  7. K

    Looking for Advice

    I know advice about the sweat test may be confusing, especially when that is all that the medical community seems to know about! The sweat test <i>can</i> result in a CF dignosis. In that regard, I don't consider them a waste of time. I don't know the statistics about false negatives where...
  8. K

    Looking for Advice

    I know advice about the sweat test may be confusing, especially when that is all that the medical community seems to know about! The sweat test <i>can</i> result in a CF dignosis. In that regard, I don't consider them a waste of time. I don't know the statistics about false negatives where...
  9. K

    Looking for Advice

    I know advice about the sweat test may be confusing, especially when that is all that the medical community seems to know about! The sweat test <i>can</i> result in a CF dignosis. In that regard, I don't consider them a waste of time. I don't know the statistics about false negatives where...
  10. K

    Looking for Advice

    I know advice about the sweat test may be confusing, especially when that is all that the medical community seems to know about! The sweat test <i>can</i> result in a CF dignosis. In that regard, I don't consider them a waste of time. I don't know the statistics about false negatives where...
  11. K

    Newly diagnosed and scared to death

    Our daughter was diagnosed at age 3 years and 3 months due to digestive issues. She cultured PA at her first CF clinic visit. They treated with 3 straight rounds of TOBI and also Cipro (oral antibiotic). She has had all clear cultures since! We still do TOBI 28 on and 28 off. No more oral...
  12. K

    Newly diagnosed and scared to death

    Our daughter was diagnosed at age 3 years and 3 months due to digestive issues. She cultured PA at her first CF clinic visit. They treated with 3 straight rounds of TOBI and also Cipro (oral antibiotic). She has had all clear cultures since! We still do TOBI 28 on and 28 off. No more oral...
  13. K

    Newly diagnosed and scared to death

    Our daughter was diagnosed at age 3 years and 3 months due to digestive issues. She cultured PA at her first CF clinic visit. They treated with 3 straight rounds of TOBI and also Cipro (oral antibiotic). She has had all clear cultures since! We still do TOBI 28 on and 28 off. No more oral...
  14. K

    Newly diagnosed and scared to death

    Our daughter was diagnosed at age 3 years and 3 months due to digestive issues. She cultured PA at her first CF clinic visit. They treated with 3 straight rounds of TOBI and also Cipro (oral antibiotic). She has had all clear cultures since! We still do TOBI 28 on and 28 off. No more oral...
  15. K

    Newly diagnosed and scared to death

    Our daughter was diagnosed at age 3 years and 3 months due to digestive issues. She cultured PA at her first CF clinic visit. They treated with 3 straight rounds of TOBI and also Cipro (oral antibiotic). She has had all clear cultures since! We still do TOBI 28 on and 28 off. No more oral...
  16. K

    Possibly changing from pancreatic sufficient to insufficient

    As our daughter's PI became more pronounced (and prior to her dx), symptoms other than her BM's were: she became lethargic and just wanted to lay around (VERY unusual for a three-year old); the muscle tone in her arms and legs was noticeably absent; and she had horrible, horrible stomach cramps...
  17. K

    Possibly changing from pancreatic sufficient to insufficient

    As our daughter's PI became more pronounced (and prior to her dx), symptoms other than her BM's were: she became lethargic and just wanted to lay around (VERY unusual for a three-year old); the muscle tone in her arms and legs was noticeably absent; and she had horrible, horrible stomach cramps...
  18. K

    Possibly changing from pancreatic sufficient to insufficient

    As our daughter's PI became more pronounced (and prior to her dx), symptoms other than her BM's were: she became lethargic and just wanted to lay around (VERY unusual for a three-year old); the muscle tone in her arms and legs was noticeably absent; and she had horrible, horrible stomach cramps...
  19. K

    Possibly changing from pancreatic sufficient to insufficient

    As our daughter's PI became more pronounced (and prior to her dx), symptoms other than her BM's were: she became lethargic and just wanted to lay around (VERY unusual for a three-year old); the muscle tone in her arms and legs was noticeably absent; and she had horrible, horrible stomach cramps...
  20. K

    Possibly changing from pancreatic sufficient to insufficient

    As our daughter's PI became more pronounced (and prior to her dx), symptoms other than her BM's were: she became lethargic and just wanted to lay around (VERY unusual for a three-year old); the muscle tone in her arms and legs was noticeably absent; and she had horrible, horrible stomach cramps...
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