Cystic Fibrosis Forum (EXP)

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  1. L

    New Azithromycin information

    thanks for the update Amy, its always good to hear what is happening. I wondered if I should still take Azithro and now know that I definitely should be. Thanks
  2. L

    In the hospital

    wow Jen, I am so sorry that you are going through all of this, as if you needed one more thing. I pray your health will start to look up.
  3. L

    Happy birthday Allie

    Already said it but it can never be said too much. Happy Happy Birthday Allie Dear Happy Days will come to you all year If I had one wish then it would be A Happy Happy birthday to you from me! Hah CHEESEBALL I know. Love you Al
  4. L

    Please pray for Hairgirl

    I just talked with the hospital nurse and he told me that Roshelle has been extubated and is breathing on her own. The bleeding has stopped for now and they will just give her time to see how she does. She will be in ICU at least today and possibly moved tomorrow. I'll keep you updated if I...
  5. L

    Please pray for Hairgirl

    I called the hospital later this afternoon and they told me that they planned on trying to take the vent out tomorrow if all goes well. She is not completely sedated. She is responsive and they keep waking her up. That is all I know for now, but I will keep you all posted. Thank you for your...
  6. L

    Please pray for Hairgirl

    Hey Everyone, I have been really worried about Hairgirl (Roshelle) since she posted about bleeding last sunday and what to do, I hadn't seen her on IM so I emailed her to see how she was doing. I didn't get a response for a few days and have been very concerned. I just received this email from...
  7. L

    Has anyone heard from littledebbie?

    YEEEEAAAAHHHHHHH!!!!! Debbie's back, (does the snoopy dance) Good to see you here and happy to know it was just alcohol consuming your time.
  8. L

    Anyone try the pari pep?

    Okay, i got confused, I do the therapep, not the pari pep. Here is the website for the therapep. <a target=_blank class=ftalternatingbarlinklarge...
  9. L

    Anyone try the pari pep?

    I have used the therapep for years and love it. I do that instead of the vest. I hate the vest and didn't see many results with it. I don't know what Kylie was talking about with the interpreter, mine doesnt have that. I just unhook my meds when I do my breathing and huff coughs.
  10. L

    John My Heavens newest Angel

    I am so sad for your loss and his families loss.
  11. L

    Has anyone heard from littledebbie?

    We all must be thinking the same thing. I was thinking of PMing her today, been worried about her all week.
  12. L

    How much does everyone pay for Hypertonic Saline?

    thanks for all the responses, I am only on 3% due to not being able to tolerate it, but I can't believe how expensive salt water can be!
  13. L

    How much does everyone pay for Hypertonic Saline?

    Its pretty self explanatory. I was also wondering, Amy mentioned that she got hers through a mail order and I wondered if by chance it was Medco? Thanks for any input. I pay $32.00 for a month supply.
  14. L

    My Beloved friend John. Update

    Jennifer, I am so sorry to hear this. I cannot imagine what you must be going through. You, John and his family are in my prayers.
  15. L

    when did the anons come back?

    Just wondering when and why there are anonymous posts again? It was so nice to weed out a lot of the crap that goes on here.
  16. L

    Health Advice Needed

    Roshelle, I am so sad to hear that you coughed up blood again, I know how frustrating it is. I would definitely give a call to the docs just to let them know what is going on. It never hurts to do that. I know you don't want to do IVs again, but if it is what is needed it is better than...
  17. L

    Is this tacky???

    I do have to say that I am with amy on this one. I understand the difficulties and teh expense that comes with children but I still think it is a bit tacky. I just want to add, that you (Julie) probably think it is as well to even be asking the question.
  18. L

    I need some help/advice- LONG POST!

    I haven't read all of the posts, so I am sure that I will just be saying something that has already been said, but I'll give me input anyway. First, this has nothing to do with you or about you. This is Marks thing and only Mark can make that decision to do something about it. He sounds a lot...
  19. L

    The Big 4-0

    Happy Birthday! That is awesome! I have always said when I turn 40 it will be a great day to celebrate.
  20. L

    USAToday.com

    When I flew to New York I had to purchase oxygen to fly and it cost me $200.00. Its good to be able to take our own now, although at this moment I wouldn't need it. Thanks for the info.
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