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Hi Theresa - there certainly is so much to know, especially if you are dealing with an "atypical" type of diagnosis. We will be able to answer your questions more completely if you let us know the specific mutations that your granddaughter has. Regardless, I'm very sorry for the news and I...

Hi Theresa - there certainly is so much to know, especially if you are dealing with an "atypical" type of diagnosis. We will be able to answer your questions more completely if you let us know the specific mutations that your granddaughter has. Regardless, I'm very sorry for the news and I...

Hi Theresa - there certainly is so much to know, especially if you are dealing with an "atypical" type of diagnosis. We will be able to answer your questions more completely if you let us know the specific mutations that your granddaughter has. Regardless, I'm very sorry for the news and I...

Hi Theresa - there certainly is so much to know, especially if you are dealing with an "atypical" type of diagnosis. We will be able to answer your questions more completely if you let us know the specific mutations that your granddaughter has. Regardless, I'm very sorry for the news and I...

Hi Theresa - there certainly is so much to know, especially if you are dealing with an "atypical" type of diagnosis. We will be able to answer your questions more completely if you let us know the specific mutations that your granddaughter has. Regardless, I'm very sorry for the news and I...

Complaint: trying in vain to get a local source for nebs and compressors, we went through a PARI-suggested DME company. They refused to get the specific things our doc prescribed saying they didn't carry them (PARI LC Plus nebs and a PARI Pro Neb Ultra II). Argued with me that a neb was a neb...

Complaint: trying in vain to get a local source for nebs and compressors, we went through a PARI-suggested DME company. They refused to get the specific things our doc prescribed saying they didn't carry them (PARI LC Plus nebs and a PARI Pro Neb Ultra II). Argued with me that a neb was a neb...

Complaint: trying in vain to get a local source for nebs and compressors, we went through a PARI-suggested DME company. They refused to get the specific things our doc prescribed saying they didn't carry them (PARI LC Plus nebs and a PARI Pro Neb Ultra II). Argued with me that a neb was a neb...

Complaint: trying in vain to get a local source for nebs and compressors, we went through a PARI-suggested DME company. They refused to get the specific things our doc prescribed saying they didn't carry them (PARI LC Plus nebs and a PARI Pro Neb Ultra II). Argued with me that a neb was a neb...

Complaint: trying in vain to get a local source for nebs and compressors, we went through a PARI-suggested DME company. They refused to get the specific things our doc prescribed saying they didn't carry them (PARI LC Plus nebs and a PARI Pro Neb Ultra II). Argued with me that a neb was a neb...

That is an incredibly interesting article. It sheds some light for me on the clinical reasoning behind "atypical" and/or "genetic diagnosis" when used in conjunction with CF.

That is an incredibly interesting article. It sheds some light for me on the clinical reasoning behind "atypical" and/or "genetic diagnosis" when used in conjunction with CF.

That is an incredibly interesting article. It sheds some light for me on the clinical reasoning behind "atypical" and/or "genetic diagnosis" when used in conjunction with CF.

That is an incredibly interesting article. It sheds some light for me on the clinical reasoning behind "atypical" and/or "genetic diagnosis" when used in conjunction with CF.

That is an incredibly interesting article. It sheds some light for me on the clinical reasoning behind "atypical" and/or "genetic diagnosis" when used in conjunction with CF.

I'm going to go out on a limb and say I <b>much</b> prefer Teletubbies over the horrible purple dude. I hope you guys still respect me in the morning..... Also, regarding the mask - I didn't think about it until Liza's post but we never use the elastic to hold it to Katy's face. We hold it...

I'm going to go out on a limb and say I <b>much</b> prefer Teletubbies over the horrible purple dude. I hope you guys still respect me in the morning..... Also, regarding the mask - I didn't think about it until Liza's post but we never use the elastic to hold it to Katy's face. We hold it...

I'm going to go out on a limb and say I <b>much</b> prefer Teletubbies over the horrible purple dude. I hope you guys still respect me in the morning..... Also, regarding the mask - I didn't think about it until Liza's post but we never use the elastic to hold it to Katy's face. We hold it...

I'm going to go out on a limb and say I <b>much</b> prefer Teletubbies over the horrible purple dude. I hope you guys still respect me in the morning..... Also, regarding the mask - I didn't think about it until Liza's post but we never use the elastic to hold it to Katy's face. We hold it...

I'm going to go out on a limb and say I <b>much</b> prefer Teletubbies over the horrible purple dude. I hope you guys still respect me in the morning..... Also, regarding the mask - I didn't think about it until Liza's post but we never use the elastic to hold it to Katy's face. We hold it...