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House and Grey's are my FAVORITE! Haven't watched the 2 parter of House yet, but glad to hear it's good. We are currently watching last years season of ALIAS on DVD. It's so much better that way (no commercials, better picture). I hope to watch LOST that way too this summer. (No, not much...
Sorry to butt in here...Luke, here is a good site for the grandmother to visit as it was started BY a grandmother...
<a target=_blank class=ftalternatingbarlinklarge href="http://health.groups.yahoo.com/group/CF_Infants_Toddlers/
">http://health.groups.yahoo.com.../CF_Infants_Toddlers/
</a>
HTH!
They've told me decongestants are fine, but NOTHING with a cough suppressant???????
Hmmmm?????? If someone can tell clarify? The CF nurses told me that decong. are fine?????<img src="i/expressions/face-icon-small-frown.gif" border="0">
Is there an update on this? I think it's a great idea!!!!!! Let me know if I can help in any way since it's still relatively fresh in my mind (newly dx'd).
Thank you in advance and thanks for putting you time into it!!!
No. Some do both. I guess it depends on what clinic you go to and what each dr. recommends. Most of the kids that I know only do Vest, but each person is different. I do know some kids just don't like the vest. My son prefers it over manual. We were getting to the point where it was a huge...
My son's been sleeping a little bit more too, but it might have something to do with the Motrin.
Hope she's better soon! Keep us posted <img src="i/expressions/face-icon-small-smile.gif" border="0">
I live in Indiana (USA). Most of the people I know (or their kids) do use the vest. You can email me at "Amanda_Roberts76@sbcglobal.net" if you'd like. Yes, the Vest is expensive, but most insurance companies cover at least some, if not most, of the cost. Not sure how that works in the UK?
My son (2 yowcf) has the exact same thing (but no fever) right now. I usually just email his nurse and keep her updated and let her know what I'm doing. He woke up 2 days ago from his nap with his nose totally stuffed w/ a dry cough. He woke up all night that night b/c he couldn't suck his...
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>SeanDavis</b></i>
New parents should look on the bright side though. Their children born today, have a much better chance of living a full life than the current adult cystics did. Before long CF will be looked at more as a chronic...
Emily and LisaV, points well taken. When I hear that we want it sugar coated b/c we're living in denial...some might be, yes. I do appreciate a <i>little </i>sugar...if not, I might hide in my bed all day and how would that benefit my kids? lol! The facts are hard for parents to deal with...
I really had no problem with the statement "the end result is the same". I think it's the bickering and other lack of sensitivity I've seen. It's also the fact that, at the beginning, people were more worried about who was being blunt and who was sugar coating than answering her question...
I think that the problem is that we parents have no idea what it's like to have CF and those with CF have no idea what it's like to be the parent. These are two different issues in themselves.
Why is it that the only options are being blunt or sugar coating? I do understand that people with...
I'm a member of both boards and I really don't see this board as "unfriendly". The other board is just smaller and focused on younger kids. It's still small enough where we all pretty much "know" eachother. I really don't think that anyone is afraid of hearing the truth it's just that for...
Dan,
What a beautiful post! You should write an "essay for newly dx'd families" <img src="i/expressions/face-icon-small-blush.gif" border="0">)
JW,
You'll be amazed what a year will do. Even a few months. I was in the same position. Basically still the "strong one" to THIS day, but that's...
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