Cystic Fibrosis Forum (EXP)

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  1. A

    female question

    Sara, I don't have CF, but I do get a lot of ovulation pain. Some months are worse than others. I've always had issues...cysts and endometriosis...so they are thinking it's caused by one of these. Not sure if that was any help whatsoever...but...just wanted to let you know that it's not...
  2. A

    female question

    Sara, I don't have CF, but I do get a lot of ovulation pain. Some months are worse than others. I've always had issues...cysts and endometriosis...so they are thinking it's caused by one of these. Not sure if that was any help whatsoever...but...just wanted to let you know that it's not...
  3. A

    female question

    Sara, I don't have CF, but I do get a lot of ovulation pain. Some months are worse than others. I've always had issues...cysts and endometriosis...so they are thinking it's caused by one of these. Not sure if that was any help whatsoever...but...just wanted to let you know that it's not...
  4. A

    So which mutation do you have

    My son has double delta F508. I diagnosed him around 2 months old due to digestive issues. He was diagnosed by sweat test at 3 1/2 months old. (Took about that long to convince everyone to test him!) His digestive issues have gotten better as he's gotten older (and once he got enzymes, he was...
  5. A

    So which mutation do you have

    My son has double delta F508. I diagnosed him around 2 months old due to digestive issues. He was diagnosed by sweat test at 3 1/2 months old. (Took about that long to convince everyone to test him!) His digestive issues have gotten better as he's gotten older (and once he got enzymes, he was...
  6. A

    So which mutation do you have

    My son has double delta F508. I diagnosed him around 2 months old due to digestive issues. He was diagnosed by sweat test at 3 1/2 months old. (Took about that long to convince everyone to test him!) His digestive issues have gotten better as he's gotten older (and once he got enzymes, he was...
  7. A

    No More Flu Shots . LOL

    LOL! Love it!
  8. A

    No More Flu Shots . LOL

    LOL! Love it!
  9. A

    No More Flu Shots . LOL

    LOL! Love it!
  10. A

    Living in Ignorance

    My mother in law told my husband she wants to be in denial. WANTS to be! WHO DOESN'T...but you have to put on your big girl panties and be a GROWN UP! Urrrrgh...don't even get me started...LOL!
  11. A

    Living in Ignorance

    My mother in law told my husband she wants to be in denial. WANTS to be! WHO DOESN'T...but you have to put on your big girl panties and be a GROWN UP! Urrrrgh...don't even get me started...LOL!
  12. A

    Living in Ignorance

    My mother in law told my husband she wants to be in denial. WANTS to be! WHO DOESN'T...but you have to put on your big girl panties and be a GROWN UP! Urrrrgh...don't even get me started...LOL!
  13. A

    What is Double DF508?

    When Ethan's nurse called to tell me what genes he had (Double Delta F508) she said..."You will hear this is the most severe...but that's not true...it is the most common gene, so there are so many varying severities" and basically, that you can't predict the severity of CF. I'm not saying...
  14. A

    What is Double DF508?

    When Ethan's nurse called to tell me what genes he had (Double Delta F508) she said..."You will hear this is the most severe...but that's not true...it is the most common gene, so there are so many varying severities" and basically, that you can't predict the severity of CF. I'm not saying...
  15. A

    What is Double DF508?

    When Ethan's nurse called to tell me what genes he had (Double Delta F508) she said..."You will hear this is the most severe...but that's not true...it is the most common gene, so there are so many varying severities" and basically, that you can't predict the severity of CF. I'm not saying...
  16. A

    Random CF encounter

    Oh...and my mom went to our local fabric/craft store to get beads and charms because she makes "65 Roses" bracelets and she happen to be talking about them to another lady in line and the cashier (teenager) started to ask questions like how to purchase one and finally told her that HE has CF! I...
  17. A

    Random CF encounter

    Oh...and my mom went to our local fabric/craft store to get beads and charms because she makes "65 Roses" bracelets and she happen to be talking about them to another lady in line and the cashier (teenager) started to ask questions like how to purchase one and finally told her that HE has CF! I...
  18. A

    Random CF encounter

    Oh...and my mom went to our local fabric/craft store to get beads and charms because she makes "65 Roses" bracelets and she happen to be talking about them to another lady in line and the cashier (teenager) started to ask questions like how to purchase one and finally told her that HE has CF! I...
  19. A

    Random CF encounter

    Yep! In October we were at Disney World of all places...and what are the chances...seated at the next table was a family about our age and the kids about our kids' ages. The mom comes up to me and asks if my son has CF. Of course I told her he did and she said their son (same age as Ethan)...
  20. A

    Random CF encounter

    Yep! In October we were at Disney World of all places...and what are the chances...seated at the next table was a family about our age and the kids about our kids' ages. The mom comes up to me and asks if my son has CF. Of course I told her he did and she said their son (same age as Ethan)...
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