Cystic Fibrosis Forum (EXP)

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    Disney

    Lindsey, Thank you!!!!!!!!! We are getting ready to go too and your post is so helpful!!!!! Another Colts Fan,
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    A Chance to Bless Two Cfers

    Pay it Forward... I didn't see any addresses for either...are they somewhere else? Much Love...
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    my baby is 21 - eeeeekkkkk :)

    Happy Birthday to him!!!!!!!!!!!!!!!! Congratulations, mom!!!!
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    First a Positive, now a negative...which one's right???

    Cabner, I'm sorry you and your baby are going through all of this. First question would be, was the sweat test done at a CFF accredited hospital? That's very important! Either way, I would order a DNA test...to be sure. The stools do sound familiar...but COULD be other things too. TRY not...
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    Going to the pool

    Christi, yeah, we are in a suburb of Indy and a few days ago, it was hard for ME to breathe outside!!! Looking forward to a little bit cooler weather <img src="i/expressions/face-icon-small-blush.gif" border="0">)
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    where are you from?

    Born in Indy, moved to San Antonio, TX for 3 years when younger, back in Indy now <img src="i/expressions/face-icon-small-blush.gif" border="0">) (Indy..Indianpolis <img src="i/expressions/face-icon-small-blush.gif" border="0">)
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    Support for Well Siblings

    Thank you for this link. I often worry about my daughter (no cf) and the affects it will have on her. Even at 6, I can see characteristics that may be due to her brother having CF. Although he's doing well now, I fear about her emotional well being if he's hospitalized. They are EXTREMELY...
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    Double Delta F508

    Count my son in for the Double Delta Club. I'll join the Double D club! lol!!! We won't get any unwanted junk mail, will we???? lol!!!!
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    People with CF ...

    Thank you, Charlotte! He was going to be "Riley" if he had been a girl (Riley is the name of the children's hospital he goes to)...but we had to settle for "ER" (his initials! LOL!!!! <img src="i/expressions/rose.gif" border="0">
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    NEED TO FIND

    My mom makes 65 Roses Bracelets that I sell on my website (www.FightForEthan.com) and we give all but $15 back to CFF (what it takes to make them). But I also have the blue and purple awareness bracelets <img src="i/expressions/face-icon-small-smile.gif" border="0">
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    Traveling with CF Toddlers

    We've traveled a few times w/ my CF toddler. Twice to Ft. Lauderdale from Indiana. So, if you're adding up those WONDERFUL, BONDING hours...it's 40 hours in a vehicle with a toddler and a preschooler. UGH! LOL!!!! Just try looking for a hotel at 10pm to do breathing treatments and to get the...
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    People with CF ...

    We love our Payton <img src="i/expressions/face-icon-small-blush.gif" border="0">) Might have to send you something...straight from Indy!!! Hmmmm...I'll have to think about that one! Is there anything you'd really like? (that you can't get from just anywhere??? lol!!!) It's still hard for...
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    People with CF ...

    Brad, That's very weird. I'm of Cherokee decent (Great-grandmother was full Cherokee). Hmmmm... *smiles* Lindsey, I again just must say, it's true. There's just something about people w/ CF. I truly believe, for one reason or another, that you all are chosen. I don't know why. Maybe it's...
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    People with CF ...

    Forgot to add a picture of my baby <img src="i/expressions/face-icon-small-smile.gif" border="0">
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    People with CF ...

    Lindsey, I must completely agree with you. I've thought this all along (nice to know I'm not just biased about my son *wink, wink*) All of the CF children (and adults) that I know...there's just something about them. They ARE special (and completely cute I might add. Isn't that what CF...
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    Anyone avoid dairy when they have a cold?

    <div class="FTQUOTE"><begin quote><i>Originally posted by: <b>thelizardqueen</b></i> According to the CF Foundation, dairy does not make a BIG difference in mucous production. In fact it doesn't even make a noticeable difference unless you have dairy allergies. They in fact recommend drinking...
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    The year of night

    Again, you are in my prayers and thoughts today. I can't even BEGIN to imagine what you are feeling. I plan on doing everything on the list today. I drank a Mountain Dew last night (which is NOT like me, but that's all there was <img src="i/expressions/face-icon-small-smile.gif" border="0">...
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    The Vest

    I think it might depend on the size of the child, probably different at different clinics. Ours was 21 inches around the chest. HTH!
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    Maggie's Sick Question Please

    <div class="FTQUOTE"><begin quote><i>Originally posted by: <b>anonymous</b></i> regular Sudafed(the little red pills) DO NOT have a cough supressant in them! Its just Pseudoephedrine...a NASAL decongestant. What you don't want is something with Dexamathorpan(can't spell) Guafenesin is...
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    Maggie's Sick Question Please

    The Children's Motrin Cold has NO suppressants in it. She told me what the name of the ingredient was to stay away from and this doesn't have it. This is only pseudoephedrine? (nasal decongestant) and ibuprofen. He also has D-Allergy prescribed by the clinic but only uses it on a need to...
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