Cystic Fibrosis Forum (EXP)

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  1. A

    Kalydeco after Transplant

    If you have pancreatic issues it might prevent you from developing CFRD. Just a thought and not to be construed as medical advice.
  2. A

    Your interest in the world's current events?

    I already know all that stuff about obama-care. The pre-existing conditions thing which is already in effect played a big part in my daughter's diagnosis since a mis-placed form caused her to not have health insurance at that time and we were forced to apply for medicaid but she will need to be...
  3. A

    Your interest in the world's current events?

    I hate when people try to talk to me about politics especially the race for a republican candidate. I'm just like, I don't know. What are any of these schmucks gonna do to help my daughter who has CF? Nothing? I figured as much. Not interested then.
  4. A

    Resistant to every drug - Is this possible? Need help again!!

    I'll say a prayer for you too.
  5. A

    Resistant to every drug - Is this possible? Need help again!!

    I'll say a prayer for you too.
  6. A

    can anyone recommend a good vaccuum

    Yup. The dyson is amazing. They literally never lose suction. They're kinda expensive ($400) but everyone that gets one says they can't believe how much their old vacuum cleaner left behind!
  7. A

    can anyone recommend a good vaccuum

    Yup. The dyson is amazing. They literally never lose suction. They're kinda expensive ($400) but everyone that gets one says they can't believe how much their old vacuum cleaner left behind!
  8. A

    Back in the hospital :'(

    Sorry that should read "Glad to hear she's doing better."
  9. A

    Back in the hospital :'(

    Sorry that should read "Glad to hear she's doing better."
  10. A

    Back in the hospital :'(

    Glad to hear he's getting better.
  11. A

    Back in the hospital :'(

    Glad to hear he's getting better.
  12. A

    809

    I f you've got one copy of F508 then you should try joining the clinical trials that are currently recruiting. Test it out for yourself. http://clinicaltrials.gov/ct2/show/NCT01225211
  13. A

    809

    I f you've got one copy of F508 then you should try joining the clinical trials that are currently recruiting. Test it out for yourself. http://clinicaltrials.gov/ct2/show/NCT01225211
  14. A

    Back in the hospital :'(

    I don't understand what him having autism has to do with your decision to not have him transplanted. Is this because he won't be able to perform the necassary post-transplant care? I guess I'm just a little confused.
  15. A

    Back in the hospital :'(

    I don't understand what him having autism has to do with your decision to not have him transplanted. Is this because he won't be able to perform the necassary post-transplant care? I guess I'm just a little confused.
  16. A

    Getting a tattoo??

    hmmmm...
  17. A

    Getting a tattoo??

    hmmmm...
  18. A

    New game

    What did I win?
  19. A

    New game

    What did I win?
  20. A

    What can't you do after a transplant?

    No cats or changing the litter box. toxoplasmosis.
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