Cystic Fibrosis Forum (EXP)

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  1. L

    Idea for new Category

    That sounds like a good idea
  2. L

    Any advice on night time coughing

    I also sleep propped up. I just put 2 pillows up against the headboard and another little rounded pillow in front of that for back support. I actually sleep like this all the time, not just when I cough. I've slept like that for so many years that it is the most comfortable position for me...
  3. L

    Is this odd?

    I take Ultrase MT20's also. 4 with meals, 2 with snacks. I'm wondering, when does everyone take them? Before of after your meal? My whole life I've been taking them after, now I'm being told to take them before.
  4. L

    Getting to know eachother

    I'm Lindsey, 23, and I live in Irvine, California. I'm engaged too, but my fiancee's name isn't Mike! We are getting married next summer. We both work at a restaurant called Cafe Tu Tu Tango. I'm a server, he's a bartender. I currently go to school, trying to get my degree in Business...
  5. L

    CF CENTERS!!

    Anyone know where to find this list...I'd like to know where my clinic (Long Beach Memorial) stands.
  6. L

    pneumothorax aka. collapsed lung

    I've always wondered what a collapsed lung is. What does it feel like, how does it happen? Are there any signs before it happens?
  7. L

    Sinus Surgery

    I have had sinus surgery 3 times since 1999. I get a bronch at the same time, since I'm already under the anesthesia. For me, the sinus surgery did help, but from what I understand once you've had one you need to have them every couple years. I could be wrong on this, you may want to look...
  8. L

    Doing your vest?

    I just use the little kidney bean shaped bowls they give you in the hospital. I wash it out when im done and everytime i'm in the hospital i take a couple home to replace them
  9. L

    Doing your vest?

    I use albuterol with it as well. I'm curious, what is the paper towel for? My guess is to collect what you cough up...?
  10. L

    What will you wish for?

    When I was about 8 years old I went to a New Kids On the Block concert for my wish.....LOSER!!!! My sister still makes fun of me, saying that I could have had anything I wanted and I chose to see NKOTB!
  11. L

    Looking to use time wisely...

    Go to www.cff.org and on the left side of the page there is a link that says "CFF chapters and CF care centers"
  12. L

    Newbies

    I'm Lindsey, 23 years old. I live in Irivine, California. Anyone else from California? I go to school full time and I am also a server at a restaurant full time. I just came across these forums a few days ago and I love it! I haven't had too much interaction with other CF'ers so it is really...
  13. L

    Relationship Advice Please...

    I just became engaged 3 months ago to my boyfriend of 3 years. In my opinion, if you absolutely know that you want to marry someone, you will stop at nothing to do it. In your case, something is stopping him. You are right- you are much healthier now than you will be in a couple years. And...
  14. L

    Dealing with school when you get sick

    Thanks to everyone for their replies. Mary, I have checked with the Disabled Students Program on campus. They basically said there was nothing they could do for me. My dad actually called them because I was in the hospital at the time; he yelled at them because they say they want disabled...
  15. L

    Dealing with school when you get sick

    I would like to know how everyone else deals with school when they get hospitalized. I have been in community college for 5 years now because it seems like every semester I end up having to drop my classes because I get too far behind from missing so much. I am to the point now where I don't...
  16. L

    Passing Time In The Hospital

    I am at home with a picc line as well. I did 3 weeks of the tobra /cipro but it didn't work. Now I am on Zosyn and Cipro. It seems to be working well. I hope so, I can't afford to be off work any longer! Whenever I get a picc line I have to have it placed down in radiology. The nurses...
  17. L

    Assistance in California

    I applied for GHPP about 2 years ago, right when I turned 21 (which is the minimum age.) I have an HMO but I applied because I was getting to the age where I wouldn't be covered by my parents insurance and my job doesn't offer benefits. It was a long process, about 10 months total, to apply...
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